We Don’t Know if the Babies Born From Mitochondrial Replacement Therapy Will Still Develop Mitochondrial Disease

By Katherine Drabiak Recently, media outlets around the world have been reporting on children born from pronuclear genome transfer (sometimes called “3-parent IVF,” “mitochondrial donation” or “mitochondrial replacement therapy”) at Newcastle Fertility Center in the United Kingdom. Twenty-two women underwent the procedure, which resulted in eight children, who now range in age from six months to over two […]

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If Marc is Suzanne’s father, does it follow that Suzanne is his child?

By Daniela Cutas, Anna Smajdor, Kristien Hens, and Emma Moormann According to the respondents in our study, the short answer is: not necessarily. We drafted a series of vignettes in which we explored the relationships between reproduction, genes, and parenthood. We wanted to understand the impact that the degree of genetic relatedness might have on […]

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Genetic research and the collective good: participants as leaders

By Ilaria Galasso and Susi Geiger. Medical ethics has long centered around the question of how to balance the public or common good with individual rights. Different approaches to ethics would prioritize different values in the context of medical research participation. Well-established moral principles provide solid arguments both for an obligation to participate in medical […]

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Developing a practical resource to improve the ethical standing of gene therapy trials

By Rosie Munday, Hugh Davies and Stephanie Jones with Oxford “A” Health Research Authority Research Ethics Committee Oxford “A” NHS REC is one of the four UK Research Ethics Committees flagged to review gene therapy proposals. Following the philosopher Mary Warnock’s sage advice “I do not believe you can make moral judgements unless, as far […]

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Commercial DNA databases and criminal investigations: Why the customer should not be king

By Nina de Groot In a colorful envelop, tens of millions of people around the world have sent their cheek swabs to a commercial company with the same colors on its facade. By taking a DNA test, they hope to find out about long-lost relatives, their genetic susceptibility for breast cancer, athletic performance capabilities, or […]

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Expanding insurance coverage for in vitro fertilization with pre-implantation genetic testing

By Madison K. Kilbride When prospective parents learn that they’re at risk of passing a genetic condition to their future children, they’re often very concerned. Currently, there are two ways to ensure that one’s biological children do not inherit a hereditary condition. The first is to conceive naturally, use prenatal diagnosis to test the fetus […]

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