Guest Post: Paraskevas Vezyridis Article: Dissenting from Care.data: An Analysis of Opt-out Forms In our article, which is part of a wider project examining the technical, social and ethical challenges of big data in primary care, we simply wanted to explore how varied opt out forms can be when there is no standardised form available. […]
Category: Research Ethics
The End is Not What it Seems – Feasibility of Conducting Prospective Research in Critically Ill, Dying Patients.
Guest Post by Amanda Van Beinum Re: Feasibility of conducting prospective observational research on critically ill, dying patients in the intensive care unit Collecting information about how people die in the intensive care unit is important. Observations about what happens during the processes of withdrawal of life sustaining therapies (removal of breathing machines and drugs used to maintain […]
Where to Publish and Not to Publish in Bioethics
Guest Post by Stefan Eriksson & Gert Helgesson, Uppsala University * Note: this is a cross-posting from The Ethics Blog, hosted by the Centre for Research Ethics & Bioethics (CRB) at Uppsala University. The link to the original article is here. Re-posted with permission of the authors. Introduction Allegedly, there are over 8,000 so-called predatory […]
Circumcision and Sexual Function: Bad Science Reporting Misleads Parents
by Brian D. Earp / (@briandavidearp) Introduction Another day, another round of uncritical media coverage of an empirical study about circumcision and sexual function. That’s including from the New York Times, whose Nicholas Bakalar has more or less recycled the content of a university press release without incorporating any skeptical analysis from other scientists. That’s par for […]
A Tool to Help Address Key Ethical Issues in Research
Guest post by Rebecca H. Li and Holly Fernandez Lynch One of the most important responsibilities of a clinical project lead at a biotech company or an academic research team is to generate clinical trial protocols. The protocol dictates how a trial will be conducted and details background information on prior research, scientific objectives, study […]
The Unbearable Asymmetry of Bullshit
By Brian D. Earp (@briandavidearp) * Note: this article was first published online at Quillette magazine. The official version is forthcoming in the HealthWatch Newsletter; see http://www.healthwatch-uk.org/. Introduction Science and medicine have done a lot for the world. Diseases have been eradicated, rockets have been sent to the moon, and convincing, causal explanations have been given for a whole range […]
What should Investigators be Doing with Unexpected Findings in Brain Imaging Research?
Guest Post by Caitlin Cole Incidental findings in brain imaging research are common. Investigators can discover these unexpected findings of potential medical significance in up to 70% of their research scans. However, there are no standards to guide investigators as to whether they should actively search for these findings or which, if any, they should […]
Research Ethics: You’re Doing it Wrong!
With any luck, the marking tsunami will have receded by the end of the week, and so I should be able to get back to blogging a bit more frequently soon. In the meantime, I’ll fill some space by ripping off something from the “Feedback” page of the latest New Scientist: The TV industry has […] […]
Animal Liberation: Sacrificing the Good on the Altar of the Perfect?
For my money, one of the best papers at the nonhuman animal ethics conference at Birmingham a couple of weeks ago was Steve Cooke’s.* He was looking at the justifications for direct action in the name of disrupting research on animals, and presented the case – reasonably convincingly – that the main arguments against the permissibility of […]
Animals in US Laboratories: Who Counts, Who Matters?
Guest post by Alka Chandna How many animals are experimented on in laboratories? It’s a simple question, the answer to which provides a basic parameter to help us wrap our heads around the increasingly controversial and ethically harrowing practice of locking animals in cages and conducting harmful procedures on them that are often scary, painful, and […]