Me, my cells and I: reflecting on the value of the genome in light of the Lacks family settlement

By Aileen Editha. “Not only were the HeLa cells derived from Henrietta Lacks – the HeLa cells are Henrietta Lacks” – Ben Crump, attorney for the Lacks family. (He)nrietta (La)cks Henrietta Lacks was a Black tobacco farmer living in Baltimore, Maryland. She was treated for cervical cancer at Johns Hopkins University Hospital, one of the […]

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Can representatives of more than 10 million physicians worldwide agree on a foundation of medical ethical principles?

By Ramin W Parsa-Parsi, Raanan Gillon, Urban Wiesing. In today’s polarised world, achieving unanimous support for anything is a rare occurrence – let alone anything ethical. Simply agreeing to disagree to avoid outright confrontation is already a high enough bar to clear. It is in this climate that the World Medical Association (WMA) faced the […]

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The UK Supreme Court just made meaningful patient involvement in medical decision-making more difficult

By Jennifer O’Neill. This week, the United Kingdom Supreme Court (UKSC) revisited its ruling in the landmark case of Montgomery v Lanarkshire [2015]. In McCulloch v Forth Valley Health Board [2023], the Supreme Court Justices established that doctors do not need to inform patients of all possible treatment alternatives as a requirement of informed consent. […]

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“We could use that as a tiebreaker” – Yes, but why should we?

By Borgar Jølstad and Erik Gustavsson. Health care priority setting should be based on morally relevant factors such as need, severity, and maximizing health outcomes. But sometimes we must choose between health care allocations where these primary considerations are tied. It is sometimes suggested, and implemented in practice, that in these situations other, perhaps more […]

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Patient data for companies: Patient privacy, private profits and the public good

By Adrian Thorogood and Eva Winkler. Our paper tackles a question that policymakers and public healthcare systems are wrestling with around the world: should for-profit companies be given access to medical data derived from patients for research? In public healthcare systems, medical data is generated as part of the routine care of patients, and through […]

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Pig hearts and paediatrics: how children will require distinctive ethical approaches when xenotransplantation becomes a reality

By Anthony Merlocco Due to the ongoing struggle to obtain organs for those in need, and the resulting morbidity and mortality while awaiting organs, renewed efforts to study transplantation between species, or xenotransplantation (XTx), have emerged. Gene editing has been used to enhance human graft survival or to make animal organs better suited for a […]

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Decision-making in injustice: MAiD in Canada after Bill C-7

By Kayla Wiebe and Amy Mullin. In February, 2022, a Canadian citizen with a severe case of multiple chemical sensitivities (MCS) requested and subsequently received medical assistance in dying (MAiD). The decision to request MAiD was made after a two-year fight to access housing that would have made living with their condition tolerable. This kind of […]

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The dark side of psychedelics’ power

By Daniel Villiger. Last year, the German crime series Tatort, which belongs to the most watched television shows in Germany, Austria and Switzerland, aired an episode that takes place in the psychedelic underground. In his mansion, a spiritually-oriented psychiatrist hosts psychedelics sessions for his patients or, rather, his followers. Little surprisingly for a crime story, […]

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