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Patient and public perspectives

Sarah Markham: #DataSavesLives—Patient participation ensures data are accurate and useful

November 19, 2018

Patients’ data, how they are used and who they are shared with is a hot topic, and ever more important in modern healthcare. Concerns around data security are understandable, but […]

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Estelle Jobson: Engaging with patients on the hospital soundscape

November 19, 2018

Mediating noise is one of the challenges of being in hospital, but patients can be part of the solution, says Estelle Jobson […]

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Jules Horton: Capturing lost voices by listening to patient’s solutions

November 16, 2018

Most agree that it is vitally important to find patient-led solutions for NHS problems. But how many sources of patient feedback are routinely overlooked or discarded? […]

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Frank Gavin: Helping patients understand adverse drug reactions

November 6, 2018

Adverse drug reactions (ADRs), or side effects, are important to patients. This became very clear to me in the six years when I served as a public member of the […]

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Alma Ata, Astana and beyond—patients and communities as the core of universal primary healthcare

October 24, 2018

Anya de Iongh, Sarah Markham, and Rakhal Gaitonde As the 40 year anniversary of the Alma Ata Declaration on Primary Health Care arrives, it prompts a range of reflections, on […]

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Michael Gill: What we mean when we talk about remission

October 16, 2018

The conversation about remission for patients with serious chronic diseases like rheumatoid arthritis and lupus needs to change. Many rheumatologists talk about remission as if it is the goal of […]

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Anya de Iongh: Prescribing should be #personalised, whether it’s social or pharmacological

October 3, 2018

All prescribing conversations should feel like a person centred conversation, says Anya de Iongh […]

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Emma Cartwright and Jess Rees: The Cochrane Colloquium—a patient perspective

October 1, 2018

Emma Cartwright and Jess Rees received the Rosamund Snow award to attend the Cochrane Colloquium in Edinburgh The Cochrane Colloquium is a large international conference, which this year was held […]

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Editors at large, Patient and public perspectives0 Comments

Maria Kristiansen: The difference that kind and compassionate care makes

September 18, 2018

Doctors’ acts of kindness and compassionate care shaped my experience of bereavement, says Maria Kristiansen […]

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Patient and partner as educators and researchers

September 14, 2018

When David was diagnosed with prostate cancer and later staged, we did as academics would do for any other study—we researched prostate cancer and its treatments as if it were […]

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