Amali Lokugamage and colleagues argue that patients are still struggling to get their voices heard above doctors, a situation that risks “structural iatrogenesis” […]
Patient and public perspectives
A national system of online access by patients to personal health information in Australia is proving valuable
There was a significant piece of international healthcare news this year in April that you may have missed. It was such a momentous development—empowering people and providing them with access […]
Left in limbo—barriers to covid “passports” for trial participants will deter people from taking part in research
It’s a situation that risks putting people off future vaccine trials and it needs to be fixed urgently, says Henry Scowcroft […]
Maria Hägglund: Nordic countries lead new initiative on patient access to EHRs
In software design, involving end users in design and decision-making processes, so called participatory design, is sometimes referred to as “the Scandinavian approach.” This is because back in the 1970s, […]
Why we need to improve rates of early diagnosis in never-smoking lung cancer—a patient-led initiative
Razia was thirty-five years old when she was diagnosed with stage IV lung cancer. She is the mother of three young daughters and was healthy and active. She had never […]
Placing women’s voices at the centre of their care
It is very encouraging to see the UK government announcing its intention to develop a Women’s Health Strategy. Anyone who doubts the need for this just has to look back […]
Tessa Richards: Thank goodness for Google
It plugs gaps in patient information sheets, which would be improved by more input from patients, argues Tessa Richards Thanks to skilled clinicians, I’m enjoying what remains of my nine […]
Cancer must not be the forgotten “C” in the fight against covid-19
Covid-19 has had a personal impact on me. On 29 March 2020, I lost my uncle to covid-19. My colleague Eduard Vrdoljak, while consoling me for my loss, indicated that […]
Surviving critical illness is only the beginning: why patients must be supported in the aftermath
We are failing ICU patients by not providing the rehabilitation they need, but change is possible, says Catherine White […]
Liza Morton: Waiting patiently
Healthcare systems need to better addresses waiting across the patient journey to support health, wellbeing, recovery, and trust […]