By Andreas Wabro. Achieving transparency and interpretability of algorithmic predictions remains an important research goal for many AI experts around the world. In particular, the epistemic benefits of explainable AI (XAI) methods have been widely discussed, and especially in the context of healthcare, international institutions and academic experts often call for measures to improve physicians’ […]
Latest articles
Medical research with human samples and health data—why ‘dynamic’ consent is not the solution
By Andreas Bruns and Eva C Winkler. Informed consent is a central principle of medical research ethics. Traditionally, consent is required to respect the autonomy of human research subjects—their right to make their own, informed decision about whether or not to participate in medical research. However, this principle has come under significant pressure with the […]
Smart mouthguards and contact sport: The data ethics dilemma
By Richard B. Gibson & Anna Nelson While concern about the long-term health consequences of head injuries obtained during rugby matches and training is not a new issue, it is one which has been garnering increased attention in recent years. In June 2024, researchers found that retired rugby players who had suffered multiple concussions had […]
If Marc is Suzanne’s father, does it follow that Suzanne is his child?
By Daniela Cutas, Anna Smajdor, Kristien Hens, and Emma Moormann According to the respondents in our study, the short answer is: not necessarily. We drafted a series of vignettes in which we explored the relationships between reproduction, genes, and parenthood. We wanted to understand the impact that the degree of genetic relatedness might have on […]
Expanding the mind and rights of patients with implantable BCIs
By Guido Cassinadri and Marcello Ienca Implantable brain-computer interfaces (iBCI) are implantable systems that record quantitative neural data and use them to deliver various responses such as therapeutic, diagnostic, or preventive interventions. BCIs have been used inter alia to predict seizures in epileptic patients by monitoring their neural data and either delivering electrical stimulation or […]
Don’t kill me, I am your doctor
By Pinghui Xiao and Hong Hong. On July 19, 2024, Li Sheng, a cardiologist from the First Affiliated Hospital of Wenzhou Medical University was stabbed by an irate relative of a patient. Li suffered multiple serious injuries, including to his liver, intestines, pancreas and abdominal aorta. Despite emergency treatment, he died on the same day. […]
Is deepfake therapy ethically and legally acceptable?
By Marieke Bak and Saar Hoek When is technology helpful and when is it harmful? Can new technologies be used to create a better world, or are they only making matters worse? These are the questions that first crossed our minds when we came across deepfake therapy. All deepfake technology uses deep learning—a form of […]
Mind the anticipatory gap: factoring future moral change into the governance of human genome editing
By John Danaher. Human genome editing is a potentially transformative emerging technology. Current clinical trials of CRISPR, for example, suggest it can be used as a therapeutic to treat a wide range of hereditary and acquired diseases. More speculatively, it could also be used as an enhancer, improving the capacities of generally normal or healthy […]
Making visible the invisible elements of clinical ethics consultation
By Clare Delany, Sharon Feldman, Barbara Kameniar, and Lynn Gillam. In our article, ‘Making clinical ethics facilitation visible and accessible: Seven steps of the Critical Dialogue method of Ethics Consultation’, we detail our method of clinical ethics facilitation, broken down into seven steps. We also share the rationale for the various steps, and provide concrete […]
What does it mean to diagnose and live with cancer risk?
By Elspeth Davies In the past, people only became patients when they felt unwell and visited their doctor in search of remedies. In recent decades, a shift towards prevention in the UK’s National Health Service (NHS) has meant that people can become patients on the basis of their future risk of disease, rather than only […]