The CVD-COVID-UK consortium’s paper, published today in The BMJ, summarises a remarkable achievement: the data described covers 96% of the population in England and there is a rigorous governance structure […]
Patient and public perspectives
Charlotte Squires: The shielding doctor—one year on
One morning in early March 2020, I found myself sat under a lemon tree on a Mallorcan farmstay, frantically emailing my haematologist over ropey wi-fi. Early information had been released […]
Emma Doble: WHO Global Diabetes Compact—Inviting people living with diabetes to sit at the table
In November 2020, the World Health Organization (WHO) announced it was launching a Global Diabetes Compact to identify ways to support countries to develop and implement programmes to prevent and […]
Tobias Esch: Integrating OpenNotes and promoting self-management in primary care in Germany: The Witten Model
In Germany, patients’ rights to access their health information has been enshrined in the Civil Code since February 2013. The right to “inspect medical records” in § 630 g states […]
Brazil, a country collapsing during the covid-19 pandemic
Brazil was the first Latin American country with covid-19 cases on 26 February 2020. At that time, reports from China, Italy, and other Asian and European countries were already abundant […]
Marija Pantelic and Nisreen Alwan: The stigma is real for people living with long covid
Long covid stigma will have long lasting detrimental outcomes for patients, services, and society as a whole […]
Nicci Gerrard: It is unacceptable that caregivers should be refused meaningful contact with their loved ones
Every single day, my co-founder of John’s Campaign and I receive phone calls and emails from people in distress and despair. John’s Campaign is an organisation set up to fight […]
People with learning disabilities are equal members of society, not vulnerable burdens
The battle to prioritise people with learning disabilities for the covid vaccine may be won, but did negative stereotypes and outdated prejudices have to be reinforced to get there? […]
Tokophobia: Why aren’t we talking about it more?
Tokophobia is an extreme fear of pregnancy and childbirth; it causes severe psychological distress and can have far reaching consequences. Despite this, tokophobia is under-researched and many healthcare professionals have […]
Endometriosis should be considered a priority health issue
Global healthcare systems are wrestling with the management of an increase in people requiring care in complicated diseases. Supporting patients with long term chronic conditions such as endometriosis has become […]