All doctors receive some training in physical disability, but many will not come face to face with the realities. Managing people with increasing disability is done largely outside hospital by […]
Patient and public perspectives
Julia Gumy: Child centred care in paediatric oncology—lessons from the covid-19 pandemic
A BBC news article titled “Covid: The devastating toll of the pandemic on children” highlighted the negative effect of the pandemic on children’s physical and mental wellbeing. Months of lockdown […]
Involving the public across the spectrum of health data usage
I recently co-led a virtual workshop for patients and the public about future opportunities and factors that influence acceptance of the European Health Data Space (EHDS). [1] The EHDS is […]
The ripples of trauma caused by severe pain during IUD procedures
More and more women are coming forward to share their stories of a painful IUD procedure. Healthcare services need to get better at recording these experiences, says Stephanie O’Donohue […]
We must take long covid into account when easing covid restrictions
As the UK government announce plans to roll back covid-19 restrictions in England, a group of patient advocates with long covid write an open letter to Sajid Javid, the secretary […]
How to be both: a psychiatrist’s experience of mental illness
Some patients stick in your mind. When I was a medical student, I remember talking to a patient who had just come into hospital, who was quite unwell, and could […]
Unlocking the digital front door: the keys to inclusive healthcare
Thinking “inclusion first” and not “digital first” is central to combating health inequality Covid-19 necessitated an unexpected and seismic shift in the way health and care services function. Face-to-face services […]
Patient directors—the next step in the patient revolution
Six years ago, Michael Seres, a champion for patient centred care, Alison Cameron, a consultant in patient and public involvement, and I, gave evidence to the Future of NHS Leadership […]
Sangeetha Kolpattil: Covid-19—do not give up
I am a consultant radiologist working in the UK and contracted a severe case of covid-19 during the first wave in 2020. However, I was lucky enough to survive after […]
Pivotal not peripheral: the role of administration in the NHS
Before the pandemic hit, The King’s Fund, Healthwatch England, and National Voices embarked on a project to better understand how administrative practices in the NHS impact on people’s experiences of […]