Guest Post: Michele Loi Article: Direct to Consumer Genetic Testing and the Libertarian Right to Test Should individuals be permitted to access their own genetic data without the mediation of a medical professional? In ‘Direct to Consumer Genetic Testing and the Libertarian Right to Test‘, I argued that they should, provided that they bear […]
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Conflicting Interpretations or Conflicting Opinions? Being Clear about the UN-CRPD
Guest Post: Matthé Scholten and Jakov Gather Article: Adverse consequences of article 12 of the UN Convention on the Rights of Persons with Disabilities for persons with mental disabilities and an alternative way forward When a patient is incompetent to make a particular treatment decision due to impaired decision-making capacity, it is common practice that the […]
Machine Learning and Medical Education: Impending Conflicts in Robotic Surgery
Guest Post by Nathan Hodson Research in robotics promises to revolutionize surgery. The Da Vinci system has already brought the first fruits of the revolution into the operating theater through remote controlled laparoscopic (or “keyhole”) surgery. New developments are going further, augmenting the human surgeon and moving toward a future with fully autonomous robotic […]
There’s a New Declaration of Geneva!
By Iain Brassington Contain your excitement if you can… The World Medical Association has issued its latest version of the Declaration of Geneva. (h/t to Mark Rapa for bringing this to my attention.) This is apparently something that it does every decade, tinkering with phrasing as it sees fit. So, then: what does it say? Well, […]
“Top of the Lake” may Sink as a Procedural, but Look Beneath the Surface
By Iain Brassington A couple of weeks ago, BioNews invited me to review Top of the Lake; but since it’s relevant to the kinds of things that appear in the JME, I thought I’d repost it here. There’s a moment in the final episode of this second series of Jane Campion’s Top of the Lake where Nicole […]
Special Issue Call for Papers: Medical Ethics and Treatment Decisions Following Charlie Gard
The court case between Charlie Gard’s parents and his Great Ormond Street Hospital medical team attracted international media attention, public protest, and comments from the Pope and US President Trump. Charlie was born with a rare genetic disease, for which there is currently no cure. Charlie’s parents found and crowdfunded for experimental treatment in the US. But […]
Using Best Interests Meetings for People in a Prolonged Disorder of Consciousness to Improve Clinical and Ethical Management
Guest Post: Derick T Wade Article: Using best interests meetings for people in a prolonged disorder of consciousness to improve clinical and ethical management One year ago I wrote the first of two articles on improving the management of people with a prolonged disorder of consciousness. That article was the result of about 18 months […]
Organ Donation: Presumed Consent and Focusing on What Matters
Guest Post by Rebecca Brown Recent newspaper reports covered the story of Jemima Layzell, a 13 year old who died suddenly of a brain aneurysm in 2012. According to reports, shortly before Jemima died, the subject of organ donation had come up in discussions with her family, prompted by the death of a family friend […]
Ethical Issues when Modelling Brain Disorders in Non-human Primates
Guest Post: Carolyn Neuhaus, Ph.D. Paper: Ethical issues when modelling brain disorders in non-human primates In early 2016, Nature published a letter from a group of Chinese researchers reporting that they had created rhesus macaques with “autism-like” behaviours. The macaque was bred with a mutation in the MeCP2 gene. Overexpression of MeCP2 occurs in MeCP2 Duplication Syndrome, a […]
Revealing Recipient Details to Families of Potential Organ Donors
Guest Post: David Shaw & Dale Gardiner Paper: Increasing organ donation rates by revealing recipient details to families of potential donors Families often don’t allow their deceased relatives to donate organs, even when the patient was a registered organ donor. Even when the donation process is explained sensitively by specialist nurses, families can focus much more […]