Plans to hold to the 9th biennial Global Patients Congress 2020 (GPC 2020) in the hallowed rooms of the Royal College of Surgeons in Edinburgh, to mark the International Association […]
Patient and public perspectives
Implications of the covid-19 pandemic on chronic care: global perspectives from people with type 1 diabetes
An international group of patient advocates living with type 1 diabetes share their perspectives about the impact of the pandemic on their countries, communities and personal health. […]
Counting long covid in children
With the recent announcement that the NHS will provide services for patients with long covid, there was a palpable sense of triumph among the community of long haulers. We both […]
Tuberculosis patients need better mental health support, especially in the time of covid-19
As the world grapples with the covid-19 pandemic, the anxiety, fear, and restrictions it poses have once again brought mental health to the forefront. As health systems struggle to cope […]
Withdrawing Priadel—very expensive for the NHS and extremely worrying for patients
I take Priadel, a form of lithium carbonate, to help me recover from decades of severe mental illness: psychosis, depression, suicidality, and self-harm. Priadel helps me find some sort of […]
Why we need to keep using the patient made term “Long Covid”
“Long Covid” was first used by Elisa Perego as a Twitter hashtag in May to describe her own experience of a multiphasic, cyclical condition that differed in time course and […]
Long covid and self-help pacing groups—getting by with a little help from our friends
Paul Garner and colleagues describe how a self-help pacing group has helped them manage their long covid […]
The needs of disabled children are being overlooked in the wake of covid-19
I am a genomic scientist and have spent more than 26 years working with the human genome on the Wellcome Genome Campus near Cambridge, UK. Currently, I work at Congenica, […]
Ceinwen Giles: Is it safe to go to hospital or visit my GP—patients want to know
The NHS has to go beyond telling people to attend hospital and GP services and instead explain how it is working to keep them safe throughout their healthcare experience, says […]
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it
“Has covid-19 gone?” My first thought every morning for six months. A few weeks ago, I was jubilant. The muscle aches had evaporated, my head was clear. I announced this […]