“With dexterity issues together with learning difficulties in addition to my sight loss, I find it very hard to wear the mask and I have tried several times. It made […]
Patient and public perspectives
Miles Sibley: Hacking through the measurement maze
Last year, a report from the Health Foundation looked at quality measurement—including patient experience—across a range of healthcare services. It described a “measurement maze”, with multiple sources and numerous national […]
Ceinwen Giles: The shielder’s dilemma
As the government look set to make an announcement on shielding, Ceinwen Giles discusses the impact that shielding is having on patients and their families […]
David Gilbert on Michael Seres—three times as good
I want to cry. But I hear his voice. “Cut it out. Get to the point”. He was a legend and true Mensch. In 2011, Michael woke up in hospital […]
Tessa Richards: Will covid-19 change conferences for the better?
Today’s rapidly convened virtual events are pointing the way to a greener, more inclusive future Spare a thought for conference organisers. Over recent months covid-19 has put paid to months […]
Let’s get the evidence on shielding out in the open and start conversation about how people want to live
Changes to shielding advice must involve patients and carers, says Charlotte Augst […]
Being heard, not, “seldom heard”: democratising research with diverse communities during the covid-19 pandemic
Debates in global health research have long called for a move away from semi-colonial approaches to research, which primarily serve the interests of populations in high income countries to more […]
Are intensive care triage protocols harming the disabled?
Much of the covid-19 pandemic messaging focuses on protecting those who are at high risk of catching coronavirus more easily, developing complications of the illness and dying, but efforts may […]
Don Redding: Service “reset” must be informed by patients’ experience of the covid-19 pandemic
As the NHS in England becomes confident that it has managed the first peak of covid-19 without being overwhelmed, it is taking stock of the enormous changes created in service […]
Making remote consultations work for patients during covid-19: experience from the “other side” of the virtual clinic
As the covid-19 pandemic makes its mark on society there are many implications for people living with long-term or life-limiting conditions. The advent of social distancing and the need for […]