Co-creation is by no means a new concept. It refers to the collaborative development process of products and services with relevant stakeholders or “end users,” and it now crosses most […]
Patient and public perspectives
Charlotte Blease: We need to talk about “closed notes”
Lack of easy access to personal health records is associated with adverse consequences for patients, writes Charlotte Blease “The cancer might be stage 1b. Then again it could be 3b.” […]
Healthcare in our hands: Putting babies, children, and young people at the centre of their care
Everyone is entitled to a say in the healthcare services they use and a child or young person is no different, say Aishah Farooq, Emma Beeden, and Catherine White […]
Building the next generation of digital health services in Europe
In an Opinion piece published in The BMJ recently, Dipak Kalra called for a recalibration of our approach to data protection. [1] He suggested we should reconsider how we value […]
To speed progress in treating chronic conditions, engage patients and caregivers as research partners
In my day job, I conduct research for a large international research and consulting firm on affordable housing and the effects of policies to help individuals build assets, increase earned […]
Midwifery continuity of care: Why patients should be more vocal advocates
Midwifery continuity of care has the potential to improve outcomes and birth experiences, but maternity teams need to be given the right resources to make it a success, says Stephanie […]
How we’re talking about chronically ill, disabled, and immunosuppressed people in the era of covid-19 and why it matters
When I was nine years old, I got the part of a dance fitness class student in my school’s choir concert. I was over the moon. Two weeks into practice, […]
Surrogate endpoints need complementary patient reported outcomes
Cancer’s gold standard trial endpoint, overall survival (OS), is being overtaken by the growing use of surrogate endpoints. This presents regulators with challenges, but these are seldom debated in patient […]
“A game of phone tag”—getting children of clinically vulnerable parents vaccinated has been disgracefully chaotic
Mark Davies describes the stress of trying to navigate senseless bureaucracy so that he could get his sons vaccinated […]
Australia’s covid-19 experience—pride before the fall
The Australian covid-19 experience has been a rollercoaster. We greeted covid-19 head on. Our first outbreak was in April 2020 and the approach taken was to do all that we […]