In this Forum article, the authors describe the ‘Small Steps, Big Vision Grab and Go Guide’ with its focus on children and young adults Authors: Holly Smith, Acting Matron – Children & Young Adults Service St Oswald’s Hospice Gosforth Newcastle upon Tyne, NE3 1EE UK, Diane Nicholson, Sister, Children and Young Adults St Oswald’s Hospice […]
Category: Advance Care Planning
A national day highlighting the importance of Advance & Future Care Planning
Author: James Norris, founder of MyWishes Mount Vernon Hospital, Gate 3, Michael Sobell Hospice, Palliative Care Department, Northwood On the 8th May the first national Advance Care Planning day will take place in the United Kingdom. This day of action and awareness will highlight the importance of Advance Care Planning and encourage society to document, […]
A Different Approach to Advance & Future Care Planning DNACPR Conversations for Older People Living with Frailty – A Quality Improvement Project for NHS Wales’ Advance & Future Care Planning Strategy Group
Author Details Laura Ellis-Lane B.Sc. Physiotherapy; M.Sc. Advanced Clinical Practice; PGC Falls and Osteoporosis; Professional Doctorate Candidate. Consultant Therapist – Frailty / Older Peoples’ Rehabilitation , Care of the Elderly – East Integrated Health Community – Betsi Cadwaladr University Health Board, Wales, United Kingdom Dr. Wendy Wilkinson B.H.Sc. Occupational Therapy; M.H.Sc Occupational Therapy; Professional Doctorate; […]
What Matters Most: Cause, Preferred and Actual Location of Death for MND Patients in South Wales
Authors: Jasmine Reeve-Foster Jasmine is a final year undergraduate medical student currently intercalating in Psychology and Medicine iBSc at Cardiff University Dr. Siwan Seaman is Medical Director, Marie Curie Cymru and Consultant in Palliative Medicine Motor Neuron Disease (MND) is a life-limiting illness affecting 1 in 300 people in the UK. It is characterised […]
NHS Wales Message In A Bottle Scheme
– NEWS – How can an individual’s fridge help in alerting paramedics to important care plans? Here, we describe a project that has been running in Wales for several years. Paramedics from Welsh Ambulance Services NHS Trust (WAST) are increasingly called to palliative care patients at a point of sudden deterioration, or crisis. The […]
A Quality Improvement Project looking at written Do Not Attempt Cardiopulmonary Resuscitation decisions
Authors Prof. Mark Taubert, Consultant in Palliative Medicine and national strategic lead Advance & Future Care Planning, Wales Dr. Ellen Haire, palliative care doctor and researcher, Cardiff University, Wales Mr. Alan Buckle, patient/carer representative on All Wales Advance & Future Care Planning Group which oversees DNACPR policy for NHS Wales Introduction In the United […]
Why can’t we engage more people in future care planning?
By Dr Joseph Hawkins, Consultant in Palliative medicine and end of life clinical lead, Ashford and St Peter’s Hospital. Twitter: @JoeHawk75825077 It seems to me that planning ahead is a little like eating your five fruit and veg a day. We all know we should do it, but it’s still difficult for many to […]
“Sharing and involving online”- Outline Business Case for a national electronic Advance and Future Care Planning solution, accessible to care providers and patients
Authors Lucy McLintock, Partner at Channel 3 Consulting, London, UK Sarah Armitage, Principal Consultant at Channel 3 Consulting, London, UK Steve Ham, Chair, National Programme Board, End of Life Care, NHS Wales Executive, Gwaelod y Garth, Cardiff, UK Mark Taubert, Chair of Advance & Future Care Planning Strategy Group, Cardiff, NHS Wales The authors […]
A conversation about dying – Green Man Festival 2021
News and Events “What happens when you die” event at Green Man Festival 2021. Listen to the event here. The Green Man Festival is Wales’ largest art festival, and it returned with furore and a large offering of musical and spoken word performances, after being cancelled in 2020. Where better to discuss the […]
The Sound of covid-19: Binaural Recordings of a Palliative Care Ward Round in a Cancer Hospital.
Authors: Prof. Mark Taubert, Consultant in Palliative Medicine, Velindre University NHS Trust & Cardiff University School of Medicine, Cardiff, UK Mr Glenn Davidson, Artstation, Cardiff, UK Dr. Mike Fedeski, Artstation, Cardiff, UK Dr. Jelle van Gurp, Coordinator Clinical Ethics Radboud University Medical Centre; Assistant professor Ethics of Healthcare, Nijmegen, Netherlands The pandemic has created an […]