The Digital Legacy Conference 2021 ‘PalliCovid & Exploring New Dimensions’

by James Norris,  Digital Legacy Association, MyWishes & Michael Sobell Hospice



The Digital Legacy Conference, Tues 5th October, 2021  (from 4pm British Summer Time until 10PM)


The importance and relevance of our digital lives and possessions is increasing. Digital photos and videos are often saved behind password or finger-print protected devices The monetary value of purchased media, online-only services and digital assets is also continuing to expand. Managing and transferring digital possessions and online services upon death is becoming fragmented and complex. It is important that professionals are able to assist patients and significant others with relevant support and advice. The Digital Legacy Association argues that digital asset planning and digital legacy safeguarding should form a holistic approach to advance care planning

If you have viewed a social media profile of a friend or family member after their death, how did you find the experience? The image below highlights findings from the 2021 Digital Death Report and Survey.


Digital Death Report, 2021


The International Digital Legacy Conference 2021 will take place on the eve of the European Association of Palliative Care World Congress 2021 (EAPC 2021). This year’s Digital Legacy Conference will be streamed live and be featured as part of EAPC 2021. The live stream will be accessible for free with an EAPC ticket. For those who are not attending EAPC 2021, a Digital Legacy Conference ticket can be purchased for £20 when visiting the Digital Legacy Conference website or directly from this ticket link.


Full Programme  Tues 5th October 2021

(all timings below are UK time, so British Summer Time BST . If you are wanting to join from Germany or France, for instance, then add one hour so  + 1  to the timings below:)


4:00pm (BST):  Welcome to the new world, a new world we all inhabit – Dr Ros Taylor MBE, Palliative Physician. Former Clinical Director at Hospice UK, Medical Director at Michael Sobell Hospice and Harlington Hospice. Trustee at Nightingale Hammerson Care Home & James Norris, Digital Legacy Association, MyWishes & Michael Sobell Hospice

4:20pm: Why Nothing We Do Online Will Exist After We Die and That’s Ok. – Dr John Troyer, Bath University

4:40pm: Life, death… Shouldn’t we talk about it with students? Issues arising from the creation of an online platform for the French medical and school staff – Nicolas El Haïk-Wagner & Caroline Tête, French Society for Palliative Care

5:00pm: Netiquette for Dealing with Illness, Death, and Grief: Has COVID-19 impacted on the rules? – Dr Carla Softka, Siena College

5:20pm: The posthumous privacy paradox: Privacy preferences and behaviour regarding digital remains – Tal Morse, Hadassah Academic College & Michael Birnhack Tel Aviv University

5:40pm: “They were part of the family” – a look at grieving for a pet online. – Stephanie Owens, Cochrane

6:00pm: Digital Executor®: Unraveling the New Path for Estate Planning – Sharon Hartung, Captain (Ret’d), PEng, TEP, is the founder of ‘Your Digital Undertaker’

6:20pm: Digital afterlife and the spiritual realm – Maggi Savin-Baden, University of Worcester, UK

6:40pm: Why creating a digital shrine for my Dad helped me with my grief. – Sandy Weatherburn, Social Embers

7:00pm: Designing for death, evolving DeadSocial into MyWishes – Marcos Sebastian, MyWishes Design Lead

7:20pm: Living beyond death; who cares? – Dr Erica Witkamp Professor Care for Family Caregiving, Faculty of Nursing and Research Center Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands. Rob Bruntink, Journalist, Owner of Bureau MORBidee, The Netherlands & Judith Rietjens, Associate professor, Dept. of Public Health, Erasmus University Medical Center, The Netherlands

7:40pm: Designing for Choice at the End of Life: does COVID-19 Shift our Collective Experience of Death Online? – Dr Stacey Pitsillides, Northumbria University

8:00pm: Cryptocurrencies, Cryptoassets, and Inheritance Planning – Pamela Morgan, Empowered Law

8:20pm: Palliative Pandemic and its Digital Divides – Professor Mark Taubert, Cardiff University

8:40pm: Digital Legacy and the idea of life as a work of art – Steve Fuller, University of Warwick

9:00pm: 2040 – Death, bereavement and digital legacies – Maneesh Juneja, Digital Health Futurist (Keynote)

9:40pm: Closing remarks – James Norris, Digital Legacy Association, MyWishes & Michael Sobell Hospice

10:00pm: Close


Ticket information

The Digital Legacy Conference is a not for profit event run annually by the Digital Legacy Association. Previous conferences have taken place at UCL Partners (London), Sienna College (New York), EAPC (Berlin) and St Joseph’s Hospice (London). If you would like the Digital Legacy Conference 2022 to take place at your conference, congress, university, office or place of research please do get in touch 

The Digital Legacy Conference is a not for profit conference organised by the Digital Legacy Association.  It is able to take place each year due to the kind support provided by sponsors, supporters and volunteers. If you or your organisation is interested in sponsoring this year’s conference click here. This year’s venue partner is Michael Sobell Hospice in London, the event partner is the European Association of Palliative Care and MyWishes is assisting with the production.

The Digital Legacy Conference is free to attend for EAPC 2021 ticket holders. Alternatively tickets for the Digital Legacy Conference (and not EAPC) can be purchased for £20 by clicking here



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