You don't need to be signed in to read BMJ Group Blogs, but you can register here to receive updates about other BMJ Group products and services via our Group site.

Richard Smith: what use are memory clinics?

15 Jan, 10 | by julietwalker

Richard SmithThe government’s dementia strategy, which promises a memory clinic on every corner rather than a chicken in every pot, is not working. That’s not surprising as it’s the easiest thing in the world to come up with grand sounding strategies but one of the hardest to get them implemented. As the economist Alan Maynard says, the NHS does 8/10 for bright ideas but 4/10 for implementation—and without the implementation you have nothing but empty promises, which are worse than no promises.

But is a memory clinic on every corner a good idea? I’m doubtful.

My lovely and amusing mother has had no short term memory for about three years now, and sceptical as I am of many medical benefits I thought that we ought to “get into the system.” So we started with the GP. Despite the fact that the man in the corner shop could tell you in about two minutes that she has no short term memory, the GP had to administer a standard questionnaire. Unfortunately, he didn’t have time for the full questionnaire—so asked us to come back after some blood tests.

Every time my mother and I engage with the NHS I have to drive from London to her town—let’s call it Elysium–some 40 miles away. Usually when I visit I go by train, but I need the car to transport her to the various clinics, some of which are 10 miles from Elysium. So the climate suffers.

We have to go the branch clinic of the surgery if we want a blood test in under three weeks. So I drive down, drive her to an obscure corner of Elysium, and she has the blood test. 

Two weeks later I drive back to Elysium and we go to the GP. Surprise, surprise nothing is abnormal in the blood tests. Unfortunately he doesn’t have time to do the full questionnaire, but it’s obvious she’ll need to go to the memory clinic—so he refers her.

But first she needs a CT scan. “Is all this worth it,” asks my mother who’d prefer never to see another doctor or nurse as long as she lives. “Well it might help keep you living on your own for as long as possible,” I answer without much conviction.

More than half a century ago she lugged me screaming to the fracture clinic at King’s College Hospital. Now I’m lugging her. Neither of us liked either visits, but we enjoy the symmetry of the relationship and “we ‘ave a laugh.” There’s lots to laugh at.

So a month later it’s back for the CT scan, which is in another hospital 10 miles from Elysium.
Six months later we have our first visit to the memory clinic in yet another town. We see a charming occupational therapist who takes a very full history and declares this to be a prelude to seeing the psychogeriatrician.

Another six months pass, and we see the psychogeriatrician, who is kind and helpful. He tells us that the CT scan is mostly normal with “a little scarring.” He’d now like some psychological tests. My mother hates the whole experience.

We the have an interlude while my mother has her hip replaced. A striking feature of these encounters is the staff giving my mother elaborate instructions without grasping that she has no short term memory—despite me saying “My mother doesn’t have very good memory.” Maybe I should have been blunter.

After another year we are back on the memory clinic treadmill, and we go back for my mother to have a whole swathe of psychological tests. They take about two hours, and she hates them.

We wait a month or so (to be honest I’m forgetting the sequence, but it’s about three years overall), and then we go back to see the psychogeriatrician. The psychological tests show my mother has very poor short term memory and is not well oriented, but her language skills are good. I knew that. Crucially, she’s just under the NICE cut off for drug treatment, but the psychogeriatrician is willing to prescribe the drugs anyway. My mother and I have had many conversations about whether she should take drugs.

“What’s the point of all these visits? What can they do?” she asks.
“They could prescribe you some drugs that might help.”
“But they won’t improve my memory.”
“No, but they might stop it getting worse.”

She’s not keen on the drugs, and I’m very doubtful that they’ll make much difference, but I’m falling victim to the disease of “needing to do something.”

So we take the drugs—which in itself involves another trip because Elysium Boots doesn’t have enough in stock. We stick notices up on the wall about when to take the drugs. It’s obviously a philosophical problem getting somebody to remember to take drugs for poor memory.

Predictably after about a month it becomes apparent that she’s not taking them—and I see that she never wanted to take them. I’d pushed her into umpteen tests and visits to clinics at considerable cost to the NHS for no benefit at all.

I ring the memory clinic to say thank you but we’re signing off. They are happy to have us a back if and when we need more help—but what will they do?

I can’t help thinking that maybe the government would do better to spend the money it appears not to have for memory clinics on opera or something with tangible benefit. The one overall benefit of all these visits is that my brother is developing a stand up routine around memory clinics, which are intrinsically comic. “You get there, and it’s empty. Everybody has forgotten to come.”

 

By submitting your comment you agree to adhere to these terms and conditions
  • neil arnott

    Folk could do more to postpone cognitive decline such as appreciating caravaggios, waking up to radio 2, drinking coffee and using the wii fit. There are lots of patients without a diagnostic label who are in cognitive decline but everyone is searching everywhere for clinical forgetfulness(maybe GPs dont) so an epidemic of mild dementia with CT confirmed brain shrinkage (and no tertiary syphilis) is certain without even considering an aging population from the baby boom era. With more older people living away from extended families ,and with more single occupant households forecast the issues of coping with dementia at home will be compounded. Psychogeriatricians will tell you that early assessment and diagnosis is important but I agree that a streamlined early diagnosis journey is as common as a turkey receiving an obama reprieve before thanksgiving .Blood test should be done more often by GPs in the one consultation since it takes 1 minute and direct CT scan access ,with radiology report, for GPs would be no less effective than the current arrangements. Everyone with mild dementia seems to get the drugs after ‘discussion’. Is detailed repetitive cognitive testing ever clinically useful? The most effective way to reduce the suffering from forecast epidemic of dementia may be to concentrate on prevention and postponement and then supportive and end off life care in the community (to keep people out of hospital).This is where ideas aren’t easily implemented since it involves oodles of money to save even more. Maybe tesco could start a home dementia support service with some expert advice from an ex bmj editor. Finally we must not to forget continuing support for the quadriceps of the nhs that is general practice which,if exercised, contracts responsively to the twists and turns in the dementia journey and personalises interventions by knowing which patient the disease might have and the patient’s effects on close loved ones.

  • Steven A. Rich

    In the US the situation moves along faster, but with the same outcome, except your insurance or your checking account is depleted by the Positron Emission Tomography/CT scan that gives no information that influences the treatment.

    We developed a new methodology in Rochester NY over the last 13 years. Syndrome-Based Geriatric Evaluation and Management focuses on a geriatric syndrome, has expedited evaluation and can usually initiate treatment in a single visit, and within two months we can decide if the medication is working, and stop it if it is not. We are incredibly cheap and do the same for incontinence, depression, falling, and chronic pain at a fraction of the usual cost of specialist and tests.

    Only recently has the value of this this been recognized in our “Fee-for- Service Feeding Frenzy” health care system, because we do not make money, and saving money is not currently valuable in the US (it will be soon!)

    Primary care geriatrics in non-viable financially in most of the US system, so we support GPs, Internists, Family Physicians and social agencies with their frail elderly.

    If physician’s are appropriately incentivized, they can do great things for the elderly in any system. I have been a great fan of NHS over the years, but I also recognize that the “Top to Down” approach to health care never works well, as we are about to see with our health care reform on this side of the pond.

    Also, the mother desribed by Mr Arnott does not have Alzheimer’s disease if her language skills are preserved that far into the disease. She would likely benefit from a dopamine re-uptake inhibitor like buproprion for subcortical ischemic disease. No CT needed, no psychological tests, no lab tests; just listen to the patient and examine her, and follow up. Simple, cheap ,effective ,evidence-based

    Steven A Rich MD
    Director, Geriatric Consultative Service
    Rochester General Health System
    Rochester NY, USA, 14621
    sarich@pol.net

  • http://None Susan Wells

    Surfing the net in the middle of the night, I found the above blogs. I am fascinated, as,at 70, Ifind myself gradually losing what was once a very good memory.
    My mother lost her memory- not Alzheimers,my father-in-law suffered from that, so I know the difference!
    The future is rather alarming,so any ideas are welcome!

  • Richard Smith

    Dear Susan,

    The person who can help you best is “a good GP.”

    This raises the question of what is a good GP, and I’d say that what’s important here is somebody who will listen hard to your problems and worries, explore with you what matters most to you, and then discuss with you the options of what might be done–which will range from nothing to something elaborate.

    This good GP will be interested in you not just in “getting you through the system,” and he or she will not have a vested interest in any particular form of action–whereas, memory clinics put you through their processes just as surgeons tend to operate, even when not operating may be the best course of action.

    What I must say, however, is that a declining memory is often normal. I’m 57 and have become very conscious in the past couple of years–perhaps because of my mother–how I can’t quickly remember names and words as I could just a few years ago. This morning, for example, I was talking to an engineer about reducing my carbon consumption and I couldn’t remember the phrase “solar panel.” I talked instead about “a light box.”

    Best wishes

    Richard

  • Joseph More

    The author’s opening sentence is, “The government’s dementia strategy,”; dindn’t he mean “The government’s demented strategy,”?We are carried away by the maelstrom of “early detection”, driven by the illusion that early detection invariably results in better chances for cure. All speed ahead, and damn the evidence.

  • http://personal Abdul Jaleel

    Memory clinics or centres are misnomers. One of my [non-medical] friends recently suggested that the correct label would be “memory banks ” where you deposit all rercallable memories, just as you might save your money, in order to retrieve these at a later date providing you can validate these and ,of course subject to security of your personal information.
    Now here is the rub: if I could retain the capacity to verify my memories and the “bank” was not burgled or raided by an inside desaler , then the whole exercise would be pointless.

    Perhapds the most practical way of dealing with the loss of short-term memory is to employ modern technology , just store the events etc when they happen and return subsequently to look up these .
    My only reservation about this strategy is that I might lose skills to recapture the info. and others might exploit this weakness.

    Why not just accept the reality of memory loss with silent diginity ?

You can follow any responses to this entry through the RSS 2.0 feed.
BMJ blogs homepage

BMJ.com

Helping doctors make better decisions. Visit site



Creative Comms logo

Latest from BMJ.com

Latest from BMJ.com

Latest from BMJ.com podcasts

Latest from BMJ.com podcasts

Blogs linking here

Blogs linking here