The proverb, ‘If the mountain won’t come to Muhammad, then Muhammad must go to the mountain’ speaks of seeking an alternative if the wished-for reality is not possible. But what if Muhammad is too ill to go to the mountain? In today’s fast-moving era of extending reality through technology, can a virtual mountain, or other […]
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Quick Response Palliative Care: Are wearable medical identification wristbands with QR code technology acceptable to palliative care patients?
Dr Elin Harding, Palliative Medicine Doctor, Clinical Research Fellow, Velindre Cancer Centre, Cardiff, UK ORCID 0009-0003-7100-7998 Dr Martha Thomas, Foundation Year 1 Doctor, Princess of Wales, Bridgend, UK 0009-0004-5908-8550 Dr Nikki Pease, Palliative Medicine Consultant, Velindre Cancer Centre, Cardiff, UK 0000-0002-8994-749 In the last year of life, palliative patients increasingly access emergency unscheduled care via […]
Harlington Hospice and MyWishes launch Wellbeing Hub on Hospice Care Week 2023, to empower Hillingdon residents’ overall feelings of wellbeing
Harlington Hospice is excited to announce a partnership with MyWishes to launch the Digital Wellbeing Hub, for this year’s Hospice Care Week. This innovative offering provides a unique platform that seeks to empower and improve the overall wellbeing of people living in and around Hillingdon. A video highlighting some of the wellbeing hub’s features can […]
What evidence is needed for better end of life experiences; what questions should research address? By Dr Sabine Best and Jodie Crooks
Some might remember the first time we asked that question in 2014. Marie Curie and many funding partners and stakeholders worked with the James Lind Alliance (JLA) on the Palliative and end of life care Priority Setting Partnership (PeolcPSP) with the express aim to hear from patients, carers and health and social care professionals about […]
Synopsis of a conference that nearly never happened – The 2023 Sapporo Conference for Palliative and Supportive Care in Cancer (SCPSC) in Japan
Toshiro Kusakabe reflects on the highlights of The 2023 Sapporo Conference for Palliative and Supportive Care in Cancer (SCPSC) in Japan that was due to happen in 2020, and was then postponed on three separate occasions The 3rd/4th joint SCPSC The 3rd SCPSC was scheduled for 2020, but due to the COVID-19 pandemic and […]
Sapporo: History of a conference
Toshiro Kusakabe outlines how the Sapporo Conference for Palliative and Supportive Care in Cancer (SCPSC) was conceived. In his first blog, he outlines some of the history that has led to these events History of Higashi Sapporo Hospital and the Progress of the SCPSC Higashi Sapporo Hospital was founded in 1983 in Sapporo, Japan […]
SEECare & a Sea Change?- How NHS Hospitals care for you when you’re dying
Author: Dr Simon Tavabie, Transforming End of Life Care Fellow @UCLH & Palliative Care Doctor (on behalf of the authors of the SEECareUK study) Dr Tavabie summarises the findings from the recently published Seeking Excellence in End-of-Life Care UK (SEECareUK) study It’s a Saturday morning at your local District General Hospital and sadly, […]
BODIES – A Medical Humanities Conference
Author: Dr Ishminder Mangat, Great Western Hospitals NHS Foundation Trust, England Bodies was the first ever medical humanities conference to take place in Bristol: it was held on Monday 26th June 2023 in the grand and imposing neo-Gothic Wills Memorial Building. For this summary article, I have tried to capture an account of […]
Looking through the eyes of the sailor…by Christiaan A. Rhodius
(Edvard Munch “Døden ved roret”, 1893. Photo: Munchmuseet / Svein Andersen) Great to have a breeze. Without it a sailor goes nowhere. I just had to pull my hat down to make sure it wouldn’t blow away. I have secured a good position in the boat, one leg stretched for support and the other bent. […]
New ruling on care of dying in India will force some to live life “of machine-related suffering”
-NEWS- India: Progressive step, but ruling still has important shortcomings & missed opportunities, say specialists The newly revised ruling on advance medical directives and withholding/withdrawing medical support for the dying in India will inevitably force some terminally ill patients to “live a life of machine-related suffering” and deprive them of their autonomy and dignity […]