{"id":2409,"date":"2026-05-28T11:15:04","date_gmt":"2026-05-28T11:15:04","guid":{"rendered":"https:\/\/blogs.bmj.com\/spcare\/?p=2409"},"modified":"2026-05-28T11:15:04","modified_gmt":"2026-05-28T11:15:04","slug":"why-do-we-need-inclusive-leadership-in-palliative-care-today","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/spcare\/2026\/05\/28\/why-do-we-need-inclusive-leadership-in-palliative-care-today\/","title":{"rendered":"Why do we need inclusive leadership in palliative care today?"},"content":{"rendered":"<p><strong><em>Authors<\/em><\/strong><\/p>\n<p><em><strong>Dr Esraa <\/strong><span style=\"font-weight: 400\"><strong>Sulaivany,<\/strong> Consultant Palliative Medicine, Medical Director St. Rocco&#8217;s Hospice, Warrington,\u00a0North Cheshire and Mersey NHS Foundation Trust\u00a0<\/span><\/em><\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-2407\" src=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed-202x300.jpg\" alt=\"\" width=\"134\" height=\"199\" srcset=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed-202x300.jpg 202w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed-689x1024.jpg 689w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed-768x1142.jpg 768w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed-1033x1536.jpg 1033w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed-640x952.jpg 640w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Dr-Esraa-Sulaivany-photo-2025_compressed.jpg 1377w\" sizes=\"auto, (max-width: 134px) 100vw, 134px\" \/><\/a><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Dr Fran Hakkak<\/strong>, Medical Director, Compton Care, Wolverhampton<\/span><\/em><\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-2408\" src=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed-200x300.jpg\" alt=\"\" width=\"152\" height=\"228\" srcset=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed-200x300.jpg 200w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed-683x1024.jpg 683w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed-768x1152.jpg 768w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed-1024x1536.jpg 1024w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed-640x960.jpg 640w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Fran-Hakkak_compressed.jpg 1365w\" sizes=\"auto, (max-width: 152px) 100vw, 152px\" \/><\/a><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Dr Despoina-Elvira Karakitsiou<\/strong>, Locum Consultant Palliative Medicine, Northern Ireland Hospice, Belfast<\/span><\/em><\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Desi-Karakitsiou_compressed.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-2405\" src=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Desi-Karakitsiou_compressed-260x300.jpg\" alt=\"\" width=\"167\" height=\"192\" srcset=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Desi-Karakitsiou_compressed-260x300.jpg 260w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Desi-Karakitsiou_compressed.jpg 355w\" sizes=\"auto, (max-width: 167px) 100vw, 167px\" \/><\/a><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Trudie Roiz de Sa<\/strong>, Equity, Diversity &amp; Inclusion Lay Trustee, Association of Palliative Medicine<\/span><\/em><\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-2406\" src=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed-300x200.jpg\" alt=\"\" width=\"234\" height=\"156\" srcset=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed-300x200.jpg 300w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed-1024x683.jpg 1024w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed-768x512.jpg 768w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed-1536x1024.jpg 1536w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed-640x427.jpg 640w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/2660-23.04.26-BCG-Trudie-Roiz-de-Sa_compressed.jpg 1600w\" sizes=\"auto, (max-width: 234px) 100vw, 234px\" \/><\/a><\/p>\n<p><strong>Introduction: A health system in flux demands inclusive leadership<\/strong><\/p>\n<p><span style=\"font-weight: 400\">Palliative care is changing fast: rising demand, workforce pressures and evolving models mean traditional ways of working are no longer enough. As services adapt, we need leadership that not only understands clinical quality, but also who uses those services and how they reach people from all backgrounds.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Yet our workforce still doesn\u2019t reflect the diversity of the populations we serve. Without inclusion built into leadership, we risk perpetuating inequities in care access, workforce opportunities, and the cultural responsiveness of care.<\/span><\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-2403 alignnone\" src=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed-300x200.jpg 300w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed-1024x682.jpg 1024w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed-768x512.jpg 768w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed-1536x1023.jpg 1536w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed-640x426.jpg 640w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-1_compressed.jpg 1600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p style=\"text-align: left\"><em>Our <span style=\"font-weight: 400\">EDI Committee engaging with members at the Palliative Care Congress in Brighton. Simon Callaghan Event Photography<\/span><\/em><\/p>\n<p><b>Workforce diversity matters &#8211; evidence from palliative care<\/b><\/p>\n<p><b>Underrepresentation in the workforce:<\/b><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\">Studies in palliative medicine indicate that doctors from socioeconomically disadvantaged and ethnic minority communities are significantly less represented across the career ladder, from training to senior roles. This matters because clinicians who reflect the population can bring insight, trust and lived experience into care decisions.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Palliative medicine has one of the highest proportions of women in consultant roles across UK specialties. This is a strength we can build on. But representation isn\u2019t consistent across all groups \u2013 significant gaps remain, particularly around ethnic diversity, overseas-trained doctors, and disability inclusion across the workforce and leadership.\u00a0 (https:\/\/spcare.bmj.com\/content\/12\/1\/49)<\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><b>Inequities in research and involvement:<\/b><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\">A framework developed through the RE-EQUIPP Care Partnership emphasises that palliative care research itself must be diverse and inclusive. It used co-designed resources and shared learning to improve participation of people from diverse backgrounds in patient and public involvement (PPI), recognising that research shaped without inclusive involvement risks perpetuating gaps in care. (https:\/\/eprints.whiterose.ac.uk\/id\/eprint\/210591\/)<\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><b>Gaps in clinical practice:<\/b><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\">A broader review of equity, diversity and inclusion (EDI) in palliative care highlights that addressing disparities must go beyond individual actions &#8211; training, education and inclusive research structures are needed to ensure equity across the continuum of care. (<\/span><a href=\"https:\/\/link.springer.com\/article\/10.1186\/s12904-023-01185-6\"><span style=\"font-weight: 400\">https:\/\/link.springer.com\/article\/10.1186\/s12904-023-01185-6<\/span><\/a><span style=\"font-weight: 400\">)<\/span><\/p>\n<p><b>Inclusion in palliative care cannot focus on workforce alone:<\/b><\/p>\n<p><span style=\"font-weight: 400\">At its core, palliative care is about patients. Our patient population is increasingly diverse, and experiences of illness, dying and decision making around this are deeply shaped by culture, faith, language and identity. Inclusive leaders must foster environments where cultural humility and responsiveness are a core part of clinical care, ensuring that care plans reflect individual values, beliefs and needs of each person receiving our support.<\/span><\/p>\n<p><b>What inclusive leadership looks like in practice<\/b><\/p>\n<p><span style=\"font-weight: 400\">Inclusive leadership in palliative care isn\u2019t about numbers or policies alone. It means:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Listening to diverse voices &#8211; from underrepresented professionals and patients with lived experience\u00a0<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Advocating for equity in access \u2013 addressing known disparities in referral patterns, care outcomes and trust in services amongst minority communities<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Using data to drive change &#8211; asking who is represented in our workforce and whose voices are absent<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Embedding inclusion in decision making &#8211; not as an add-on but as a daily practice<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400\">This is reflected in our 2026-8 Association for Palliative Medicine (APM) strategy, with EDI woven into it as a core aim rather than treated as a separate priority.<\/span><\/p>\n<p><b>APM\u2019s approach: From strategy to action<\/b><\/p>\n<p><span style=\"font-weight: 400\">Rather than positioning EDI as a standalone aim, the APM will now strive to embed it across the whole organisation. We already have an EDI Committee (set up in 2022) that spans all protected characteristics and inclusion priorities, alongside our Race Equity Committee (set up in 2021), focusing on racial equity and workforce representation. Key priorities now include:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Committee leadership: supporting each of our 10 Committees to apply EDI principles in proportionate, practical ways<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Decision tools: introducing a simple EDI reflection tool to guide inclusive decisions<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Feedback loops: using members\u2019 self-reported demographic data to understand and respond to inclusion-related issues<\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400\">Embedding EDI across strategic priorities increases visibility and accountability, while ensuring that initiatives remain feasible for a membership that is largely clinical and operationally stretched.<\/span><\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-2404 alignnone\" src=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed-300x200.jpg 300w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed-1024x682.jpg 1024w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed-768x512.jpg 768w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed-1536x1023.jpg 1536w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed-640x426.jpg 640w, https:\/\/blogs.bmj.com\/spcare\/files\/2026\/05\/Photo-2_compressed.jpg 1600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p><em><span style=\"font-weight: 400\">APM members connecting at the Palliative Care Conference in Brighton. Simon Callaghan Event Photography<\/span><\/em><\/p>\n<p><b>Lessons learned: What we got right &#8211; and what we\u2019d do differently<\/b><\/p>\n<p><span style=\"font-weight: 400\">What\u2019s working:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Creating space for structured conversations about race, identity and workforce representation through the establishment of the REC and ECHOs<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Listening sessions with underrepresented clinicians to surface real experiences<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Embedding EDI language in strategy &#8211; signalling organisational commitment<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400\">What we\u2019re aiming to avoid:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">A one-size-fits-all approach: Different communities face unique barriers; our strategy must be adaptable<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Using shorter-term action plans: Clear near-term goals help maintain momentum.<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Siloed learning: The more we collaborate across under-represented groups, the stronger the evidence base for inclusive practice becomes.<\/span><\/li>\n<\/ul>\n<p><b>Take Home Messages<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Inclusive leadership is essential to quality palliative care &#8211; it improves relevance, trust and access<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Embedding EDI into strategy and everyday decisions builds organisational resilience and responsiveness<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Progress requires measurable actions, not just aspirations<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Inclusion must start with patients \u2013 culturally responsive care is core to compassion and quality of service.<\/span><\/li>\n<\/ul>\n<p><b>References<\/b><\/p>\n<ol>\n<li><span style=\"font-weight: 400\"> Iqbal M, Afuwape S, Caplan G. Lack of racial diversity within the palliative medicine workforce: does it matter? BMJ Supportive &amp; Palliative Care. 2022.<\/span><\/li>\n<li><span style=\"font-weight: 400\">RE-EQUIPP Care Partnership. A framework for more equitable, diverse, and inclusive PPI in palliative care research. 2024.<\/span><\/li>\n<li><span style=\"font-weight: 400\">Hudson P et al. Enhancing equity and diversity in palliative care clinical practice. BMC Palliative Care. 2023.<\/span><\/li>\n<\/ol>\n<p><strong>Declarations of Interest<\/strong><\/p>\n<p><span style=\"font-weight: 400\">Dr Esraa Sulaivany: \u00a0None.<\/span><br \/>\n<span style=\"font-weight: 400\">Dr Fran Hakkak: None<\/span><br \/>\n<span style=\"font-weight: 400\">Dr Despoina-Elvira Karakitsiou: None<\/span><br \/>\n<span style=\"font-weight: 400\">Trudie Roiz de Sa: I am the EDI Lay Trustee of the Association for Palliative Medicine of Great Britain and Ireland.<\/span><!--TrendMD v2.4.8--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Authors Dr Esraa Sulaivany, Consultant Palliative Medicine, Medical Director St. Rocco&#8217;s Hospice, Warrington,\u00a0North Cheshire and Mersey NHS Foundation Trust\u00a0 Dr Fran Hakkak, Medical Director, Compton Care, Wolverhampton Dr Despoina-Elvira Karakitsiou, Locum Consultant Palliative Medicine, Northern Ireland Hospice, Belfast Trudie Roiz de Sa, Equity, Diversity &amp; Inclusion Lay Trustee, Association of Palliative Medicine Introduction: A health [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/spcare\/2026\/05\/28\/why-do-we-need-inclusive-leadership-in-palliative-care-today\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":525,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2409","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/posts\/2409","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/users\/525"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/comments?post=2409"}],"version-history":[{"count":0,"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/posts\/2409\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/media?parent=2409"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/categories?post=2409"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.bmj.com\/spcare\/wp-json\/wp\/v2\/tags?post=2409"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}