{"id":24,"date":"2014-05-06T11:29:55","date_gmt":"2014-05-06T11:29:55","guid":{"rendered":"http:\/\/promotions.bmj.com\/ardsummaries\/?p=24"},"modified":"2014-05-06T11:29:55","modified_gmt":"2014-05-06T11:29:55","slug":"standards-of-care-for-people-with-rheumatoid-arthritis","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/rheumsummaries\/2014\/05\/06\/standards-of-care-for-people-with-rheumatoid-arthritis\/","title":{"rendered":"Standards of care for people with rheumatoid arthritis"},"content":{"rendered":"<p><strong>INTRODUCTION<\/strong><\/p>\n<p>Patients and experts have worked together to produce standards of care for people in Europe who have\u00a0rheumatoid arthritis. They hope that this means everyone with rheumatoid arthritis will get the best possible\u00a0treatment from their doctors, nurses, and healthcare services, no matter where they live.<\/p>\n<p><strong>WHAT DO WE KNOW ALREADY?<\/strong><\/p>\n<p>Most countries have their own guidelines or recommendations about how to treat various diseases and conditions.<br \/>\nIn England, Wales, and Northern Ireland, the National Institute for Health and Care Excellence (NICE)\u00a0set guidelines for rheumatoid arthritis and other conditions. The Scottish Intercollegiate Guidelines Network\u00a0(SIGN) set guidelines in Scotland, and there are also recommendations made by groups of specialist doctors,<br \/>\nsupport groups, and charities.<\/p>\n<p><!--more--><br \/>\nGuidelines set out things such as the tests doctors should use to find out if a person has a particular condition,\u00a0what treatments work best, and who should get which treatments. But spreading the recommendations in\u00a0guidelines can take time. So people in different areas may still ending being treated differently. And, while<br \/>\nguidelines are useful, they often don\u2019t say what kind of support people should get or what people with a particular\u00a0condition should know about their care.\u00a0This report explains how rheumatology experts created a set of recommendations to support people with\u00a0rheumatoid arthritis across Europe.<\/p>\n<p><strong>WHAT DOES THE NEW STUDY SAY?<\/strong><\/p>\n<p>An expert group of patients and doctors reviewed all the guidelines on rheumatoid arthritis from 44 European\u00a0countries. They then agreed on 16 recommendations they considered most important for patients. These \u2018standards\u00a0of care\u2019 set out exactly how people with rheumatoid arthritis can learn more about their condition, ways<br \/>\nthat they can care for themselves, and what to expect from healthcare services and healthcare professionals.<\/p>\n<p>For example, everyone with rheumatoid arthritis should expect:<\/p>\n<ul>\n<li>Relevant information and education about living with their condition and taking care of themselves. People\u00a0should ask for the information in whichever form is easiest for them \u2013 leaflets, recommended websites, or\u00a0educational DVDs, for example.<\/li>\n<li>A treatment plan that explains what the goals of their treatment are, based on what they decided with their\u00a0doctors.<\/li>\n<li>An explanation of the possible benefits and risks of the treatments that they are considering or that their\u00a0doctors suggest.<\/li>\n<li>An assessment and a referral to a specialist if this is needed.<\/li>\n<li>Information about whether complementary or alternative medicines work.<\/li>\n<\/ul>\n<p><strong>HOW RELIABLE ARE THE FINDINGS?<\/strong><\/p>\n<p>To create these standards of care, the expert group reviewed published guidelines on rheumatoid arthritis\u00a0(although, for practical reasons, they could only review guidelines published in English or German) and examined\u00a0the results of good-quality studies.<\/p>\n<p>There were four patients included in the group that developed the standards of care, along with 17 specialist\u00a0doctors and healthcare professionals. Other people with rheumatoid arthritis may find that different things are\u00a0important to them or helpful for getting the most out of their care.<\/p>\n<p><strong>WHAT DOES THIS MEAN FOR ME?<\/strong><\/p>\n<p>If you have rheumatoid arthritis, these standards of care were created to help inform you about what good care\u00a0looks like and what to expect from healthcare professionals. You may find the standards useful for starting a\u00a0discussion about the best ways to manage your condition with your GP, specialist doctor, or nurse. The standards<br \/>\nmay also help you think about the kinds of questions you would like to ask. The full set of standards is\u00a0available at www.eumusc.net.<\/p>\n<p><strong>Disclaimer<\/strong>: This is a summary of a scientific article written by a medical professional (\u201cthe Original Article\u201d). The Summary is written to assist non medically trained readers to understand general points of the Original Article. \u00a0<span style=\"text-decoration: underline\">It should not be relied on in any way whatsoever<\/span>, (which also means the Summary is not medical advice), and is simply supplied to aid a lay understanding of general points of the Original Article. It is supplied \u201cas is\u201d without any warranty. You should note that the Original Article (and Summary) may not be accurate as errors can occur and also may be out of date as medical science is constantly changing. <strong>\u00a0It is very important that readers not rely on the content in the Summary and consult their medical professionals for all aspects of their health care. Do not use this Summary as medical advice even if the Summary is supplied to the reader by a medical professional.<\/strong><br \/>\nPlease view our full <a href=\"http:\/\/www.bmj.com\/company\/legal-information\/\" target=\"_blank\" rel=\"nofollow noopener noreferrer\">Website Terms and Conditions<\/a>.<\/p>\n<p>Date summary prepared:\u00a0May 2014<\/p>\n<p>Summary based on research article published on:\u00a06 August 2013<\/p>\n<p>From:\u00a0Stoffer, M. <em>et al.<\/em> Development of patient-centred standards of care for rheumatoid arthritis in Europe: the eumusc.net project.\u00a0<em>Ann Rheum Dis<\/em> 2014;73:902-905 <a href=\"http:\/\/ard.bmj.com\/content\/73\/5\/902.full\">doi:10.1136\/annrheumdis-2013-203743<\/a><\/p>\n<p>Copyright \u00a9 2015 BMJ Publishing Group Ltd &amp; European League Against Rheumatism. Medical professionals may print copies for their and their patients and students non commercial use. Other individuals may print a single copy for their personal, non commercial use. For other uses please contact our <a href=\"http:\/\/www.bmj.com\/company\/products-services\/rights-and-licensing\/\" target=\"_blank\" rel=\"nofollow noopener noreferrer\">Rights and Licensing<\/a> Team.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>INTRODUCTION Patients and experts have worked together to produce standards of care for people in Europe who have\u00a0rheumatoid arthritis. They hope that this means everyone with rheumatoid arthritis will get the best possible\u00a0treatment from their doctors, nurses, and healthcare services, no matter where they live. WHAT DO WE KNOW ALREADY? Most countries have their own [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/rheumsummaries\/2014\/05\/06\/standards-of-care-for-people-with-rheumatoid-arthritis\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":384,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-24","post","type-post","status-publish","format-standard","hentry","category-rheumatoid-arthritis"],"_links":{"self":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/posts\/24","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/users\/384"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/comments?post=24"}],"version-history":[{"count":0,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/posts\/24\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/media?parent=24"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/categories?post=24"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/tags?post=24"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}