{"id":1093,"date":"2023-12-11T17:22:03","date_gmt":"2023-12-11T17:22:03","guid":{"rendered":"https:\/\/blogs.bmj.com\/rheumsummaries\/?p=1093"},"modified":"2024-01-31T10:38:16","modified_gmt":"2024-01-31T10:38:16","slug":"new-recommendations-for-fatigue-in-rmds","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/rheumsummaries\/2023\/12\/11\/new-recommendations-for-fatigue-in-rmds\/","title":{"rendered":"New: Recommendations for fatigue in RMDs"},"content":{"rendered":"<p><span style=\"font-weight: 400\">This is the lay version of the EULAR recommendations for managing fatigue in people with inflammatory\u00a0 rheumatic and musculoskeletal diseases. The original publication can be downloaded from the EULAR\u00a0 website: www.eular.org.\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/ard.bmj.com\/content\/early\/2023\/11\/22\/ard-2023-224514\"><span style=\"font-weight: 400\">Dures E, Fariso\u011fullar\u0131 B, Santos EJF, et al2023 EULAR recommendations for the management of fatigue in <\/span><span style=\"font-weight: 400\">\u00a0<\/span><span style=\"font-weight: 400\">people with inflammatory rheumatic and musculoskeletal diseases Annals of the Rheumatic Diseases <\/span><span style=\"font-weight: 400\">\u00a0<\/span><span style=\"font-weight: 400\">Published Online First: 22 November 2023. doi: 10.1136\/ard-2023-224514<\/span><span style=\"font-weight: 400\">\u00a0<\/span><\/a><\/p>\n<p><b>Introduction<br \/>\n<\/b><span style=\"font-weight: 400\">EULAR \u2013 the European Alliance of Associations for Rheumatology \u2013 gives advice to health professionals and\u00a0 patients about the best way to treat and manage diseases. In 2023, EULAR produced new recommendations\u00a0 on how to manage fatigue that affects people with an inflammatory rheumatic and musculoskeletal disease\u00a0 (shortened to I-RMD).\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">Doctors, nurses, other health professionals (such as physiotherapists, occupational therapists, and\u00a0 psychologists), and people with personal experience of an I-RMD and fatigue worked together to develop these\u00a0 recommendations.\u00a0\u00a0<\/span><\/p>\n<p><b>What do we already know?<br \/>\n<\/b><span style=\"font-weight: 400\">There are many different types of I-RMD, such as rheumatoid arthritis, psoriatic arthritis, and ankylosing\u00a0 spondylitis \u2013 as well as lupus, gout, and systemic sclerosis. Although there are differences between I-RMD, there are also some common features. These include an autoimmune component, where inflammation causes\u00a0 swelling or pain in the joints and muscles.\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">Fatigue is common in people with an I-RMD. This extreme tiredness is recognised as one of the most\u00a0 challenging symptoms to manage. Unfortunately, the underlying causes are not clear. It is likely that they are\u00a0 not the same for everybody and that they can change overtime. There is no cure for fatigue, but we do have\u00a0 evidence for some approaches that can help. We have examined this evidence in-depth and used it to produce\u00a0 recommendations for how to support people with I-RMD and fatigue.\u00a0<\/span><\/p>\n<p><b>What do the recommendations say?<br \/>\n<\/b><span style=\"font-weight: 400\">In total, there are 4 overarching principles (general points) and 4 recommendations (specific points). The\u00a0 principles say that healthcare professionals should be aware that fatigue is related to biological, psychological, and social factors. Health professionals should monitor patients\u2019 fatigue and offer them management options.\u00a0 . Decisions about which options to take should be shared between patients and health professionals. Finally,\u00a0 fatigue management of should be based on each patient\u2019s needs and preferences. Issues to consider include\u00a0 patients\u2019 disease activity, any other health conditions they have, and individual psychosocial or contextual\u00a0 factors.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">Each recommendation is based on the best current knowledge from studies of scientific evidence or expert\u00a0 opinion. The more stars a recommendation has, the stronger the evidence is. However, recommendations with limited scientific evidence may be important because the experts can have a strong opinion based on\u00a0 experience even when the published evidence may be lacking.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">One star (*) means it is a recommendation with limited scientific evidence.<br \/>\n<\/span><span style=\"font-weight: 400\">Two stars (**) means it is a recommendation with some scientific evidence.<br \/>\n<\/span><span style=\"font-weight: 400\">Three stars (***) means it is a recommendation with quite a lot of scientific evidence.<br \/>\n<\/span><span style=\"font-weight: 400\">Four stars (****) means it is a recommendation supported with a lot of scientific evidence.<\/span><span style=\"font-weight: 400\">\u00a0<\/span><\/p>\n<p><b>Recommendations<\/b><\/p>\n<ul>\n<li><b>Your level of fatigue (severity), the impact it is having, and your coping strategies should be\u00a0 assessed at your appointments.*<br \/>\n<\/b>Your healthcare team should include regular assessment of fatigue in your clinical appointments for\u00a0 your I-RMD. This should include whether you have any fatigue, how severe it is and how much it is\u00a0 affecting your life. Your team should also discuss coping strategies with you to help find something that\u00a0 works for you personally. Help and support to manage fatigue might be provided by various healthcare\u00a0 professionals, including rheumatologists, doctors, nurses, psychologists, nutritionists, physiotherapists,\u00a0 occupational therapists, social workers, or dieticians.<\/li>\n<\/ul>\n<ul>\n<li><b>If you have an I-RMD and fatigue you should be offered support to take part in physical\u00a0 activity.****<br \/>\n<\/b>As part of clinical care, you should be offered access to tailored physical activity programmes\/courses. These need to be matched to your support needs, preferences, resources and abilities. You should also\u00a0 be encouraged to stay physically active in the long-term. Evidence has shown that being physically\u00a0 active or exercising can help to reduce fatigue.<\/li>\n<\/ul>\n<ul>\n<li><b>If you have an I-RMD and fatigue you should be offered psychoeducational interventions.**** <\/b><span style=\"font-weight: 400\"><span style=\"font-weight: 400\">As part of clinical care, you should be offered access to programmes\/courses that provide education\u00a0 and psychological support for managing fatigue. There is evidence that this sort of education can help\u00a0 people to understand and cope better with their fatigue.<\/span><\/span><\/li>\n<li><b>If you have fatigue \u2013 or if it gets worse \u2013 your rheumatology team should check your disease\u00a0 activity status and consider starting or changing immunomodulatory treatment.**** <\/b><span style=\"font-weight: 400\">If you start to experience fatigue or if your fatigue starts to get worse, a health professional should check\u00a0 your disease activity levels. Depending on your disease activity level, this might result in starting or\u00a0 changing immunomodulatory treatment.\u00a0<\/span><\/li>\n<\/ul>\n<p><b>Summary\u00a0<\/b><\/p>\n<p><span style=\"font-weight: 400\">Overall, these recommendations give guidance to health professionals and patients about fatigue management for people with an I-RMD. You should work with your healthcare team to make an informed decision about your fatigue and its treatment.\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">Recommendations with just one or two stars are based mainly on expert opinion and not backed up by studies,\u00a0 but these may be as important as those with three or four stars.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">If you have any questions or concerns about your I-RMD, your fatigue or your medication, you should speak\u00a0 to a health professional involved in your care.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This is the lay version of the EULAR recommendations for managing fatigue in people with inflammatory\u00a0 rheumatic and musculoskeletal diseases. The original publication can be downloaded from the EULAR\u00a0 website: www.eular.org.\u00a0 Dures E, Fariso\u011fullar\u0131 B, Santos EJF, et al2023 EULAR recommendations for the management of fatigue in \u00a0people with inflammatory rheumatic and musculoskeletal diseases Annals [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/rheumsummaries\/2023\/12\/11\/new-recommendations-for-fatigue-in-rmds\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":467,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-1093","post","type-post","status-publish","format-standard","hentry","category-eular-recommendations"],"_links":{"self":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/posts\/1093","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/users\/467"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/comments?post=1093"}],"version-history":[{"count":0,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/posts\/1093\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/media?parent=1093"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/categories?post=1093"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.bmj.com\/rheumsummaries\/wp-json\/wp\/v2\/tags?post=1093"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}