{"id":83,"date":"2013-06-18T09:56:44","date_gmt":"2013-06-18T09:56:44","guid":{"rendered":"https:\/\/blogs.bmj.com\/quality\/?p=83"},"modified":"2013-06-18T09:56:44","modified_gmt":"2013-06-18T09:56:44","slug":"ox-dots-oxford-diabetes-electronic-self-training-sources","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/quality\/2013\/06\/18\/ox-dots-oxford-diabetes-electronic-self-training-sources\/","title":{"rendered":"OX-DOTS Oxford \u2013 Diabetes electrOnic self-Training Sources"},"content":{"rendered":"

Dr Rani Pal is a Consultant Diabetologist from the Horton General Hospital in Banbury, Oxfordshire. \u00a0Dr Pal and colleagues have developed several new initiatives to improve the care of patients with diabetes, including the “Diabetes in Primary Schools Oxfordshire” programme which won the team the “Diabetes Team of the Year” award at the BMJ awards in May 2013. \u00a0<\/strong>Here she reflects on another project and some challenges in taking a new direction towards self-care in diabetes.<\/strong><\/p>\n

OX-DOTS seeks to discover the key to self-service, self-control,\u00a0self-care of diabetes health\u2026..<\/p>\n

\"diabetes-winners\"

Dr Rani Pal and colleagues at the BMJ Awards 2013<\/p><\/div>\n

The Opt-out clause<\/span><\/h4>\n

One\u00a0young person\u00a0said to me:\u00a0\u201cExpectations to be fit, happy and healthy places undue pressure on\u00a0young people, who can then become demoralised and demotivated.\u00a0The question of perfection should not be there, because of added pressure. \u00a0There is already a \u2018Constant pressure\u2019 of not living up to standards,\u00a0personal differences are to be expected. It\u2019s your life and sometimes\u00a0it takes a severe illness to jolt you into it.”<\/p>\n

Young people are living with demands in society with the added problem\u00a0that poorly controlled diabetes adversely affects concentration\u00a0difficulties and alterations in mood or behaviour.<\/p>\n

I gathered that the vast amount of printed literature and information\u00a0on websites\/ media sources is still an opt-out – of not paying\u00a0attention to it? Or perhaps sources are not enticing or attractive\u00a0enough to capture the patients’ interest.<\/p>\n

Why Target Diabetes?<\/h4>\n

Around 3.1million people (7.4% UK population) and 347million worldwide\u00a0have diabetes (T1DM, T2DM). \u00a0 This is predicted to rise to 4.6million (9.5% UK\u00a0population) by 2030; diabetes morbidity requires \u2018a lifelong package
\nof care\u2019 and remains a considerable burden for Health Services. Simple\u00a0lifestyle measures (healthy diet, regular physical activity) can\u00a0potentially prevent\/delay the onset of Type 2 Diabetes, but Type 1\u00a0diabetes is not preventable. \u00a0Diabetes will be the 7th leading cause of death by 2030. Up to 24,000\u00a0people with diabetes are dying in England each year from avoidable\u00a0causes: in those aged 15 to 34 years, compared to those without\u00a0diabetes, a nine-fold increase is seen among Type 1 (1 in 360), and\u00a0six-fold increase amongst T2DM (1 in 520); The 2010 National Diabetes\u00a0Inpatient Audit accounts for 15% of inpatient bed days, where one\u00a0third of patients experienced at least one medication error.<\/p>\n

Why target Children and Young Adults?<\/h4>\n

Of 29,000 UK children with T1DM, around 40% are primary school\u00a0age-group: a rising incidence (4% per year) and doubling for each\u00a0decade is seen, with many under 5 years.\u00a0A significant number of teenagers are developing secondary
\ncomplications of nephropathy and retinopathy before the age of\u00a020years. Minimising these health effects depends on continuously\u00a0accruing knowledge and retaining a positive attitude to self-health\u00a0needs.<\/p>\n

Targeted resources used to uplift health knowledge in all members of society.<\/h4>\n

Diabetes (insulin-dependent) in Children and Young Adults is different\u00a0from other health conditions as it requires 24 hours close attention\u00a0from carers, continuous dynamic interaction and dialogue,\u00a0understanding, discussion and problem solving of specific issues, and\u00a0motivating self- responsibility for life health management.\u00a0To partake in all aspects of a normal life, children depend on\u00a0everyone being informed – at home, during school, social or leisure
\nactivities. Parents, friends and relatives, school staff and public\u00a0all have a role to support them to retain optimum health and glucose\u00a0control, so that their well-being prevents future health complications\u00a0which are linked to diabetes, namely eye and kidney disease.<\/p>\n

Although there is an array of copious electronic-information and many\u00a0national and international websites relaying diabetes health\u00a0information, we want to identify which channels of dialogue are used\u00a0most frequently by young people with diabetes to empower\u00a0self-education and management of their diabetes condition.<\/p>\n

Questions and challenges<\/h4>\n
    \n
  • What is the most effective way to impact on a change of culture and\u00a0attitude for the present generation?<\/li>\n
  • How can we examine self-training methods and a variety of information\u00a0sources and communications?<\/li>\n
  • What are the most likely sources of Electronic information that young\u00a0people with diabetes, their families and friends are most likely to\u00a0utilise?<\/li>\n
  • What other channels of dialogue and interaction can be used to empower\u00a0self-education and management of health condition?<\/li>\n
  • Progressive e-tools – are they the young persons\u2019 choice?<\/li>\n
  • Can they relate to these as they grow and develop, to progress on\u00a0their life-long self-education?<\/li>\n
  • With your experience, are you able take up the chalice of self-care\u00a0or propose how to develop this for young people with diabetes?<\/li>\n<\/ul>\n

    NHS Directive for Self-care<\/h4>\n

    In 2006, the DOH published a white paper, “Our health, our care, our\u00a0say: a new direction for community services” . It outlines a vision\u00a0for healthcare as, \u201cmeeting people\u2019s aspirations for independence and\u00a0greater control over their lives, making services flexible and\u00a0responsive to individual needs\u201d.\u00a0\u201cSelf care is about people taking responsibility for their own health\u00a0and well being\u201d.\u00a0\u201cSelf management is about people making the most of their lives by\u00a0coping with difficulties and making the most of what they have\u201d.<\/p>\n

    OX-DOTS wants to know your views, suggestions, difficult aspirations,\u00a0campaigns and solutions!<\/p>\n","protected":false},"excerpt":{"rendered":"

    Dr Rani Pal is a Consultant Diabetologist from the Horton General Hospital in Banbury, Oxfordshire. \u00a0Dr Pal and colleagues have developed several new initiatives to improve the care of patients with diabetes, including the “Diabetes in Primary Schools Oxfordshire” programme which won the team the “Diabetes Team of the Year” award at the BMJ awards […]<\/p>\n","protected":false},"author":178,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[13,16,17,15,14],"class_list":["post-83","post","type-post","status-publish","format-standard","hentry","category-opinion","tag-diabetes","tag-electronic","tag-innovation","tag-patient-centred","tag-self-care"],"_links":{"self":[{"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/posts\/83","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/users\/178"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/comments?post=83"}],"version-history":[{"count":0,"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/posts\/83\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/media?parent=83"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/categories?post=83"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.bmj.com\/quality\/wp-json\/wp\/v2\/tags?post=83"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}