{"id":3519,"date":"2022-11-08T10:00:06","date_gmt":"2022-11-08T09:00:06","guid":{"rendered":"https:\/\/blogs.bmj.com\/medical-humanities\/?p=3519"},"modified":"2022-11-08T09:30:37","modified_gmt":"2022-11-08T08:30:37","slug":"cindy-weinstein","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/medical-humanities\/2022\/11\/08\/cindy-weinstein\/","title":{"rendered":"Finding the Right Words, a book on Grief, Dementia, and Literature"},"content":{"rendered":"<p><strong>Podcast with Cindy Weinstein<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-3520\" src=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot-215x300.jpg\" alt=\"Cindy Weinstein Photo\" width=\"215\" height=\"300\" srcset=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot-215x300.jpg 215w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot-768x1070.jpg 768w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot-1103x1536.jpg 1103w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot-640x892.jpg 640w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot.jpg 1226w\" sizes=\"auto, (max-width: 215px) 100vw, 215px\" \/>In this episode, we get to speak with Cindy Weinstein, co-author of FINDING THE RIGHT WORDS, a memoir about losing a parent after a ten-year struggle with dementia. Weinstein is the Eli and Edythe Broad Professor of American Literature at the California Institute of Technology, where she has taught and written several academic books since 1989, including Time, Tense, and American Literature: When is Now? (Cambridge, 2018). Most recently, she has published, with Dr. Bruce Miller, Finding the Right Words: A Story of Literature, Grief, and the Brain, a prize-winning dual memoir that focuses on Cindy\u2019s father, Jerry, who was diagnosed with Alzheimer\u2019s in the 1980s. In order to write the book, which combines autobiography, literary criticism, and neurology, Cindy studied neurology at UCSF\u2019s Global Brain Health Institute, attending classes, grand rounds, and differential diagnoses, reading memoirs, and drafting her book with Bruce. Chapters go back and forth between Cindy\u2019s voice and Bruce\u2019s, with Cindy describing her father\u2019s \u201cclinical presentations,\u201d including word-finding difficulties, spatial disorientation, and behavioral changes, which Bruce then discusses from a neurological point of view. The two cultures, as C.P. Snow described them years ago, are bridged, as the humanities and sciences come together and harmonize. Finding the Right Words is told in this way in order to describe the complexities of grief, to disseminate Bruce\u2019s knowledge of neurology, to share Cindy\u2019s expertise in and love of literature, and, most importantly, to honor the deep humanity of a beloved father.<\/p>\n<p>&nbsp;<\/p>\n<p><strong><a href=\"https:\/\/weinsteinandmiller.com\/\">Link to the website for <em>Finding the Right Words<\/em><\/a><\/strong>.<br \/>\n<strong><a href=\"https:\/\/weinsteinandmiller.com\/figures\/\">Link to the images for <em>Finding the Right Words <\/em>on the book\u2019s website<\/a><\/strong>.<\/p>\n<h3><strong>Listen to the podcast below:<\/strong><\/h3>\n<style type=\"text\/css\">\r\n       .errordiv { padding:10px; margin:10px; border: 1px solid #555555;color: #000000;background-color: #f8f8f8; width:500px; }#advanced_iframe {visibility:visible;opacity:1;}#ai-layer-div-advanced_iframe p {height:100%;margin:0;padding:0}<\/style><script type=\"text\/javascript\">  var ai_iframe_width_advanced_iframe = 0;  var ai_iframe_height_advanced_iframe = 0;var aiIsIe8=false;var aiOnloadScrollTop=\"true\";\r\nif (typeof aiReadyCallbacks === 'undefined') {\r\n    var aiReadyCallbacks = [];  \r\n} else if (!(aiReadyCallbacks instanceof Array)) {\r\n    var aiReadyCallbacks = [];\r\n}    function aiShowIframeId(id_iframe) { jQuery(\"#\"+id_iframe).css(\"visibility\", \"visible\");    }    function aiResizeIframeHeight(height) { aiResizeIframeHeight(height,advanced_iframe); }    function aiResizeIframeHeightId(height,width,id) {aiResizeIframeHeightById(id,height);}<\/script><iframe loading=\"lazy\" id=\"advanced_iframe\"  name=\"advanced_iframe\"  src=\"https:\/\/w.soundcloud.com\/player\/?url=https%3A\/\/api.soundcloud.com\/tracks\/1378193743&amp;color=%23ff5500&amp;auto_play=false&amp;hide_related=false&amp;show_comments=true&amp;show_user=true&amp;show_reposts=false&amp;show_teaser=true\"  width=\"560\"  height=\"166\"  frameborder=\"0\"  border=\"0\"  allowtransparency=\"true\"  allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\"  style=\";width:560;height:166;\" ><\/iframe><script type=\"text\/javascript\">var ifrm_advanced_iframe = document.getElementById(\"advanced_iframe\");var hiddenTabsDoneadvanced_iframe = false;\r\nfunction resizeCallbackadvanced_iframe() {}function aiChangeUrl(loc) {}<\/script>\n<p>&nbsp;<\/p>\n<h3><strong>Transcript<\/strong><\/h3>\n<p>BRANDY SCHILLACE: Hello and welcome back to the <em>Medical Humanities Podcast<\/em>. I\u2019m Brandy Schillace, your host and Editor-in-Chief of the <em>Medical Humanities Journal<\/em> for BMJ. Today I\u2019m very excited to be talking to Cindy Weinstein. She, with coauthor Bruce L Miller, wrote a book called <em>Finding the Right Words: A Story of Literature, Grief, and the Brain<\/em>. The story is of an English professor studying neurology in order to understand and come to terms with her father\u2019s death from Alzheimer\u2019s. So, Cindy, welcome. So glad to have you here today.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-3521 alignright\" src=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Book-Cover-202x300.png\" alt=\"Finding the Right Words Book Cover\" width=\"202\" height=\"300\" srcset=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Book-Cover-202x300.png 202w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Book-Cover-768x1141.png 768w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Book-Cover-1034x1536.png 1034w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Book-Cover-640x951.png 640w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Book-Cover.png 1232w\" sizes=\"auto, (max-width: 202px) 100vw, 202px\" \/>CINDY WEINSTEIN: Thank you, Brandy. It\u2019s really nice to be here.<\/p>\n<p>SCHILLACE: Could you tell us a bit about yourself and first of all, a little bit about who you are and where you\u2019re coming from and how you ended up coauthoring this book.<\/p>\n<p>WEINSTEIN: Sure thing. My name is Cindy Weinstein. I\u2019m an English professor at the California Institute of Technology, which is where I\u2019ve had my entire career. And my area of literary criticism is directed toward US literature, primarily the 19th century. And my father was diagnosed with Alzheimer\u2019s in the 1980s, when everything was Alzheimer\u2019s that involved forgetfulness. There weren\u2019t the sorts of distinctions that thankfully are being made today under the larger category of dementia. And I wanted to write a book to, as you said in the introduction, come to terms with the diagnosis and the fact that my father\u2019s first clinical presentation, as it\u2019s called, was word finding. And he couldn\u2019t find words, and this was what I had an extraordinarily difficult time with, because I was becoming an expert in language. I was getting my Ph.D. in literature at Berkeley at the time that my father was losing words. And it was that synchronicity that I needed to work through in some way. Go ahead.<\/p>\n<p>SCHILLACE: Yeah. I can understand that. No, I was just gonna say that words are how we think a lot of the time.<\/p>\n<p>WEINSTEIN: Right.<\/p>\n<p>SCHILLACE: And I don\u2019t think we realize how much. I actually, I had temporal lobe epilepsy seizures when I was in college.<\/p>\n<p>WEINSTEIN: Oh, wow.<\/p>\n<p>SCHILLACE: And I used to get aphasia and dysgraphic disorder. And I remember thinking, I remember how I couldn\u2019t, I didn\u2019t know how to think without words. It was, it\u2019s very, very hard for us to understand how to function without words, because we\u2019ve become a species so dedicated to their use.<\/p>\n<p>WEINSTEIN: That is so true. And one of the ironies\u2014just to kind of fast forward a little bit, and then I wanna get back to writing the book with Bruce Miller at UCSF\u2014but one of the ironies of writing the book is as much as I love language, and <em>Finding the Right Words<\/em> is a kind of love letter to words and novels and an expression of how much I loved my father, language isn\u2019t necessarily all it\u2019s cracked up to be.<\/p>\n<p>SCHILLACE: Mm.<\/p>\n<p>WEINSTEIN: And there are other forms of communication that sort of people now working in the dementia space are thinking about, and that gives me some comfort. I mean, words for me and for most of us, as you say, are really where it\u2019s at, but feeling and touching and music and dogs and animals\u2014<\/p>\n<p>SCHILLACE: I hear a dog. [laughs]<\/p>\n<figure id=\"attachment_3522\" aria-describedby=\"caption-attachment-3522\" style=\"width: 300px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-3522 size-medium\" src=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Group-300x215.jpg\" alt=\"Cindy Weinstein and Bruce Miller\" width=\"300\" height=\"215\" srcset=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Group-300x215.jpg 300w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Group-768x550.jpg 768w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Group-1536x1100.jpg 1536w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Group-2048x1467.jpg 2048w, https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-Group-640x458.jpg 640w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-3522\" class=\"wp-caption-text\">Cindy Weinstein and Bruce Miller. Photo by Elisabeth Fall.<\/figcaption><\/figure>\n<p>WEINSTEIN: I mean, there are all sorts of ways to make\u2014 Yeah, yeah. We just got one actually at the rescue a couple days ago. [laughing] So, we\u2019re in the middle of training him. But in any case, I wanted to write this book. There are a lot of really wonderful books about dementia and more specifically, my father\u2014I learned from Dr. Miller, I\u2019ll call him Bruce\u2014my father actually didn\u2019t have Alzheimer\u2019s exactly. He had early-onset Alzheimer\u2019s, which means 65 or younger, early-onset Alzheimer\u2019s with what\u2019s called the logopenic variant. And that is the word finding issue. Now, of course, Bruce, we didn\u2019t have PETs or MRIs. I tried to get them, but the office in DC didn\u2019t have them anymore. So, Bruce, it\u2019s a speculative diagnosis, but it sure explained a lot.<\/p>\n<p>SCHILLACE: Mmhmm.<\/p>\n<p>WEINSTEIN: And because there are lots of books about Alzheimer\u2019s and dementia more broadly, I wanted to write a memoir that was not just my own story and my father\u2019s story. I honestly didn\u2019t know how resonant the story would be of a Jewish, New Jersey, middle-class girl goes to Berkeley for a PhD. I just didn\u2019t know if that would connect. And what was really important was I work at Caltech, and not everybody thinks about the world through the lens of <em>Moby-Dick<\/em> and <em>The Scarlet Letter<\/em> and the&#8230;.<\/p>\n<p>SCHILLACE: But I do though. [chuckles]<\/p>\n<p>WEINSTEIN: [laughing] But I do! Always, always. Right. Exactly. But like science, you know. So, I was like this intuitive part of me thought geez, I\u2019ve only gotten so far in dealing with my grief through the tools that I have to understand the world, which are the love of a daughter and literature. Maybe science would help. And so, I ended up applying to an interdisciplinary program called The Global Brain Health Institute, which is in the Neurology Department at UCSF, and also at Trinity College there\u2019s a location. And Bruce and I worked on the book together. I learned enough neurology to set the table, as it were, for Bruce to come in and reflect on the clinical presentations that I describe, whether those are word finding, spatial disorientation, behavior, memory. So, it\u2019s a kind of call and response back and forth between me and Bruce. And Bruce\u2019s expertise, not everyone has access to UCSF. A lot of people don\u2019t, whether it\u2019s UCSF or the Penn Memory Center or Mayo Clinic. And it was really vital for me to try and give readers access to the best science out there, and that\u2019s Bruce. So, that\u2019s how the book came to be.<\/p>\n<p>SCHILLACE: That\u2019s really fascinating. I think for me, memory is such\u2014 I\u2019m hyperlexic. I\u2019m autistic and hyperlexic. I have been accused of having a photographic memory. I don\u2019t. There\u2019s not really any such thing in the way people talk about it. But I do have an excellent memory, and therefore there\u2019s probably nothing that frightens me more than the idea that I wouldn\u2019t be able to access those memories.<\/p>\n<p>WEINSTEIN: Right.<\/p>\n<p>SCHILLACE: But then again, I mean, some of the things that you talk about and that I know Bruce Miller talks about is we have a tendency to privilege memory in ways maybe it doesn\u2019t always deserve either.<\/p>\n<p>WEINSTEIN: Right.<\/p>\n<p>SCHILLACE: We are not necessarily just our memories.<\/p>\n<p>WEINSTEIN: Right. That is so true. You raise many interesting points here. I\u2019m thinking about Ann Basting\u2019s work, Forget Memory. And she is a, I think a MacArthur fellow, and she\u2019s done this practice where she goes into senior centers, and they put on plays. And it doesn\u2019t matter if one thing follows from another. [chuckles] It just doesn\u2019t matter. It\u2019s about the process, and it\u2019s about the present tense. But like you, I am sort of deeply committed to my memory. And I should say, just in terms of the book, I had thought initially when I started that the book would begin with memory \u2018cause my understanding was that Alzheimer\u2019s was only about memory. But that\u2019s not true. It\u2019s got many more components, and many more brain networks get assaulted by Alzheimer\u2019s. And so, what I thought was gonna be the first chapter, memory, ended up being the last chapter. Part of that was because that was the hardest chapter for Bruce to write. And also, it turns out that one of the things I discovered in the course of writing the book was that I hadn\u2019t forgotten memories of my father. And the memories I\u2019m talking about are memories of my healthy father.<\/p>\n<p>SCHILLACE: Mmhmm.<\/p>\n<p>WEINSTEIN: But I had kind of stored them away, really, really far away, because it hurt too much to remember him when he was healthy.<\/p>\n<p>SCHILLACE: Mmhmm.<\/p>\n<p>WEINSTEIN: And so, the process of writing the book, strangely, allowed me to remember all of the happy things \u2018cause I had like 25 years with my healthy father. And so, the last chapter is a kind of\u2014this is very grandiose, but I think you\u2019ll appreciate it\u2014a kind of catalog of memories of my dad. Like, I was thinking Whitman. I love Whitman. And just sort of stream of consciousness and getting back to the happy memories was, I think, really important. And one of the other things I discovered was this disease has a very strange mirroring effect. So, one with Alzheimer\u2019s losses memory. I lost some memory of my dad. Some of the spatial disorientation that my father experienced, I was in Berkeley, but completely disoriented. And so, this very strange mirroring effect started happening, which when I\u2019ve spoken with other people with family members with dementia, say that that is not all that unusual, especially being unable to remember the good stuff because the diagnosis is so difficult.<\/p>\n<p>SCHILLACE: Well, so, I\u2019m a [laughs] I hesitate to say expert, though I\u2019m sometimes called that. I study death and grief a great deal. My first book was about grief cross-culturally and historically, and I ended up talking a lot about grief during COVID-19 for the <em>New York Times<\/em> and other places, NPR, people wanting to say, \u201cHow do we deal with this now? What\u2019s happening now? Has grief changed?\u201d And one of the things that occurs to me is that when you are dealing with an illness like Alzheimer\u2019s, what you have is anticipatory grief for losses you haven\u2019t experienced yet. And so, we\u2019re really bad with that.<\/p>\n<p>WEINSTEIN: Yeah.<\/p>\n<p>SCHILLACE: We don\u2019t know how to deal with anticipatory grief. It\u2019s not something we talk about. Even the kind of stages of grieving are all for after the fact. We don\u2019t talk about the in-between.<\/p>\n<p>WEINSTEIN: Right. That is so true.<\/p>\n<p>SCHILLACE: And now you have people suffering from long COVID, or my best friend, Arabella Proffer, she\u2019s an artist. She has terminal cancer. Dealing with knowing a thing is gonna happen, but it hasn\u2019t happened yet, we all behave as though we\u2019re walking around without the grief, when in fact we\u2019re experiencing it.<\/p>\n<p>WEINSTEIN: Right.<\/p>\n<p>SCHILLACE: We experience it on both sides. And I\u2019m reading, next year for The Peculiar Book Club, we\u2019re also doing Lauren Aguirre\u2019s <em>The Memory Thief<\/em>.<\/p>\n<p>WEINSTEIN: Oh, great.<\/p>\n<p>SCHILLACE: Yeah. Which is about damage to the hippocampus and a peculiar kind of amnesia. But the interesting thing, as you were talking, I thought Alzheimer\u2019s is a memory thief, not necessarily for the Alzheimer\u2019s patient.<\/p>\n<p>WEINSTEIN: Right. Right. Right. You raise so many good points here. I tried to be rational about my grief, which was [laughs]&#8230;.<\/p>\n<p>SCHILLACE: Ah. [laughs]<\/p>\n<p>WEINSTEIN: I try and tell myself it was the best I could do. I was 25. But when I say that, I mean, like, okay, my dad in the days when you had to load film in a camera, he loved to take pictures. Okay. Am I gonna lose it when he can\u2019t do that?<\/p>\n<p>SCHILLACE: Mm.<\/p>\n<p>WEINSTEIN: What am I gonna do when he can\u2019t do this other thing that I think? And so, I tried to sort of hide in my intellect and the compartmentalization. Again, it\u2019s how I got through my Ph.D. It was the best I could do. But what ended up happening, and I say this in the book, is I kind of gave myself an anesthetic that took a very, very long time to wear off.<\/p>\n<p>SCHILLACE: Mm. Mmhmm, mmhmm.<\/p>\n<p>WEINSTEIN: And I think what you\u2019re describing, the anticipatory grief, I just couldn\u2019t do it. And the duration. And I think COVID-19 is probably a really good analogy. It\u2019s the duration of, maybe it\u2019s all grief. I don\u2019t know. But my dad, the death just took forever.<\/p>\n<p>SCHILLACE: Mmhmm.<\/p>\n<p>WEINSTEIN: And so, I remember at a certain point, I thought, okay, our life together is going to the nursing home. Like, whenever I go to Florida to visit him, that\u2019s what we\u2019re gonna do. And then when my brother called to tell me that Dad was dying after over a decade, it was like I was hearing it for the first time \u2018cause I forgot that he was dying.<\/p>\n<p>SCHILLACE: Mmhmm! Mmhmm.<\/p>\n<p>WEINSTEIN: It was the strangest thing, Brandy. It was so weird. And so\u2014<\/p>\n<p>SCHILLACE: I have heard stories like this. I mean, one thing I will say, and I\u2019m not necessarily saying it to you, though I\u2019m also saying it to you, but to our listeners, you cannot do grief wrong. There\u2019s no right way, you know?<\/p>\n<p>WEINSTEIN: Yeah.<\/p>\n<p>SCHILLACE: So, it\u2019s always about approaching it the way you can approach it in the moment at which it\u2019s happening. And so, one of the things that you said earlier, which I think is really valuable and is a part of what you and Bruce do in the book, is talking about the power of the present, the power of making something together, even if we can\u2019t make it stay. There\u2019s a, I don\u2019t know how familiar you are with <em>Sesame Street<\/em>, but when I was a child, very, very young child, again, I\u2019m hyperlexic. I\u2019m autistic. I have a really clingy memory. But there was a little cartoon that they did where a girl liked to draw pictures, but she didn\u2019t know where to put them to keep them safe. And in the end, she decides to just let them go away because it doesn\u2019t matter. She made them.<\/p>\n<p>WEINSTEIN: Wow.<\/p>\n<p>SCHILLACE: And I remember I was about four years old, and I was just completely like, wow! You know, it was mind blowing. And I still recall that because I think the act of being there in those moments in making them is more important than the recording of them. And I think we\u2019ve tended to forget that in our digital age where we record everything.<\/p>\n<p>WEINSTEIN: Right. Right. I think one of the complexities can be when one is far away. And so, that was my situation. My mother was the primary caregiver. I knew that there was no way on earth that either one of them would\u2019ve wanted me to give up what I wanted to do, and so I didn\u2019t. And sort of living with that decision has been a challenge. And what\u2019s been helpful is to think about moving, moving the feelings of guilt over to ones of regret, which is a little gentler as well as what you\u2019re saying, like there\u2019s no right way to do it.<\/p>\n<p>SCHILLACE: No, no, there isn\u2019t. And in fact, while dying is something we all do, death is for the living. Death and dealing with it, that\u2019s something the living do.<\/p>\n<p>WEINSTEIN: Yeah. Right.<\/p>\n<p>SCHILLACE: And in a way, as your father\u2019s memories began to fail, you took on more and more of that same burden. So, do you understand what I mean?<\/p>\n<p>WEINSTEIN: Yeah. I do.<\/p>\n<p>SCHILLACE: It\u2019s like you were taking on aspects of that before you lost him.<\/p>\n<p>WEINSTEIN: Right.<\/p>\n<p>SCHILLACE: And to me, that is both the power, the grief, the tragedy, and the blessing of extensive, slow dying, I guess you might call it. It\u2019s awful and wonderful.<\/p>\n<p>WEINSTEIN: Yeah, that\u2019s so true. In fact, it makes me think in my first book based on my dissertation, the epigraph was, \u201cTo my mother and father, whose memory is safe in mine.\u201d<\/p>\n<p>SCHILLACE: Mmhmm.<\/p>\n<p>WEINSTEIN: So, that really captures what you\u2019re describing, I think. So, the good news is the readers seem to be responding to the book. I think for some people it\u2019s a little too hard to read, especially my sections.<\/p>\n<p>SCHILLACE: Mm.<\/p>\n<p>WEINSTEIN: Bruce\u2019s are just amazing in terms of explaining the science in a way that general readers, i.e., yours truly, can understand. And what I also like about his contribution is that he uses my father\u2019s situation as a kind of departure point, but then expands to talk about other kinds of dementia. His area of expertise is frontotemporal dementia, which is very behavioral in presentation. But there\u2019s also ALS. There\u2019s [Creutzfeldt-Jakob]. There\u2019s all sorts of dementias. And Bruce explains many of them, as I said, using my father\u2019s illness as a departure point.<\/p>\n<p>SCHILLACE: I think just to, you know, here we are. We\u2019re at the <em>Medical Humanities Journal<\/em>, and I do medical humanities more broadly. I\u2019m also a writer. I write both non-fiction and fiction. And my degree of expertise was in 18th-century literature and then later in medical history. So, I have a very sort of intersectional kind of look at these things. And you say something which is absolutely true. We do have an easier time reading the science. We\u2019re sort of like, \u201cOkay, STEM, STEM, STEM, safe. Safe.\u201d<\/p>\n<p>WEINSTEIN: Right, yeah.<\/p>\n<p>SCHILLACE: But to be honest, it\u2019s because the humanities, the word \u201chuman\u201d being in there, very important, the humanities speak to our soul. They do.<\/p>\n<p>WEINSTEIN: Right.<\/p>\n<p>SCHILLACE: They cut us because that\u2019s why I, you know, I very rarely cry during a science documentary, but I can weep openly at television and movies and things like that.<\/p>\n<p>WEINSTEIN: That\u2019s so interesting you say that because one of the things I write about, I explain why I\u2019m writing this book about my father with someone else who never knew my father except through my memories. And I write that when I\u2019m talking about Edgar Allan Poe, I\u2019m not crying, but when I\u2019m writing this other thing, I am. Although, I should say that <em>Moby-Dick<\/em> plays a really important role throughout <em>Finding the Right Words<\/em>, because I spend a lot of time talking about identifying with various characters and rage and things like that, so.<\/p>\n<p>SCHILLACE: <em>Moby-Dick<\/em> is actually my favorite book.<\/p>\n<p>WEINSTEIN: Yay!!!<\/p>\n<p>SCHILLACE: Frequently when people ask me if I was on a desert island, what book would I bring? And I\u2019m like, \u201cWell, this one has a lot about whales,\u201d [laughs] but it\u2019s a really wonderful book. Every student I ever, I used to be in academe. I\u2019m not now. I\u2019m freelance, and I\u2019m a public intellectual. But when I was, I\u2019d teach <em>Moby-Dick<\/em>, and the students always hated it [laughs]<\/p>\n<p>WEINSTEIN: Oh, really? Oh, that\u2019s\u2014<\/p>\n<p>SCHILLACE: But mostly because they thought it was a book about a whale. And I had to always explain it\u2019s not. [laughs]<\/p>\n<p>WEINSTEIN: Yeah. I\u2019m actually teaching it right now, and the students, they\u2019re Caltech students. So, oftentimes they\u2019re going against the grain to begin with.<\/p>\n<p>SCHILLACE: Mm. Right! [laughs]<\/p>\n<p>WEINSTEIN: But many, many of them are just giddy with reading it. It\u2019s so interesting.<\/p>\n<p>SCHILLACE: I love it.<\/p>\n<p>WEINSTEIN: Yeah, yeah.<\/p>\n<p>SCHILLACE: There\u2019s a whole the whole passage about the castaway chapter. Sorry, I know we\u2019re getting off topic, but the castaway chapter.<\/p>\n<p>WEINSTEIN: Yeah.<\/p>\n<p>SCHILLACE: Just all of you listeners need to go find online the castaway chapter of <em>Moby-Dick<\/em> and read about these subterranean coral insects, who from the firmament of waters lifted colossal orbs. You need that. You need that sentence. [laughs]<\/p>\n<p>WEINSTEIN: Oh! Beautiful. I love it! That\u2019s great. That\u2019s great.<\/p>\n<p>SCHILLACE: End of book is great. And so, we\u2019re wrapping up now. But I have to say, I could talk to you for ages about this material. I think both memory, Alzheimer\u2019s, grief, these are areas where the medical humanities really shine because it\u2019s a confluence of medicine, science, the humanities, history, social justice, access, health care. So, I\u2019m really pleased. And I\u2019ll just give the book\u2019s title again for anyone who might have missed it earlier. It is called <em>Finding the Right Words<\/em>. It\u2019s called <em>Finding the Right Words<\/em>. Cindy and Bruce both coming together to talk about it from the humanities and from science, and I know all of you will really, really enjoy it. Cindy, is there anything you\u2019d like to leave us with today?<\/p>\n<p>WEINSTEIN: No, just many thanks and just loving the quoting from <em>Moby-Dick<\/em>.<\/p>\n<p>SCHILLACE: [laughs]<\/p>\n<p>WEINSTEIN: And I could talk to you for a long time as well, but this has just really been an honor. Thank you so much, Brandy.<\/p>\n<p>SCHILLACE: Thank you. And for all of you listeners, as I say at the end of every show, thank you for being part of the conversation.<\/p>\n<p>&nbsp;<!--TrendMD v2.4.8--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Podcast with Cindy Weinstein In this episode, we get to speak with Cindy Weinstein, co-author of FINDING THE RIGHT WORDS, a memoir about losing a parent after a ten-year struggle with dementia. Weinstein is the Eli and Edythe Broad Professor of American Literature at the California Institute of Technology, where she has taught and written [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/medical-humanities\/2022\/11\/08\/cindy-weinstein\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":345,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[15029],"tags":[15058],"class_list":["post-3519","post","type-post","status-publish","format-standard","hentry","category-podcasts","tag-podcasts"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Finding the Right Words, a book on Grief, Dementia, and Literature - Medical Humanities<\/title>\n<meta name=\"description\" content=\"EIC Brandy Schillace speaks to Cindy Weinstein about her book (with Dr. Bruce Miller), Finding the Right Words, on grief, dementia, and family.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/medical-humanities\/?p=3519\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Finding the Right Words, a book on Grief, Dementia, and Literature - Medical Humanities\" \/>\n<meta property=\"og:description\" content=\"EIC Brandy Schillace speaks to Cindy Weinstein about her book (with Dr. Bruce Miller), Finding the Right Words, on grief, dementia, and family.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/blogs.bmj.com\/medical-humanities\/?p=3519\" \/>\n<meta property=\"og:site_name\" content=\"Medical Humanities\" \/>\n<meta property=\"article:published_time\" content=\"2022-11-08T09:00:06+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/blogs.bmj.com\/medical-humanities\/files\/2022\/11\/Weinstein-Cindy-Finding-the-Right-Words-headshot-215x300.jpg\" \/>\n<meta name=\"author\" content=\"Chris Pak\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Chris Pak\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"17 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519\"},\"author\":{\"name\":\"Chris Pak\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/#\\\/schema\\\/person\\\/0e11c1a9a0f1f9f2aa898a719652c44c\"},\"headline\":\"Finding the Right Words, a book on Grief, Dementia, and Literature\",\"datePublished\":\"2022-11-08T09:00:06+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519\"},\"wordCount\":3931,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/files\\\/2022\\\/11\\\/Weinstein-Cindy-Finding-the-Right-Words-headshot-215x300.jpg\",\"keywords\":[\"podcasts\"],\"articleSection\":[\"Podcasts\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/medical-humanities\\\/?p=3519\",\"name\":\"Finding the Right Words, a book on Grief, Dementia, and Literature - 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