{"id":3214,"date":"2017-09-26T03:56:53","date_gmt":"2017-09-26T02:56:53","guid":{"rendered":"https:\/\/blogs.bmj.com\/medical-ethics\/?p=3214"},"modified":"2017-10-30T13:57:26","modified_gmt":"2017-10-30T12:57:26","slug":"special-issue-call-for-papers-medical-ethics-and-treatment-decisions-following-charlie-gard","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/medical-ethics\/2017\/09\/26\/special-issue-call-for-papers-medical-ethics-and-treatment-decisions-following-charlie-gard\/","title":{"rendered":"Special Issue Call for Papers: Medical Ethics and Treatment Decisions Following Charlie Gard"},"content":{"rendered":"<p>The court case between Charlie Gard\u2019s parents and his Great Ormond Street Hospital medical team attracted international media attention, public protest, and comments from the Pope and US President Trump. Charlie was born with<span class=\"s2\">\u00a0a rare genetic disease, for which there is currently no cure.\u00a0<\/span><span class=\"s1\">Charlie\u2019s parents found and crowdfunded for experimental treatment in the US. But his Great Ormond Street doctors argued\u00a0that his condition had\u00a0reached a point where such treatment was futile and not in Charlie\u2019s best interests. The case was concluded in July during its second High\u00a0Court\u00a0appearance, and Charlie died on July 28, 2017 following withdrawal of treatment.<\/span><\/p>\n<p><span class=\"s1\">At the heart of the disagreement were differing judgements not about medicine, but about medical ethics. The treating UK Doctors, and the US Doctor, Prof Hirano, both agreed that Charlie\u00a0<\/span><span class=\"s1\">was unlikely to benefit from\u00a0Hirano\u2019s treatment. But they differed on whether the uncertain treatment would be in Charlie\u2019s best interests, and whether Charlie\u2019s parents\u2019 wishes should be respected.\u00a0<\/span><\/p>\n<p>What chance of life is worth taking? How much suffering should be imposed on the patient for that chance? How should we act when there is uncertainty about medical facts such as chances of success or the level of suffering? Should the expected level of ongoing disability if the treatment is successful\u00a0play a part in such decisions? How much weight should be given to the wishes of parents? What is the appropriate normative threshold for overruling parents\u2019 wishes.\u00a0<span class=\"s3\">Then there are questions about the process itself. How should disputes about treatment be resolved? Is\u00a0there a better way to make such decisions? Some further questions raised are listed in &#8216;<a href=\"http:\/\/jme.bmj.com\/content\/early\/2017\/08\/28\/medethics-2017-104492\">Hard Lessons: Learning from the Charlie Gard Case<\/a>&#8216;.<\/span><\/p>\n<p><span class=\"s3\">Submissions\u00a0engaging with ethical questions raised by the Charlie Gard case (including, but not limited to those listed above) and their implications for future disputes are invited for\u00a0publication in this special issue. Submitted papers should be up to 3500 words and should be submitted before the deadline of 20th December. Please select the Special Issue \u201cMedical Ethics Following Charlie Gard\u201d\u00a0when you make the submission.<\/span><!--TrendMD v2.4.8--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The court case between Charlie Gard\u2019s parents and his Great Ormond Street Hospital medical team attracted international media attention, public protest, and comments from the Pope and US President Trump. Charlie was born with\u00a0a rare genetic disease, for which there is currently no cure.\u00a0Charlie\u2019s parents found and crowdfunded for experimental treatment in the US. But [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/medical-ethics\/2017\/09\/26\/special-issue-call-for-papers-medical-ethics-and-treatment-decisions-following-charlie-gard\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[443],"tags":[],"class_list":["post-3214","post","type-post","status-publish","format-standard","hentry","category-jme"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Special Issue Call for Papers: Medical Ethics and Treatment Decisions Following Charlie Gard - Journal of Medical Ethics blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/medical-ethics\/2017\/09\/26\/special-issue-call-for-papers-medical-ethics-and-treatment-decisions-following-charlie-gard\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Special Issue Call for Papers: Medical Ethics and Treatment Decisions Following Charlie Gard - Journal of Medical Ethics blog\" \/>\n<meta property=\"og:description\" content=\"The court case between Charlie Gard\u2019s parents and his Great Ormond Street Hospital medical team attracted international media attention, public protest, and comments from the Pope and US President Trump. 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