{"id":1634,"date":"2021-05-19T14:15:04","date_gmt":"2021-05-19T14:15:04","guid":{"rendered":"https:\/\/blogs.bmj.com\/jmg\/?p=1634"},"modified":"2026-02-23T22:55:26","modified_gmt":"2026-02-23T22:55:26","slug":"development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/","title":{"rendered":"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande)"},"content":{"rendered":"

Cancer patients with a genetic mutation for hereditary cancer are largely responsible for sharing genetic risk information with relatives and encouraging them to have predictive genetic testing. Genetic risk communication within families is incomplete and limited to close relatives. To address this gap, we developed FamilyCONNECT, a provider-mediated, patient-navigated online tool to facilitate family outreach and communication about hereditary cancer risk. Using surveys of Lynch syndrome patients and genetics professionals, and usability testing, we found FamilyCONNECT\u2019s content and features were well-received among patients and providers. FamilyCONNECT may be a useful tool for family outreach and communication about hereditary cancer risk. (https:\/\/jmg.bmj.com\/content\/early\/2021\/05\/18\/jmedgenet-2020-107615<\/a> )<\/p>\n","protected":false},"excerpt":{"rendered":"

Cancer patients with a genetic mutation for hereditary cancer are largely responsible for sharing genetic risk information with relatives and encouraging them to have predictive genetic testing. Genetic risk communication within families is incomplete and limited to close relatives. To address this gap, we developed FamilyCONNECT, a provider-mediated, patient-navigated online tool to facilitate family outreach […]<\/p>\n

Read More…<\/a><\/p>\n","protected":false},"author":123,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1634","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\nDevelopment and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande) - JMG Contact blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande) - JMG Contact blog\" \/>\n<meta property=\"og:description\" content=\"Cancer patients with a genetic mutation for hereditary cancer are largely responsible for sharing genetic risk information with relatives and encouraging them to have predictive genetic testing. Genetic risk communication within families is incomplete and limited to close relatives. To address this gap, we developed FamilyCONNECT, a provider-mediated, patient-navigated online tool to facilitate family outreach [...]Read More...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/\" \/>\n<meta property=\"og:site_name\" content=\"JMG Contact blog\" \/>\n<meta property=\"article:published_time\" content=\"2021-05-19T14:15:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-23T22:55:26+00:00\" \/>\n<meta name=\"author\" content=\"hqqu\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@HuiQiQu\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"hqqu\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/\"},\"author\":{\"name\":\"hqqu\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#\\\/schema\\\/person\\\/be0250f8d5b52412c3e7c222dabd591b\"},\"headline\":\"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande)\",\"datePublished\":\"2021-05-19T14:15:04+00:00\",\"dateModified\":\"2026-02-23T22:55:26+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/\"},\"wordCount\":136,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#organization\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/\",\"name\":\"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande) - JMG Contact blog\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#website\"},\"datePublished\":\"2021-05-19T14:15:04+00:00\",\"dateModified\":\"2026-02-23T22:55:26+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/2021\\\/05\\\/19\\\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande)\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#website\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/\",\"name\":\"JMG Contact blog\",\"description\":\"JMG Contact blog\",\"publisher\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#organization\",\"name\":\"JMG Contact blog\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/files\\\/2017\\\/10\\\/blog-logo-jmg.png\",\"contentUrl\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/files\\\/2017\\\/10\\\/blog-logo-jmg.png\",\"width\":300,\"height\":34,\"caption\":\"JMG Contact blog\"},\"image\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#\\\/schema\\\/logo\\\/image\\\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/#\\\/schema\\\/person\\\/be0250f8d5b52412c3e7c222dabd591b\",\"name\":\"hqqu\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/920bc4e81500cde88def4bfd7775029cb154e422c5460b9cf80d5c47137d6f35?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/920bc4e81500cde88def4bfd7775029cb154e422c5460b9cf80d5c47137d6f35?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/920bc4e81500cde88def4bfd7775029cb154e422c5460b9cf80d5c47137d6f35?s=96&d=mm&r=g\",\"caption\":\"hqqu\"},\"description\":\"Huiqi Qu has a background as a physician trained in internal medicine and a PhD in Experimental Medicine (Endocrinology). His research applies human genetics and multi-omics to complex and pediatric diseases, including GWAS, polygenic risk scores (PRS), single-cell transcriptomics, and integrative genomics to support precision medicine and clinical translation.\",\"sameAs\":[\"https:\\\/\\\/x.com\\\/HuiQiQu\"],\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/jmg\\\/author\\\/hqiqu\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande) - JMG Contact blog","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/","og_locale":"en_US","og_type":"article","og_title":"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande) - JMG Contact blog","og_description":"Cancer patients with a genetic mutation for hereditary cancer are largely responsible for sharing genetic risk information with relatives and encouraging them to have predictive genetic testing. Genetic risk communication within families is incomplete and limited to close relatives. To address this gap, we developed FamilyCONNECT, a provider-mediated, patient-navigated online tool to facilitate family outreach [...]Read More...","og_url":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/","og_site_name":"JMG Contact blog","article_published_time":"2021-05-19T14:15:04+00:00","article_modified_time":"2026-02-23T22:55:26+00:00","author":"hqqu","twitter_card":"summary_large_image","twitter_creator":"@HuiQiQu","twitter_misc":{"Written by":"hqqu","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/#article","isPartOf":{"@id":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/"},"author":{"name":"hqqu","@id":"https:\/\/blogs.bmj.com\/jmg\/#\/schema\/person\/be0250f8d5b52412c3e7c222dabd591b"},"headline":"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande)","datePublished":"2021-05-19T14:15:04+00:00","dateModified":"2026-02-23T22:55:26+00:00","mainEntityOfPage":{"@id":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/"},"wordCount":136,"commentCount":0,"publisher":{"@id":"https:\/\/blogs.bmj.com\/jmg\/#organization"},"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/","url":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/","name":"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande) - JMG Contact blog","isPartOf":{"@id":"https:\/\/blogs.bmj.com\/jmg\/#website"},"datePublished":"2021-05-19T14:15:04+00:00","dateModified":"2026-02-23T22:55:26+00:00","breadcrumb":{"@id":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/blogs.bmj.com\/jmg\/2021\/05\/19\/development-and-evaluation-of-an-online-patient-driven-family-outreach-intervention-to-facilitate-sharing-of-genetic-risk-information-in-families-with-lynch-syndrome\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/blogs.bmj.com\/jmg\/"},{"@type":"ListItem","position":2,"name":"Development and evaluation of an online, patient-driven, family outreach intervention to facilitate sharing of genetic risk information in families with Lynch syndrome (Contributed by Dr. Mala Pande)"}]},{"@type":"WebSite","@id":"https:\/\/blogs.bmj.com\/jmg\/#website","url":"https:\/\/blogs.bmj.com\/jmg\/","name":"JMG Contact blog","description":"JMG Contact blog","publisher":{"@id":"https:\/\/blogs.bmj.com\/jmg\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/blogs.bmj.com\/jmg\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/blogs.bmj.com\/jmg\/#organization","name":"JMG Contact blog","url":"https:\/\/blogs.bmj.com\/jmg\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/blogs.bmj.com\/jmg\/#\/schema\/logo\/image\/","url":"https:\/\/blogs.bmj.com\/jmg\/files\/2017\/10\/blog-logo-jmg.png","contentUrl":"https:\/\/blogs.bmj.com\/jmg\/files\/2017\/10\/blog-logo-jmg.png","width":300,"height":34,"caption":"JMG Contact blog"},"image":{"@id":"https:\/\/blogs.bmj.com\/jmg\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/blogs.bmj.com\/jmg\/#\/schema\/person\/be0250f8d5b52412c3e7c222dabd591b","name":"hqqu","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/920bc4e81500cde88def4bfd7775029cb154e422c5460b9cf80d5c47137d6f35?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/920bc4e81500cde88def4bfd7775029cb154e422c5460b9cf80d5c47137d6f35?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/920bc4e81500cde88def4bfd7775029cb154e422c5460b9cf80d5c47137d6f35?s=96&d=mm&r=g","caption":"hqqu"},"description":"Huiqi Qu has a background as a physician trained in internal medicine and a PhD in Experimental Medicine (Endocrinology). His research applies human genetics and multi-omics to complex and pediatric diseases, including GWAS, polygenic risk scores (PRS), single-cell transcriptomics, and integrative genomics to support precision medicine and clinical translation.","sameAs":["https:\/\/x.com\/HuiQiQu"],"url":"https:\/\/blogs.bmj.com\/jmg\/author\/hqiqu\/"}]}},"_links":{"self":[{"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/posts\/1634","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/users\/123"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/comments?post=1634"}],"version-history":[{"count":0,"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/posts\/1634\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/media?parent=1634"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/categories?post=1634"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.bmj.com\/jmg\/wp-json\/wp\/v2\/tags?post=1634"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}