{"id":648,"date":"2015-04-12T21:13:29","date_gmt":"2015-04-12T21:13:29","guid":{"rendered":"https:\/\/blogs.bmj.com\/ebn\/?p=648"},"modified":"2015-04-15T16:09:21","modified_gmt":"2015-04-15T16:09:21","slug":"learning-disability-nurse-education-the-impact-on-patent-care","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/ebn\/2015\/04\/12\/learning-disability-nurse-education-the-impact-on-patent-care\/","title":{"rendered":"Learning disability nurse education: the impact on patent care"},"content":{"rendered":"<p>By Niall Dew, Head of Practice Education for the Department of Health Sciences, University of Huddersfield will be leading this week\u2019s ENB twitter chat on <strong>Wednesday the 15th of April between 8-9pm UK time<\/strong> focusing on \u2018the impact of learning disability nurse education on patent care.\u2019 Participating in the twitter chat requires a Twitter account; if you do not already have one you can create an account at <a href=\"http:\/\/www.twitter.com\/\">www.twitter.com<\/a>. Once you have an account contributing is straightforward &#8211; follow the discussion by searching links to <a href=\"http:\/\/twitter.com\/#ebnjc\">#ebnjc<\/a> or <a href=\"http:\/\/twitter.com\/EBNursingBMJ\">@EBNursingBMJ<\/a>, or better still, create a tweet (tweets are text messages limited to 140 characters) to <a href=\"http:\/\/twitter.com\/EBNursingBMJ\">@EBNursingBMJ<\/a> and add <a href=\"http:\/\/twitter.com\/#ebnjc\">#ebnjc<\/a> (the EBN chat hash tag) at the end of your tweet, this allows everyone taking part to view your tweets.<\/p>\n<p>I feel the need to start by saying that although some of my comments might be perceived as negative, I wholeheartedly believe that learning disability nurse education is not only essential but has a positive impact on the lives of people with a learning disability. Perhaps, as a learning disability nurse, you might expect me to say that but\u00a0I have seen the impact of lack of understanding from individuals, organisations, and countries where people with learning disabilities are\u00a0&#8216;at best&#8217; ignored and at worst mistreated, even die because of ignorance about their specific needs. \u00a0Having read with interest the recent report by the Learning and Intellectual Disability Nursing Academic Network\u00a0(LIDNAN) and the UK Council of Deans of Health, these documents unfortunately just\u00a0re-affirm\u00a0an \u2018old story\u2019 and more importantly highlight that despite the interventions of professionals, private, voluntary and charitable organisations we still live in a\u00a0society that, to all intents and purposes, still fails to acknowledge the status of people with a learning disability. I noted yet another Department of Health consultation has begun on improving the rights of people with learning disabilities this time with those with autism and mental health conditions. \u00a0Despite reports and consultations, my over thirty plus years varied and diverse experiences, since commencing as a student nurse at Lennox Castle Hospital in Scotland, the consistent themes and questions remain the same: have experienced are:<\/p>\n<p>What is a learning disability?<\/p>\n<p>What skills do you need to look after someone with a learning disability?<\/p>\n<p>Who is best placed to look after the needs of people with a learning disability?<\/p>\n<p>What should a learning disability nurse do?<\/p>\n<p>People I talk to,\u00a0both socially and as part of my work, still struggle\u00a0to define\u00a0what a learning disability is and often\u00a0get\u00a0it confused with mental health, educational underachievement, special educational needs and low IQ. Without regurgitating the many to text book definitions I often have to refer to a commonly understood group of people who may have a range of learning\u00a0disabilities, people with\u00a0 Down Syndrome; this doesn\u2019t sit easily with me.\u00a0People who do know about learning disability often have some personal experience either through contact with a family member or\u00a0someone with a learning disability. Even with this knowledge I am still surprised to meet people who, for example have a relative with autism, tell me that their child or sibling with autism has a learning disability\u00a0because this is clearly the only diagnosis they have been given.<\/p>\n<p>I have to take some responsibility here and it certainly makes me question the impact that I have\u00a0had as a lecturer who teaches learning disability students and maintain that everything I have done since beginning my training, 30 years ago,\u00a0is ultimately to improve the lives of people with learning disabilities. So why,\u00a0despite the best efforts of dedicated nurses who specialise in the care of people with learning disability, is their quality of life still lagging behind the rest of\u00a0similar populations?<\/p>\n<p>\u00a0Does this actually matter?<\/p>\n<p>Yes I think it does. Learning disability is a complex set of factors that impact on a person\u2019s social, emotional, physical, psychological and spiritual\u00a0well being. Simplifying the\u00a0needs of people with learning disability is not constructive\u00a0and indeed report after report has shown that misunderstanding learning disabilities causes deaths.\u00a0<\/p>\n<p>During the twitter chat I thought it might be useful to try to explore some of the reasons why learning\u00a0disability as a subject remains something that remains misunderstood, underrepresented or at worse omitted from nurse education. Specifically I hope the debate can <strong>consider<\/strong> <strong>the following questions<\/strong>:\u00a0<\/p>\n<p>Why does nursing sometimes fail to adequately care for people with learning disabilities in their care?\u00a0<\/p>\n<p>Why is learning disabilities still misunderstood\u00a0in\u00a0contrast to the understanding of mental health,\u00a0Alzheimer&#8217;s, autism, heart disease and cancer\u2026\u2026?<\/p>\n<p><strong>Links<\/strong><\/p>\n<p>LIDNAN and Council of Deans Report <a href=\"https:\/\/staffmail.hud.ac.uk\/owa\/redir.aspx?SURL=blZFhnCNxwBX79KmnyIiigsRtNylvUEp4cvJM7C1_o4w1x7oN0DSCGgAdAB0AHAAOgAvAC8AdwB3AHcALgBjAG8AdQBuAGMAaQBsAG8AZgBkAGUAYQBuAHMALgBvAHIAZwAuAHUAawAvAHcAcAAtAGMAbwBuAHQAZQBuAHQALwB1AHAAbABvAGEAZABzAC8AMgAwADEANQAvADAAMQAvAEwARAAtAE4AdQByAHMAaQBuAGcALQByAGUAcABvAHIAdAAtAEoAYQBuAC0AMQA1AC0ARgBpAG4AYQBsAC4AcABkAGYA&amp;URL=http%3a%2f%2fwww.councilofdeans.org.uk%2fwp-content%2fuploads%2f2015%2f01%2fLD-Nursing-report-Jan-15-Final.pdf\">http:\/\/www.councilofdeans.org.uk\/wp-content\/uploads\/2015\/01\/LD-Nursing-report-Jan-15-Final.pdf<\/a><\/p>\n<p>DH Consultation of People with Learning Disabilities\u00a0<a href=\"https:\/\/staffmail.hud.ac.uk\/owa\/redir.aspx?SURL=fb6Z1u9Hd-B656jSkL4kZvIlxXRwgdn5EY1TjGss6Jow1x7oN0DSCGgAdAB0AHAAcwA6AC8ALwB3AHcAdwAuAGcAbwB2AC4AdQBrAC8AZwBvAHYAZQByAG4AbQBlAG4AdAAvAHUAcABsAG8AYQBkAHMALwBzAHkAcwB0AGUAbQAvAHUAcABsAG8AYQBkAHMALwBhAHQAdABhAGMAaABtAGUAbgB0AF8AZABhAHQAYQAvAGYAaQBsAGUALwA0ADAAOQA4ADEANgAvAEQAbwBjAHUAbQBlAG4AdAAuAHAAZABmAA..&amp;URL=https%3a%2f%2fwww.gov.uk%2fgovernment%2fuploads%2fsystem%2fuploads%2fattachment_data%2ffile%2f409816%2fDocument.pdf\">https:\/\/www.gov.uk\/government\/uploads\/system\/uploads\/attachment_data\/file\/409816\/Document.pdf<\/a><\/p>\n<p>Death by\u00a0indifference <a href=\"https:\/\/staffmail.hud.ac.uk\/owa\/redir.aspx?SURL=I9WhtYKMvSPWPQQq8btZ22FQmFd-W3HoG4EihbLBJ4sw1x7oN0DSCGgAdAB0AHAAcwA6AC8ALwB3AHcAdwAuAG0AZQBuAGMAYQBwAC4AbwByAGcALgB1AGsALwBzAGkAdABlAHMALwBkAGUAZgBhAHUAbAB0AC8AZgBpAGwAZQBzAC8AZABvAGMAdQBtAGUAbgB0AHMALwBEAGUAYQB0AGgAJQAyADAAYgB5ACUAMgAwAEkAbgBkAGkAZgBmAGUAcgBlAG4AYwBlACUAMgAwAC0AJQAyADAANwA0ACUAMgAwAEQAZQBhAHQAaABzACUAMgAwAGEAbgBkACUAMgAwAGMAbwB1AG4AdABpAG4AZwAuAHAAZABmAA..&amp;URL=https%3a%2f%2fwww.mencap.org.uk%2fsites%2fdefault%2ffiles%2fdocuments%2fDeath%2520by%2520Indifference%2520-%252074%2520Deaths%2520and%2520counting.pdf\">https:\/\/www.mencap.org.uk\/sites\/default\/files\/documents\/Death%20by%20Indifference%20-%2074%20Deaths%20and%20counting.pdf<\/a><\/p>\n<p>&nbsp;<!--TrendMD v2.4.8--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>By Niall Dew, Head of Practice Education for the Department of Health Sciences, University of Huddersfield will be leading this week\u2019s ENB twitter chat on Wednesday the 15th of April between 8-9pm UK time focusing on \u2018the impact of learning disability nurse education on patent care.\u2019 Participating in the twitter chat requires a Twitter account; [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/ebn\/2015\/04\/12\/learning-disability-nurse-education-the-impact-on-patent-care\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":177,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3606,3644],"tags":[3614,3613],"class_list":["post-648","post","type-post","status-publish","format-standard","hentry","category-ebn-journal-chat-ebnjc","category-learning-disability","tag-ebnursingbmj","tag-ebnjc"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - 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