{"id":1079,"date":"2017-01-02T02:00:44","date_gmt":"2017-01-02T02:00:44","guid":{"rendered":"https:\/\/blogs.bmj.com\/ebn\/?p=1079"},"modified":"2017-05-29T14:39:35","modified_gmt":"2017-05-29T14:39:35","slug":"loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/ebn\/2017\/01\/02\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\/","title":{"rendered":"\u2018Losing the child&#8217;s voice&#8217; and &#8216;the captive mother\u2019- an inevitable legacy of family-centred care?"},"content":{"rendered":"<p>This week\u2019s EBN Twitter Chat on Wednesday 4<sup>th<\/sup> January between 8-9 pm (UK time) in conjunction with @WeCYPnurses will focus on child &amp; family c<img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-1082\" src=\"https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Unknown-3.jpeg\" alt=\"unknown-3\" width=\"126\" height=\"124\" \/><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-1081\" src=\"https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Unknown.jpeg\" alt=\"unknown\" width=\"140\" height=\"125\" \/>entred\u00a0care.<\/p>\n<p>The chat wll be lead by Professor Linda Shields (@lshields50), Charles Stuart University, Australia; Professor Philip Darbyshire (@PDarbyshire), global healthcare consultant; Sarah Neil (@SarahNeill7) University of Northampton, UK; and Dr Joanna Smith<br \/>\n<img loading=\"lazy\" decoding=\"async\" class=\"wp-image-825 alignright\" src=\"https:\/\/blogs.bmj.com\/ebn\/files\/2015\/11\/IMG_0206.jpg\" alt=\"IMG_0206\" width=\"101\" height=\"134\" srcset=\"https:\/\/blogs.bmj.com\/ebn\/files\/2015\/11\/IMG_0206.jpg 240w, https:\/\/blogs.bmj.com\/ebn\/files\/2015\/11\/IMG_0206-225x300.jpg 225w\" sizes=\"auto, (max-width: 101px) 100vw, 101px\" \/>(@josmith175) theUniversity of Leeds, UK.<img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1084 alignright\" src=\"https:\/\/blogs.bmj.com\/ebn\/files\/2017\/01\/Unknown-2.jpeg\" alt=\"unknown-2\" width=\"110\" height=\"135\" \/><\/p>\n<p>Participating in the Twitter chat requires a Twitter account; if you do not have one you can create an account at <a href=\"http:\/\/www.twitter.com\/\">www.twitter.com<\/a>. Once you have an account, contributing is straightforward. You can follow the discussion by searching links to <a href=\"http:\/\/twitter.com\/#ebnjc\">#ebnjc<\/a>, or contribute by creating and sending a tweet (tweets are text messages limited to 140 characters) to @EBNursingBMJ adding <a href=\"http:\/\/twitter.com\/#ebnjc\">#ebnjc<\/a> (the EBN Twitter chat hash tag) to your tweet, this allows everyone taking part to view your tweets.<\/p>\n<p>Professor Linda Shield\u2019s recent publication (Shields Linda (2016) (Family-centred care: the \u2018captive mother\u2019 revisited, Journal of the Royal Society of Medicine; 109; 4: 137-140 (<a href=\"http:\/\/jrs.sagepub.com\/content\/109\/4\/137.full.pdf+html\">http:\/\/jrs.sagepub.com\/content\/109\/4\/137.full.pdf+html<\/a>) revisited Roy Meadow\u2019s acclaimed article \u2018The captive mother\u2019 (Arch Dis Child 1969; 44: 362\u2013367), where he eloquently described the \u201ccaptive mother\u201d who was forced to accompany her school aged child to hospital when in reality they would spend little time together. Family-centered care has evolved since that time is espoused as the dominant philosophy underpinning care in children\u2019s hospitals around the world. We postulate that that although family-centered care is embedded within most health services policies for children, it is largely untested. Evidence suggests problems with the implementation of family-centred care, with some parents feeling resentful that they have to undertake some of their child\u2019s care. We postulate that Meadow may have been right &amp; that expecting a mother (or other carer) should stay with a hospitalized school aged child, we are not operating within the ethos of family-centred care, potentially compromising the care given.<\/p>\n<p><a href=\"https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Screen-Shot-2016-12-10-at-16.56.52.png\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1083 alignleft\" src=\"https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Screen-Shot-2016-12-10-at-16.56.52.png\" alt=\"screen-shot-2016-12-10-at-16-56-52\" width=\"534\" height=\"195\" srcset=\"https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Screen-Shot-2016-12-10-at-16.56.52.png 1114w, https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Screen-Shot-2016-12-10-at-16.56.52-300x109.png 300w, https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Screen-Shot-2016-12-10-at-16.56.52-768x280.png 768w, https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Screen-Shot-2016-12-10-at-16.56.52-1024x373.png 1024w\" sizes=\"auto, (max-width: 534px) 100vw, 534px\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>The article is already generating debate: with suggestions that concepts such as the \u2018captive patient&#8217; and \u2018family-centred care&#8217; are no longer relevant in today\u2019s world of personalised care and offering care delivery choices (<a href=\"http:\/\/jrs.sagepub.com\/content\/109\/11\/408.1.full\">http:\/\/jrs.sagepub.com\/content\/109\/11\/408.1.full<\/a>). The child must be treated as an individual, with rights &amp; choices having a voice in their cared.<\/p>\n<p>This Twitter chat provides a chance for nurses to discuss their experiences of working with children &amp; families, &amp; identify some of the common challenges of embedding child &amp; family-centred care into practice such as:<\/p>\n<ol>\n<li>Is family-centred care relevant within contemporary healthcare contexts?<\/li>\n<li>Does family-centred care marginalise the voice of the child?<\/li>\n<li>Given that evidence of its effectiveness is not available, is it ethical to continue pushing for family-centred care?<\/li>\n<\/ol>\n<p><!--TrendMD v2.4.8--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This week\u2019s EBN Twitter Chat on Wednesday 4th January between 8-9 pm (UK time) in conjunction with @WeCYPnurses will focus on child &amp; family centred\u00a0care. The chat wll be lead by Professor Linda Shields (@lshields50), Charles Stuart University, Australia; Professor Philip Darbyshire (@PDarbyshire), global healthcare consultant; Sarah Neil (@SarahNeill7) University of Northampton, UK; and Dr [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/ebn\/2017\/01\/02\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":177,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3606],"tags":[3614,3613,2362],"class_list":["post-1079","post","type-post","status-publish","format-standard","hentry","category-ebn-journal-chat-ebnjc","tag-ebnursingbmj","tag-ebnjc","tag-child-health"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u2018Losing the child&#039;s voice&#039; and &#039;the captive mother\u2019- an inevitable legacy of family-centred care? - Evidence-Based Nursing blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/ebn\/2017\/01\/02\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u2018Losing the child&#039;s voice&#039; and &#039;the captive mother\u2019- an inevitable legacy of family-centred care? - Evidence-Based Nursing blog\" \/>\n<meta property=\"og:description\" content=\"This week\u2019s EBN Twitter Chat on Wednesday 4th January between 8-9 pm (UK time) in conjunction with @WeCYPnurses will focus on child &amp; family centred\u00a0care. The chat wll be lead by Professor Linda Shields (@lshields50), Charles Stuart University, Australia; Professor Philip Darbyshire (@PDarbyshire), global healthcare consultant; Sarah Neil (@SarahNeill7) University of Northampton, UK; and Dr [...]Read More...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/blogs.bmj.com\/ebn\/2017\/01\/02\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\/\" \/>\n<meta property=\"og:site_name\" content=\"Evidence-Based Nursing blog\" \/>\n<meta property=\"article:published_time\" content=\"2017-01-02T02:00:44+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2017-05-29T14:39:35+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/blogs.bmj.com\/ebn\/files\/2016\/12\/Unknown-3.jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/\"},\"author\":{\"name\":\"\",\"@id\":\"\"},\"headline\":\"\u2018Losing the child&#8217;s voice&#8217; and &#8216;the captive mother\u2019- an inevitable legacy of family-centred care?\",\"datePublished\":\"2017-01-02T02:00:44+00:00\",\"dateModified\":\"2017-05-29T14:39:35+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/\"},\"wordCount\":464,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/files\\\/2016\\\/12\\\/Unknown-3.jpeg\",\"keywords\":[\"@EBNursingBMJ\",\"#ebnjc\",\"Child Health\"],\"articleSection\":[\"EBN Twitter Chat #ebnjc\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/ebn\\\/2017\\\/01\\\/02\\\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\\\/\",\"name\":\"\u2018Losing the child's voice' and 'the captive mother\u2019- an inevitable legacy of family-centred care? 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