{"id":48449,"date":"2020-08-28T14:06:58","date_gmt":"2020-08-28T13:06:58","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=48449"},"modified":"2020-09-07T10:47:13","modified_gmt":"2020-09-07T09:47:13","slug":"they-also-serve-who-only-stand-and-wait-ethical-and-spiritual-response-to-the-covid-19-pandemic","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2020\/08\/28\/they-also-serve-who-only-stand-and-wait-ethical-and-spiritual-response-to-the-covid-19-pandemic\/","title":{"rendered":"They also serve who only stand and wait: Ethical and spiritual response to the covid-19 pandemic"},"content":{"rendered":"<p><span style=\"font-weight: 400\">John Milton\u2019s sonnet \u201cOn his blindness,\u201d expresses the sense of powerlessness, frustration, and even guilt that many feel in responding to situations beyond their control, where their ability for active participation to act from the common good is limited. [1] We applaud and respect the considerable efforts and sacrifices made by those who provide public services in the face of covid-19 especially those frontline workers in health and social care roles.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">There have been heartfelt expressions of support and solidarity e.g. volunteering initiatives such as transporting patients, delivering drugs and equipment, telephone support, community responses or simple acts of kindness. [2] In this situation where so many are trying to help what part might ethical and spiritual services play?<\/span><\/p>\n<p><span style=\"font-weight: 400\">As well as physical, social, and economic effects, pandemics and our responses to them, provide ethical challenges. The latter pose risks of moral distress, either with individuals knowing the right course of action, but constrained by lack of resources or with conflict over what course of action is right. [3] If the negative effects of exposure to morally distressing situations is prolonged and cumulative as during a pandemic, moral injury may result, and has been correlated with compassion fatigue and burnout. [4]<\/span><\/p>\n<p><span style=\"font-weight: 400\">The causes of moral distress are numerous, but a major factor on the healthcare response to pandemics relates to the changing ethical imperatives that providing care for large numbers of sick people brings. In most healthcare systems, professional duty is defined by the principle of making the care of individual patients the primary concern. [5] In pandemics, there are tensions between this individualised approach based on clinical need and duties to the wider population in terms of minimising harms and maximising benefits. Deciding on what care is provided shifts from consideration of an individual\u2019s needs, to whether s\/he is likely to especially benefit from the intervention. This tension creates moral dilemmas when resources (staff, beds, equipment) are limited, yet urgent and frequent existential decisions have to be made, with the usual uncertainty over outcomes. These decisions are challenging, but nonetheless necessary, with some professionals needing to act out-with their usual areas of expertise.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Consequently, a number of professional bodies have provided ethical frameworks for <\/span><span style=\"font-weight: 400\">policy making and decision-making<\/span><span style=\"font-weight: 400\">, some specific to covid-19<\/span><span style=\"font-weight: 400\">. [6,7] As helpful as these may be at the meta policy-making level, they do not usually indicate what practical support ethics and spiritual care may provide. A traditional view on ethics support is that it has the role of a chorus in a Greek tragedy <\/span><span style=\"font-weight: 400\">by offering advice history and support for the protagonist: <\/span><span style=\"font-weight: 400\">&#8220;Its virtue is its presence and its sympathy and its clear meditation on his or her predicament in a social and historical context.\u201d [8] It may also function as a moral memory to be recalled in future events. This important reflective, but largely reactive, role has been superseded and the practical input from ethics and spiritual services in alleviating moral distress and preventing moral injury are increasingly recognised.\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">The need for a later return to a healthcare profession not broken by the experience of covid-19 has been underappreciated as yet.<\/span><\/p>\n<p><span style=\"font-weight: 400\">In terms of local more individualised responses to the covid-19 pandemic, ethics support services can:<\/span><\/p>\n<ul>\n<li>Assist development and facilitation of frameworks for ethical decision-making<\/li>\n<li>Provide retrospective (\u201chave I done the right thing?\u201d) and prospective\/\u201dhot\u201d (\u201cam I doing\/about to do the right thing?\u201d) case analysis, discussion commentary, advice.<\/li>\n<li>Exhibit moral empathy (Greek chorus function)<\/li>\n<li>Protect patients from discrimination, overt or subconscious, and help ensure hard decisions are consistent with the best moral standards and compatible with the law<\/li>\n<li>Develop and test techniques to alleviate moral distress and help initiatives to prevent moral injury e.g. input to facilitated discussion on ethical practice, participation in Schwartz rounds.<\/li>\n<li>Develop\/assist programmes to build and strengthen moral resilience and spiritual values.<\/li>\n<li>Provide reassurance that tough decisions are necessary, occasioned by events and neither they nor their consequences are necessarily and wholly the fault of those charged with making them<\/li>\n<\/ul>\n<p><span style=\"font-weight: 400\">Since religion and spirituality offer, for many, the foundation of moral and ethical decision-making, spiritual support should be provided for all who would like it. This includes ensuring its practical provision for patients, their families and professionals within the constraints imposed by covid-19 measures. The role of faith and spiritual care for staff, particularly those struggling with decisions made and their results, is imperative and should be actively offered by multi-faith\/non-faith Chaplaincy\/Spiritual Care teams.<\/span><\/p>\n<p><span style=\"font-weight: 400\">While those providing ethical and spiritual support may not be numbered among the \u201cThousands at his bidding speed and post o\u2019er Land and Ocean without rest,\u201d their role is attracting wider recognition as France\u2019s establishment of regional multidisciplinary ethics support indicates. [1,9] Surely, they fulfil Milton\u2019s ultimate message of hope for humanity in that \u201cThey also serve who only stand and wait.\u201d<\/span><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Vic Larcher<\/strong>, retired paediatrician, Paediatric Bioethics Centre, <\/span><span style=\"font-weight: 400\">Great Ormond Street Hospital for Children NHS Trust<\/span><\/em><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Jim Linthicum<\/strong>, deputy director &amp; lead chaplain, Paediatric Bioethics Centre, <\/span><span style=\"font-weight: 400\">Great Ormond Street Hospital for Children NHS Trust<\/span><\/em><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Joe Brierley,<\/strong> director and intensivist, Paediatric Bioethics Centre, <\/span><span style=\"font-weight: 400\">Great Ormond Street Hospital for Children NHS Trust<\/span><\/em><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Competing interests<\/strong>: None declared<\/span><\/em><\/p>\n<p><b>References:<\/b><\/p>\n<p><span style=\"font-weight: 400\">1.<\/span> <a href=\"https:\/\/www.poetryfoundation.org\/poets\/john-milton\"><span style=\"font-weight: 400\">John Milton<\/span><\/a><span style=\"font-weight: 400\">. Sonnet 19: When I consider how my light is spent. Available at:<\/span><a href=\"https:\/\/www.poetryfoundation.org\/poems\/44750\/sonnet-19-when-i-consider-how-my-light-is-spent\"><span style=\"font-weight: 400\">https:\/\/www.poetryfoundation.org\/poems\/44750\/sonnet-19-when-i-consider-how-my-light-is-spent<\/span><\/a><span style=\"font-weight: 400\">.\u00a0 (accessed 09\/04\/20)<\/span><\/p>\n<p><span style=\"font-weight: 400\">2. NHSE Volunteers website Available at: <\/span><a style=\"background-color: #ffffff;font-size: 1rem\" href=\"https:\/\/www.england.nhs.uk\/participation\/get-involved\/volunteering\/nhs-volunteer-responders\/\">https:\/\/www.england.nhs.uk\/participation\/get-involved\/volunteering\/nhs-volunteer-responders\/<\/a><span style=\"font-weight: 400\"> (accessed 08\/04\/20)<\/span><\/p>\n<p><span style=\"font-size: 1rem\">3.Morley G What is \u201cmoral distress\u201d in nursing? How, can and should we respond to it? J Clin Nurs. 2018 Oct; 27(19-20): 3443\u20133445. <\/span><\/p>\n<p><span style=\"font-size: 1rem\">4. Rushton C &amp; Carse A. (2016). Towards a new narrative of moral distress: Realizing the potential of resilience. Journal of Clinical Ethics, 27(3), 214\u2013218.<\/span><\/p>\n<p><span style=\"font-weight: 400\">5. GMC Good Medical Practice. Available at <\/span><a style=\"background-color: #ffffff;font-size: 1rem\" href=\"https:\/\/www.gmc-uk.org\/ethical-guidance\/ethical-guidance-for-doctors\/good-medical-practice\/duties-of-a-doctor\">https:\/\/www.gmc-uk.org\/ethical-guidance\/ethical-guidance-for-doctors\/good-medical-practice\/duties-of-a-doctor<\/a><span style=\"font-weight: 400\">. (accessed 09\/04\/20)<\/span><\/p>\n<p><span style=\"font-size: 1rem\">6. Department of Health and Social Care U. Guidance. Responding to COVID-19: the ethical framework for adult social care. 2020.<\/span><\/p>\n<p>7. BMA Covid-19 Ethics. Available <a style=\"background-color: #ffffff;font-size: 1rem\" href=\"https:\/\/www.bma.org.uk\/advice-and-support\/covid-19\/ethics\/covid-19-ethical-issues\">https:\/\/www.bma.org.uk\/advice-and-support\/covid-19\/ethics\/covid-19-ethical-issues<\/a><span style=\"font-weight: 400\"> (Accessed 09\/04\/20)<\/span><\/p>\n<p><span style=\"font-weight: 400\">8. King N. The ethics committee as Greek chorus. HEC Forum 1996; 8, 6: 346-5<\/span><\/p>\n<p><span style=\"font-weight: 400\">9. Covid-19: Can France\u2019s ethical support units help doctors make challenging decisions?<\/span> <span style=\"font-weight: 400\">Available at: The BMJ<\/span> <a style=\"background-color: #ffffff;font-size: 1rem\" href=\"https:\/\/www.bmj.com\/content\/369\/bmj.m1291\">https:\/\/www.bmj.com\/content\/369\/bmj.m1291<\/a><span style=\"font-weight: 400\"> (accessed 09\/04\/20)<\/span><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>John Milton\u2019s sonnet \u201cOn his blindness,\u201d expresses the sense of powerlessness, frustration, and even guilt that many feel in responding to situations beyond their control, where their ability for active [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2020\/08\/28\/they-also-serve-who-only-stand-and-wait-ethical-and-spiritual-response-to-the-covid-19-pandemic\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":47400,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[223],"tags":[],"class_list":["post-48449","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guest-bloggers"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - 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