{"id":44856,"date":"2019-06-25T13:46:39","date_gmt":"2019-06-25T12:46:39","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=44856"},"modified":"2019-07-04T09:23:16","modified_gmt":"2019-07-04T08:23:16","slug":"hope-virgo-people-with-eating-disorders-should-be-offered-help-regardless-of-their-weight","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2019\/06\/25\/hope-virgo-people-with-eating-disorders-should-be-offered-help-regardless-of-their-weight\/","title":{"rendered":"Hope Virgo: People with eating disorders should be offered help regardless of their weight"},"content":{"rendered":"<p class=\"standfirst\">Healthcare professionals should stop using BMI as the sole measure of an eating disorder, says Hope Virgo<\/p>\n<p><!--more--><a href=\"https:\/\/blogs.bmj.com\/bmj\/files\/2019\/06\/6E8DF9E7-5EDB-4196-918E-D5A28625FB4C.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-44871\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2019\/06\/6E8DF9E7-5EDB-4196-918E-D5A28625FB4C.jpg\" alt=\"\" width=\"173\" height=\"162\" \/><\/a><\/p>\n<p><span style=\"font-weight: 400\">If I ask you to imagine an anorexic person, I can almost guarantee that the first image that comes into your head is of a girl, probably around puberty, who looks extremely gaunt, bones slightly jutting out. This is the image that comes to so many of us when we think of someone with anorexia, but it is this perception that risks people with eating disorders not reaching out for support or, when they do, not receiving it. For me, this worry was realised when I went to the doctor for help, only to be told: \u201cYou aren\u2019t thin enough . . . \u201d <\/span><\/p>\n<p><span style=\"font-weight: 400\">When you get a response like this it not only plays up to the stigma of people with an eating disorder looking a certain way, it also reinforces that complete and utter fear that many people with anorexia have that you aren\u2019t \u201cgood enough\u201d at being anorexic and that you don\u2019t look thin. It triggers and substantiates a lot of negative thinking, and when coming from someone in a position of authority who you should be able to trust, it feels so much worse. My body image was completely distorted and being told I wasn\u2019t thin enough amplified that body distortion. <\/span><\/p>\n<p><span style=\"font-weight: 400\">I developed anorexia when I was 13 years old and the anorexia became like having a best friend with me all the time. It gave me value and a sense of purpose that I wasn\u2019t getting from anywhere else. I didn\u2019t realise how dangerous what I was doing was or that I had anything wrong with me at all. Fast track to when I was 17 sitting in bed in a mental health hospital: my heart had nearly stopped, my hair was thinning, and I was about to begin the hardest year of my life. After that year in hospital I was discharged and knew what I had to do to maintain my recovery. <\/span><\/p>\n<p><span style=\"font-weight: 400\">Yet the thing about mental illness is that if you don\u2019t manage it in the right way, and if you aren\u2019t aware of your coping mechanisms and triggers, then there may be a point at which it returns. Unfortunately for me, in 2016 after being out of hospital and managing my recovery, I relapsed. <\/span><\/p>\n<p><span style=\"font-weight: 400\">The frustrating thing was that I knew what was happening. I was determined to not end up in adult services as an inpatient so I knew I had to do something. I referred myself to adult services<\/span><span style=\"font-weight: 400\"> and got an appointment at an eating disorder unit. I had thought that this would be the hardest step but then I was told \u201cI wasn\u2019t thin enough for support.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400\">I left the appointment not sure what to do. I had wanted someone to take my relapse seriously and give me some help. Yet now\u00a0I felt like a fake. <\/span><\/p>\n<p><span style=\"font-weight: 400\">Unfortunately, this is not something that just happened to me; the more I shared my story, the more I realised that this is a frequent occurrence on the NHS. A parliamentary select committee recently heard from a number of witnesses who reported that <a href=\"https:\/\/publications.parliament.uk\/pa\/cm201719\/cmselect\/cmpubadm\/855\/85502.htm\">GPs were overly reliant on low BMI as an indicator of an eating disorder<\/a><\/span><span style=\"font-weight: 400\">. It is clearly not right that people are being turned away because of their BMI, nor is it consistent with current recommendations.<\/span><\/p>\n<p><a href=\"https:\/\/www.nice.org.uk\/guidance\/ng69\/chapter\/Recommendations\"><span style=\"font-weight: 400\">NICE guidelines<\/span><\/a><span style=\"font-weight: 400\"> currently advise that healthcare professionals\u00a0\u201d<\/span><span style=\"font-weight: 400\">Do not use single measures such as BMI or duration of illness to determine whether to offer treatment for an eating disorder.\u201d Yet this is not always being followed\u2014at the cost of patients\u2019 health and wellbeing. <\/span><\/p>\n<p><span style=\"font-weight: 400\">We know that early diagnosis is critical to successfully treating eating disorders. By the time the \u201cobvious\u201d signs of an eating disorder have manifested, it is likely that the illness, along with its associated behaviours and thoughts, will have become more ingrained in the individual, making it more difficult to treat. If we want to prevent people from becoming seriously ill, we need to make sure that all frontline staff have a clear understanding of the guidelines and why it\u2019s important to not use BMI as the sole measure of an eating disorder. <\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\">\u00a0<\/span><span style=\"font-weight: 400\"><br \/>\n<\/span><span style=\"font-weight: 400\">If we tackled this and changed healthcare policy and public understanding around eating disorders, the benefits would be huge. We would be able to prevent the decline in health and even death among people with eating disorders, prevent hospital admissions, and save the NHS money. We know that people with eating disorders experience a worsening cognitive decline the more weight they lose, which lengthens their recovery time. If we had early intervention this would mean that people would have a higher success rate in recovery. <\/span><\/p>\n<p><span style=\"font-weight: 400\">Knowing how crucial early treatment is and hearing how other people had experienced similar treatment by healthcare professionals, I began the campaign <\/span><a href=\"https:\/\/www.change.org\/p\/eating-disorders-are-not-just-about-weight-dumpthescales\"><span style=\"font-weight: 400\">#DumpTheScales<\/span><\/a><span style=\"font-weight: 400\">. This calls for doctors to stop focusing disproportionately on weight when diagnosing and treating eating disorders. It is a call that was echoed last week by the aforementioned parliamentary select committee that has been hearing evidence on eating disorders. Their <a href=\"https:\/\/publications.parliament.uk\/pa\/cm201719\/cmselect\/cmpubadm\/855\/85502.htm\">latest inquiry recommends<\/a> that doctors avoid using \u201csingle measures such as BMI\u201d and that they receive <\/span><a href=\"https:\/\/www.theguardian.com\/society\/2019\/jun\/18\/doctors-failings-on-eating-disorders-are-costing-lives\"><span style=\"font-weight: 400\">more training on eating disorders<\/span><\/a><span style=\"font-weight: 400\">. <\/span><\/p>\n<p><span style=\"font-weight: 400\">Better training would go a long way to improving doctors\u2019 understanding of the disease, but there are already steps that individual doctors can take. We need to look at patients as individuals. For doctors, this means being mindful of what you say to your patients when they come in displaying signs of eating disorders, listening in a non-judgmental way, and taking their concerns seriously. <\/span><\/p>\n<p><span style=\"font-weight: 400\">The UK has the right guidelines, but they are not being uniformly followed.\u00a0It is time we stopped waiting for people to hit crisis point before we offer them support.\u00a0<\/span><\/p>\n<p><em><span style=\"font-weight: 400\"><strong>Hope Virgo<\/strong> is the author of <\/span><\/em><span style=\"font-weight: 400\">Stand Tall Little Girl<\/span><em><span style=\"font-weight: 400\">\u00a0and an international advocate for people with eating disorders. Hope helps young people and employers (including schools, hospitals, and businesses) to deal with the rising tide of mental health issues.<\/span><\/em><\/p>\n<p><strong>Competing interests:<\/strong> I gave evidence to the parliamentary select committee referred to in this article. Nothing further to declare.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Healthcare professionals should stop using BMI as the sole measure of an eating disorder, says Hope Virgo [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2019\/06\/25\/hope-virgo-people-with-eating-disorders-should-be-offered-help-regardless-of-their-weight\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":44855,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-44856","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-perspectives"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Hope Virgo: People with eating disorders should be offered help regardless of their weight - 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