{"id":44416,"date":"2019-04-09T14:32:53","date_gmt":"2019-04-09T13:32:53","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=44416"},"modified":"2019-04-16T12:47:46","modified_gmt":"2019-04-16T11:47:46","slug":"ceinwen-giles-brexit-many-patients-who-have-the-means-to-do-so-are-stockpiling-drugs","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2019\/04\/09\/ceinwen-giles-brexit-many-patients-who-have-the-means-to-do-so-are-stockpiling-drugs\/","title":{"rendered":"Ceinwen Giles: Brexit\u2014Many patients who have the means to do so are stockpiling drugs"},"content":{"rendered":"

The fact that patients even have to consider this is a shameful indictment of the way in which those with long term health conditions are being ignored<\/p>\n

<\/p>\n

\"ceinwen_giles2\"<\/a>As I write this, I\u2019m hooked up to an intraveneous drip of human immunoglobulin G (IVIG)\u2014a blood product that helps to prevent severe infections. Without it, my immune system on its own is not strong enough to prevent life-threatening diseases like meningitis and encephalitis, or a whole host of other illnesses I\u2019d rather not think about.<\/span><\/p>\n

However, as Brexit drags on and the uncertainty around if, how, and when the UK is going to leave the EU continues, I\u2019ve frequently had cause to consider whether this supply of life-saving drugs will be readily available in the near future. \u00a0The health secretary, Matt Hancock has reportedly <\/span>said<\/span><\/a> that he \u201ccannot guarantee that people won\u2019t die\u201d in the event of a no-deal Brexit\u2014something that I thought sounded vaguely absurd until I realised that I could be one of the people at risk of dying. On 3 April 2019, Newsnight <\/span>reported<\/span><\/a> that the NHS had been unable to stockpile certain drugs, risking harm to thousands of patients.<\/span><\/p>\n

While accusations of \u201cProject Fear\u201d are levelled towards people who express worries about things like the supply of medicines, many people (including those working in the NHS) have voiced concerns that any form of Brexit\u2014and a no deal Brexit in particular\u2014could have grave consequences for patient care. \u00a0And yet, as far as I can see, the voices of patients have been largely absent from any of the debates on how we can leave the EU and maintain the quality of healthcare that citizens of one of the world\u2019s richest countries deserve (something that both Leavers and Remainers care about a great deal).<\/span><\/p>\n

Like much of the population, I feel Brex-hausted. I\u2019ve tried hard for three years to pay attention to what\u2019s going on, but it\u2019s tiring and stressful, particularly when there is no easy resolution in sight. However, as the possible scale of the difficulties facing patients becomes clearer and clearer, I\u2019ve often felt a rising wave of nausea in my stomach.<\/span><\/p>\n

The products that help me ward off infection are made from<\/span> imported blood <\/span><\/a>(most often from the United States) that is treated and processed in Spain. There is no UK supply of blood for immunoglobulins because of the risk of transmitting <\/span>Variant Creutzfeldt-Jakob disease (vCJD). There are also no facilities in the UK that are currently capable of manufacturing the types of blood plasma products that I need. Thousands of people in the UK rely on blood plasma products to survive, but apart from vague reassurances that if \u201c<\/span>everyone does what they need to do, we\u2019ll be fine<\/span><\/a>\u201d, there is little evidence that we are ready for life after Brexit and a \u201cno deal Brexit\u201d in particular.<\/span><\/p>\n

In addition to the supply of medicines, I worry about patient care and treatment. The NHS is facing huge shortages of GPs, nurses, and other healthcare professionals, and anyone who is in regular contact with the health service is already seeing the strain that this is causing. While our politicians argue about whether or not we\u2019re better in or out of a customs union, no one seems to have a coherent plan for plugging this gap. And if we don\u2019t have the staff we need, we certainly aren\u2019t going to have the treatments we need delivered on time to those who need them. \u00a0<\/span><\/p>\n

Many patients who have the means to do so are stockpiling drugs\u2014and I don\u2019t blame them. I\u2019ve never felt quite as powerless as I do now, wondering what may happen if the UK faces shortages in the supplies of IVIG. The last time I got ill, I spent a month in the hospital and four months recovering at home\u2014and I still suffer the consequences of that meningitis infection to this day. The thought of being even slightly more at risk of that happening again makes me panic.<\/span><\/p>\n

I\u2019m a dual citizen UK\/Canadian citizen and over the last six months have wondered many times if I could go back to Canada and beg for treatment (I\u2019m not entitled to free healthcare in Canada because I live and pay taxes here). Could I go to Spain and purchase some IVIG there? And even if, in theory, I could go somewhere to buy my treatment, I\u2019m not sure how I could afford it (my treatment costs thousands of pounds per month). The fact that I\u2019ve even had to consider this is a shameful indictment of the way in which ordinary people, and particularly those with long-term health conditions, are being ignored in this debate, the outcomes of which could have significant and devastating consequences.<\/span><\/p>\n

Living with a long-term health condition is stressful on its own. Constant medication, the worry about symptoms of treatment and the condition itself, and the management of side-effects, frequently contribute to a life ridden with anxieties that the average, healthy person knows nothing about. Living with a long-term condition when it\u2019s not clear that the medicine that keeps you healthy will be available from one month to the next is downright terrifying.<\/span><\/p>\n

Ceinwen Giles<\/i><\/b> is a director at Shine Cancer Support and a trustee of the Point of Care Foundation.<\/span><\/i><\/p>\n

Competing interests<\/i><\/b>: See a declaration of interests<\/a> on bmj.com<\/span><\/i><\/p>\n","protected":false},"excerpt":{"rendered":"

The fact that patients even have to consider this is a shameful indictment of the way in which those with long term health conditions are being ignored […]<\/p>\n

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