{"id":43823,"date":"2019-01-04T17:36:34","date_gmt":"2019-01-04T16:36:34","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=43823"},"modified":"2019-01-10T18:38:24","modified_gmt":"2019-01-10T17:38:24","slug":"sara-yaron-meaningful-involvement-as-a-patient-reviewer-for-cochrane","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2019\/01\/04\/sara-yaron-meaningful-involvement-as-a-patient-reviewer-for-cochrane\/","title":{"rendered":"Sara Yaron: Meaningful involvement as a patient reviewer for Cochrane"},"content":{"rendered":"

I have been a member of the Cochrane Consumer Network for many years<\/a>. Over this time I have responded to many requests to comment as a patient user or “consumer” who has a number of medical conditions, including breast cancer. This work has entailed involvement with several different Cochrane review groups and my experience of these has differed. <\/span><\/p>\n

As a rule I’m first asked if I’m interested in commenting on a given protocol or systematic review, or both. When I agree I am sent the paper and a checklist to fill in which provides an option to write “additional” comments.<\/span> I always get an email back from them with kind thanks for the work I have done. But I don’t get specific feedback as to whether what I have done has been useful or not and how it will be incorporated, or not, in the review. On occasions when I have written specific additional comments, which raise new issues or new points, which either the authors or editors of the review want to follow up on, I have been notified of changes or updates to the review and asked to approve the changes. And that is it. <\/span><\/p>\n

But the experience does vary. One review group I have worked with<\/span> has adopted a completely different working style and approach. From the beginning I was considered and documented as a consumer author of the review and been involved with it from the start. For example, I was asked to give my ideas on topics I’m interested in, explain what my priorities are, and make proposals on what the review should cover. I participated in discussions about the issues that should be dealt with and the appropriate title for the review. At the end of the process I have been sent a full summary of the review, including results and conclusions. My involvement has been meaningful and I have appreciated the opportunity to do more than fill in a checklist of boxes with short answers. It’s enabled me to express an opinion at each stage of the process and I have found people keen to learn from my personal experience, common sense and knowledge as a patient <\/span><\/p>\n

I am not arguing that one way is better or more efficient than the other, but given the choice I much prefer the second approach. Either way what motivates me as a consumer is to help in the process of generating better evidence to help improve healthcare and I can and am happy to adapt my work and myself to either approach.<\/span><\/p>\n

\"\"<\/a>Sara Yaron<\/strong> is an elected member of the Cochrane Consumers Executive Committee and an <\/span>honorary<\/span> advisor in the Board of <\/span>“<\/span>ISQua<\/span>“<\/span>.<\/span><\/em><\/p>\n

Competing interests<\/strong>: None declared.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

I have been a member of the Cochrane Consumer Network for many years. Over this time I have responded to many requests to comment as a patient user or “consumer” […]<\/p>\n

More…<\/a><\/p>\n","protected":false},"author":1,"featured_media":40750,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-43823","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-perspectives"],"yoast_head":"\nSara Yaron: Meaningful involvement as a patient reviewer for Cochrane - The BMJ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/bmj\/2019\/01\/04\/sara-yaron-meaningful-involvement-as-a-patient-reviewer-for-cochrane\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sara Yaron: Meaningful involvement as a patient reviewer for Cochrane - The BMJ\" \/>\n<meta property=\"og:description\" content=\"I have been a member of the Cochrane Consumer Network for many years. 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