{"id":43567,"date":"2018-11-29T16:59:19","date_gmt":"2018-11-29T15:59:19","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=43567"},"modified":"2018-12-07T14:34:34","modified_gmt":"2018-12-07T13:34:34","slug":"jeremy-smith-the-malady-of-boredom","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2018\/11\/29\/jeremy-smith-the-malady-of-boredom\/","title":{"rendered":"Jeremy Smith: The malady of boredom"},"content":{"rendered":"<p class=\"standfirst\">For patients experiencing long hospital stays, the hardest part to endure may not be the pain or inconvenience of treatment but boredom, says Jeremy Smith<\/p>\n<p><!--more--><i><span style=\"font-weight: 400\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-43573\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/11\/jeremy_smith_2018again.jpg\" alt=\"\" width=\"183\" height=\"199\" \/>\u201cBoredom is, as many patients will attest, as close to torture as any Dark Ages tormentor could inflict. The pain of the operations, the stripping away of dignity necessitated by weak to non-existent bathroom functions and a constant fixation over pressure sores doesn\u2019t even come close to matching the horror of a mind able only to feed on itself.\u201d<\/span><\/i><\/p>\n<p><span style=\"font-weight: 400\">I wrote this for <a href=\"https:\/\/www.telegraph.co.uk\/news\/telegraphchristmasappeal\/12099804\/It-was-only-a-tiny-garden-but-it-helped-me-smile-again.html\">an article in the\u00a0<\/a><\/span><i><span style=\"font-weight: 400\">Daily Telegraph<\/span><\/i> <span style=\"font-weight: 400\">at the beginning of 2016 after spending almost 11 months in hospital because of a spinal injury. During this period, I also contracted MRSA, which meant I was quarantined and in isolation for two of those months. Consequently, I came to know boredom on a very intimate basis.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Many of the doctors and specialists who attended me were happy to discuss my anxiety, detachment, and morbid lethargy but none seemed able to grasp the boredom that was its root cause. Indeed, their inability to acknowledge what to me seemed obvious was every bit as debilitating as the condition itself. They focused on these symptoms as tangible and manageable parts of a treatment course to be ticked off, rather than the obvious consequence of an institutionalised routine taking its toll. \u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">For doctors and nurses, the wards must surely seem, and feel, like intense microcosms of the life-death experience, but for patients enduring long term hospitalisation 24\/7, the gruelling cocktail of pain and boredom, loneliness and fear, and the aching, numbing minutiae of ward routine can strip a mind bare of all but its most primal functions.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Typically, distractions were few and far between, and those available quickly lost their sheen. Even receiving visitors becomes stressful as you rack your mind for something, anything at all, to recount of your endless inactivity.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Bafflingly, the mental health professionals (psychotherapists, counsellors) assigned to oversee the wellbeing of those forced to endure long term hospitalisation never seemed willing to ask the obvious question, \u201cAre you bored?\u201d It\u2019s as if being bored was somehow reprehensible and unworthy of clinical appraisal.<\/span><\/p>\n<p><span style=\"font-weight: 400\">What\u2019s so frustrating is that the distractions I sought are so obvious: books; bright walls (instead of grubby green or municipal yellow); and the absolute necessity of having cards, letters, and photographs from family and friends to put up on walls.\u00a0Yet too often hospitals make no provisions for these preoccupations, or even actively strip them away. In two of the hospitals I stayed in, there wasn\u2019t even anything as basic as a box of paperbacks to alleviate the monotony. And one patient I knew had a hand drawn card made by his young daughter removed without warning from his bedside while he was awaiting an x ray; needless to say, he was distraught upon his return. Allowing the patient small but important comforts like this creates a vital link with loved ones at home and helps maintain a vital psychological bulwark against the deprivations of taedium vitae. \u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400\">Flowers, which may appear sentimental, embody care from others and are a cheering, almost primal reminder of the world you wish to return to. Yet mine were always efficiently swiped away immediately after my visitors departed. <\/span><span style=\"font-weight: 400\">This is usually done <a href=\"https:\/\/www.bmj.com\/content\/339\/bmj.b5257\">on the grounds that flowers are potentially hazardous and can act as a source of infection<\/a><\/span><span style=\"font-weight: 400\">, although the evidence on this seems mixed<\/span><span style=\"font-weight: 400\">. \u00a0I photographed my room before one bouquet was removed and asked friends online to spot the obvious health and safety peril; they couldn\u2019t.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Staff and hospitals can help support patients through other ways; for example, through access to a garden or any outdoor space. For those confined to wards, a myriad of low maintenance activities such as board games; pens and paper for drawing, writing, painting; or even origami could help enormously. Lying for hours, days, and months in bed without any meaningful sensory release must surely hamper a patient\u2019s recovery. Indeed, I\u2019m sure adults would benefit hugely if the same attention paid to keeping younger patients distracted and entertained was equally applied to them.<\/span><\/p>\n<p><span style=\"font-weight: 400\">If I now had to return to hospital for a stay of four weeks or, God forbid, longer, it wouldn\u2019t be the pain or inconvenience of the treatment that would terrify me, but the endless, almost palpable vacuum of its monotony.<\/span><\/p>\n<p><b><i>Jeremy Smith\u00a0<\/i><\/b><i><span style=\"font-weight: 400\">is an Oxford based award winning journalist and broadcaster who has spent the past 37 years specialising in subjects as diverse as fashion, business, travel, and the arts. In 2015, he suffered a spinal injury and was hospitalised for 11 months. Among myriad other current topics and issues, he now enjoys highlighting disability from a more sartorial point of view.<\/span><\/i><\/p>\n<p><i><span style=\"font-weight: 400\">This piece was written with input and help from <\/span><\/i><b><i>Dr Lizzie Burns, <\/i><\/b><em><span style=\"font-weight: 400\">who<\/span><\/em><b>\u00a0<\/b><span style=\"font-weight: 400\">w<\/span><i><span style=\"font-weight: 400\">orks once a week as a creative specialist in University College Hospital as part of the\u00a0<\/span><\/i><a href=\"https:\/\/www.uclh.nhs.uk\/OurServices\/ServiceA-Z\/Cancer\/CSS\/MCIC\/Pages\/Home.aspx\"><i><span style=\"font-weight: 400\">Macmillan Support and Information Service<\/span><\/i><\/a><i><span style=\"font-weight: 400\"> funded by the\u00a0<\/span><\/i><a href=\"https:\/\/www.uclhcharity.org.uk\/\"><i><span style=\"font-weight: 400\">UCLH Charity<\/span><\/i><\/a><i><span style=\"font-weight: 400\">. After gaining a doctorate from the University of Oxford, Lizzie has worked as a science based artist since 2002 and is now founder of the\u00a0<\/span><\/i><a href=\"https:\/\/antiboredomcampaign.wordpress.com\/\"><i><span style=\"font-weight: 400\">Anti-boredom Campaign<\/span><\/i><\/a><i><span style=\"font-weight: 400\">.<\/span><\/i><\/p>\n<p><strong>Competing interests:<\/strong> Nothing further to declare.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>For patients experiencing long hospital stays, the hardest part to endure may not be the pain or inconvenience of treatment but boredom, says Jeremy Smith [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2018\/11\/29\/jeremy-smith-the-malady-of-boredom\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":43570,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-43567","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-perspectives"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - 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