{"id":42412,"date":"2018-06-20T10:42:18","date_gmt":"2018-06-20T09:42:18","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=42412"},"modified":"2018-06-25T15:44:03","modified_gmt":"2018-06-25T14:44:03","slug":"nick-hopkinson-120-beats-per-minute-living-and-dying-and-making-a-difference","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2018\/06\/20\/nick-hopkinson-120-beats-per-minute-living-and-dying-and-making-a-difference\/","title":{"rendered":"Nick Hopkinson: 120 beats per minute\u2014living and dying and making a difference"},"content":{"rendered":"

\u201cWhat is a good life? For a start, a good life is one that goes on long enough. A short life may be good while it lasts, may be a sweet thing in the memory of others. But if it is only half the length it should have been, if it is cut down to that, it is not a good life. A good life might be as long as one you know that comes back to mind, maybe like the life of my father, who departed during his afternoon nap. It might be seventy-five years.\u201d <\/span><\/i>The moral philosopher <\/span>Ted Honderich<\/span><\/a> writing in \u201cAfter The Terror.\u201d<\/span><\/p>\n

Robin Campillo\u2019s film, <\/span>120 BPM (Beats Per Minute),<\/span><\/a> is an account of shortened, heightened lives. Set at the start of the \u201890s, it follows members of the AIDS campaign group <\/span>Act Up Paris<\/span><\/a>. HIV treatment is rudimentary, the introduction of effective combination antiviral therapy will not occur until 1996, and the activists, most HIV positive, seem at the mercy of an unpredictable, but relentless clock. CD4 counts decline and AIDS related illnesses manifest in sequence\u2014Kaposi\u2019s sarcoma, PCP, toxoplasmosis, CMV, wasting, and encephalopathy. It is a disconcerting trip back in time for anyone working in healthcare then, both in terms of medicine and of attitudes\u2014fear of needlestick injuries and of the other.<\/span><\/p>\n

Campaigning to raise awareness, challenge attitudes, and speed up medical research, Act Up face an establishment taking only token steps, concerned to reassure mainstream society rather than protect vulnerable groups. The film is patient, allowing their discussions and debate to unfold. How best to proceed, what forms of protest will be most effective? Between the debates there is action\u2014hurling fake blood around the offices of a pharmaceutical company which is withholding the results of its trials of a new drug; waiting until next year\u2019s big conference while people are dying for want of treatment. Activists take their message into classrooms unannounced where schools are refusing to provide safe-sex education. Alongside campaigning zeal there\u2019s dancing too\u2014hence 120BPM, and the stories and loves of the campaigners are revealed. <\/span><\/p>\n

Act-Up Paris includes and represents people who have contracted HIV from a variety of sources. As well as gay rights, there is a need to address issues of legality and marginalisation\u2014HIV infection in prisons, through prostitution, drug use, or blood transfusions. For wider society there are always hierarchies of victims\u2014the more or less deserving sick\u2014see the current surge in interest in non-smoking-related lung cancer. The film demonstrates how this can both be used and challenged, the opportunities and the dangers. In one section the mother of a child infected with HIV because of treatment for his haemophilia, the most \u201cinnocent\u201d of victims, has called publicly for the health minister to be imprisoned. Her anger is understandable, but at the weekly meeting she herself is criticised, as her statement contradicts Act Up\u2019s campaigning to reduce incarceration. Law enforcement is harming the most marginalised groups, making them even more vulnerable. The issues are complex, conflicting, and have to be addressed.<\/span><\/p>\n

As well as lives lived brilliantly, Campillo captures the practical, material tasks associated with lives continuing after a death\u2014folding away the sofa-bed, coming together to drink coffee, the search for biscuits. The struggle continues, extending on to planning funerals and a scene where a campaigner\u2019s ashes are scattered over a gala buffet for health insurers.<\/span><\/p>\n

Finally, the film is a lesson in commitment and campaigning\u2014the need for clear appealing messages, the way that different groups can be complementary, the need to listen to the people who you want to help. <\/span><\/p>\n

Nicholas Hopkinson<\/strong>, reader in Respiratory Medicine, Imperial College London.<\/em><\/p>\n

Competing interests<\/strong>: None declared.\u00a0<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

\u201cWhat is a good life? For a start, a good life is one that goes on long enough. A short life may be good while it lasts, may be a […]<\/p>\n

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