{"id":41887,"date":"2018-04-19T14:29:04","date_gmt":"2018-04-19T13:29:04","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=41887"},"modified":"2018-04-25T09:32:39","modified_gmt":"2018-04-25T08:32:39","slug":"stijntje-dijk-the-patients-role-in-medical-education-extends-well-beyond-being-clinical-material","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2018\/04\/19\/stijntje-dijk-the-patients-role-in-medical-education-extends-well-beyond-being-clinical-material\/","title":{"rendered":"Stijntje Dijk: The patient&#8217;s role in medical education extends well beyond being &#8220;clinical material&#8221;"},"content":{"rendered":"<p><span style=\"font-weight: 400\"><a href=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/04\/stjinte.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-41889\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/04\/stjinte.jpg\" alt=\"\" width=\"160\" height=\"160\" srcset=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/04\/stjinte.jpg 160w, https:\/\/blogs.bmj.com\/bmj\/files\/2018\/04\/stjinte-150x150.jpg 150w\" sizes=\"auto, (max-width: 160px) 100vw, 160px\" \/><\/a>\u201cMedical education used to be something that was done to students, rather than something they were a part of,\u201d said Trudie Roberts, professor of medical education, during a AMEE<\/span><a href=\"http:\/\/www.amee.org\/\"> <span style=\"font-weight: 400\">board meeting<\/span><\/a><span style=\"font-weight: 400\">. But things have changed. Nowadays, the concept of involving students in the design, development, and evaluation of medical education is well accepted in many countries.<\/span><\/p>\n<p><span style=\"font-weight: 400\">The involvement of patients on the other hand, is still limited. Patients mostly remain the subject of study, enabling students to practice physical examination. Or they are invited to tell their personal stories in lecture halls. What they are often not invited to do is get involved in the strategy and approach of medical education. The expertise that patients can bring to many areas of education continues to be an untapped resource (<\/span><a href=\"http:\/\/trove.nla.gov.au\/work\/19134011?q&amp;versionId=45508827\"><span style=\"font-weight: 400\">Tuckett 1985<\/span><\/a><span style=\"font-weight: 400\">).<\/span><\/p>\n<p><span style=\"font-weight: 400\">As medical students and as future physicians we are<\/span><a href=\"http:\/\/apps.who.int\/iris\/bitstream\/10665\/59441\/1\/WHO_HRH_95.7.pdf\"> <span style=\"font-weight: 400\">accountable<\/span><\/a><span style=\"font-weight: 400\"> to the communities that we serve (<\/span><a href=\"http:\/\/apps.who.int\/iris\/bitstream\/10665\/59441\/1\/WHO_HRH_95.7.pdf\"><span style=\"font-weight: 400\">WHO 1995<\/span><\/a><span style=\"font-weight: 400\">). <\/span><a href=\"https:\/\/www.youtube.com\/watch?v=psZ4w_zPIBY&amp;feature=youtu.be\"><span style=\"font-weight: 400\">Social accountability in medical schools<\/span><\/a><span style=\"font-weight: 400\"> is about responsibility, not only willingness, to react to current and future health needs and challenges in society. <\/span><a href=\"http:\/\/healthsocialaccountability.sites.olt.ubc.ca\/files\/2011\/06\/11-06-07-GCSA-English-pdf-style.pdf\"><span style=\"font-weight: 400\">A socially accountable medical school<\/span><\/a><span style=\"font-weight: 400\"> strengthens governance and partnerships with other stakeholders, including patients, to make that happen (<\/span><a href=\"http:\/\/healthsocialaccountability.sites.olt.ubc.ca\/files\/2011\/06\/11-06-07-GCSA-English-pdf-style.pdf\"><span style=\"font-weight: 400\">Global Consensus on Social Accountability of Medical Schools, 2010<\/span><\/a><span style=\"font-weight: 400\">).<\/span><\/p>\n<p><a href=\"http:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1365-2923.2009.03530.x\/full\"><span style=\"font-weight: 400\">Towle et al describe a spectrum of patient involvement<\/span><\/a><span style=\"font-weight: 400\">. This ranges from being a \u201cpaper-based case\u201d or a standardized patient, to sharing experiences within a faculty-directed curriculum. Further, there are \u201cpatient-teachers\u201d who are involved in evaluating students, to patient-teachers as equal partners in education, evaluation, and curriculum development. Finally, patients can be involved at an institutional level. The level of participation increases with each of these steps, whereas many involvement-initiatives are confined to the bottom of the staircase.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Patients themselves seem highly motivated to participate in education. Some see their involvement as their responsibility, as a way of \u201cgiving back\u201d<\/span><a href=\"http:\/\/www.tandfonline.com\/doi\/abs\/10.3109\/0142159X.2014.947946?journalCode=imte20\"> <span style=\"font-weight: 400\">(Watts et al. 2014; \u00a0<\/span><\/a><a href=\"http:\/\/www.educationforhealth.net\/article.asp?issn=1357-6283;year=2012;volume=25;issue=2;spage=87;epage=91;aulast=Bashour\"><span style=\"font-weight: 400\">Bashour et al. 2012<\/span><\/a><a href=\"http:\/\/www.tandfonline.com\/doi\/abs\/10.3109\/0142159X.2014.947946?journalCode=imte20\"><span style=\"font-weight: 400\">)<\/span><\/a><span style=\"font-weight: 400\">. Some become involved as they feel that their view is unheard, or believe their experiential knowledge of illness and the health system is unjustly absent in the curriculum (<\/span><a href=\"http:\/\/www.tandfonline.com\/doi\/abs\/10.1080\/02615479.2011.557429\"><span style=\"font-weight: 400\">Tew et al 2011<\/span><\/a><span style=\"font-weight: 400\">; <\/span><a href=\"http:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1365-2923.2009.03530.x\/full\"><span style=\"font-weight: 400\">Towle et al. 2009<\/span><\/a><span style=\"font-weight: 400\">). Others see their participation as an opportunity to improve their own knowledge<\/span><a href=\"http:\/\/www.tandfonline.com\/doi\/abs\/10.3109\/0142159X.2014.947946?journalCode=imte20\"> <span style=\"font-weight: 400\">(Watts et al. 2014)<\/span><\/a><span style=\"font-weight: 400\">.<\/span><\/p>\n<p><span style=\"font-weight: 400\">This is reflected in the increase in initiatives to involve patients in medical education in the UK. National guidance documents such as <\/span><a href=\"http:\/\/www.ub.edu\/medicina_unitateducaciomedica\/documentos\/TomorrowsDoctors_2009.pdf\"><span style=\"font-weight: 400\">Tomorrow\u2019s Doctors<\/span><\/a><span style=\"font-weight: 400\"> and \u201c<\/span><a href=\"http:\/\/www.gmc-uk.org\/Patient_and_public_involvement_in_undergraduate_medical_education___guidance_0815.pdf_56438926.pdf\"><span style=\"font-weight: 400\">supplements on patient and public involvement in undergraduate medical education<\/span><\/a><span style=\"font-weight: 400\">\u201d (<\/span><a href=\"http:\/\/www.ub.edu\/medicina_unitateducaciomedica\/documentos\/TomorrowsDoctors_2009.pdf\"><span style=\"font-weight: 400\">GMC 2009<\/span><\/a><span style=\"font-weight: 400\">; <\/span><a href=\"https:\/\/www.gmc-uk.org\/Patient_and_public_involvement_in_undergraduate_medical_education___guidance_0815.pdf_56438926.pdf\"><span style=\"font-weight: 400\">2011<\/span><\/a><span style=\"font-weight: 400\">) and the White Paper \u201c<\/span><a href=\"https:\/\/www.gov.uk\/government\/uploads\/system\/uploads\/attachment_data\/file\/213823\/dh_117794.pdf\"><span style=\"font-weight: 400\">Equity and excellence<\/span><\/a><span style=\"font-weight: 400\">\u201d (<\/span><a href=\"https:\/\/www.gov.uk\/government\/uploads\/system\/uploads\/attachment_data\/file\/213823\/dh_117794.pdf\"><span style=\"font-weight: 400\">NHS 2010<\/span><\/a><span style=\"font-weight: 400\">) have explicitly advocated for patients\u2019 involvement in health professionals education.<\/span><\/p>\n<p><span style=\"font-weight: 400\">The challenge is to make patient\u2019s involvement meaningful. It has become a trend, sometimes even a status symbol, to involve other parties in decision making, including students or patients. But symbolic efforts to include under-represented groups fail to achieve change. There are, however, useful examples of meaningful partnerships from which others can learn. In an extensive guide on meaningful student involvement for school change, Adam Fletcher describes crucial elements for partnerships, and provides examples of meaningful and non-meaningful involvement <\/span><a href=\"https:\/\/www.dallasisd.org\/cms\/lib\/TX01001475\/Centricity\/Domain\/11206\/Meaningful%20Student%20Involvement.pdf\"><span style=\"font-weight: 400\">(Fletcher 2003).<\/span><\/a><\/p>\n<p><span style=\"font-weight: 400\">As physicians we need to be aware that we do not necessarily have all the answers, and recognize that patients as those who experience the outcomes of our medical education and health care system have knowledge in many areas that we do not.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Through organisations such as the International Federation of Medical Students\u2019 Associations (<\/span><a href=\"http:\/\/www.ifmsa.org\"><span style=\"font-weight: 400\">IFMSA<\/span><\/a><span style=\"font-weight: 400\">), medical students attempt to gain the experiences and knowledge that they feel their own curricula and faculties are missing themselves. They advocate and set up projects and initiatives not only for patients, but with them, where the goals are determined together with individual patients or local and global patient organizations.<\/span><\/p>\n<p><span style=\"font-weight: 400\">In the time of<\/span><a href=\"http:\/\/archive.carnegiefoundation.org\/pdfs\/elibrary\/Carnegie_Flexner_Report.pdf\"> <span style=\"font-weight: 400\">Abraham Flexner (1910)<\/span><\/a><span style=\"font-weight: 400\">, patients were referred to as \u201cclinical material\u201d. It is not acceptable for this way of thinking to still linger through our educational system. There is need for strategic, systematic, institution-wide approaches to planning patient, student, and community involvement in non-tokenistic manners in all levels of medical education, developing a culture where this is the norm. The best way to inspire shared-decision making, and to teach us to respect our patients, is not by telling us students the importance of values through lectures, it is by leading by example.<\/span><\/p>\n<div><i><strong>Stijntje Dijk<\/strong> is a fifth year medical student at the Erasmus University Rotterdam, The Netherlands. She has previously served as the Medical Education Director and Liaison Officer for the International Federation of Medical Students&#8217; Associations (IFMSA), representing medical students worldwide.<\/i><\/div>\n<div><\/div>\n<div><em><strong>Competing interests<\/strong>: SD has formerly held a position of unpaid officership for the International Federation of Medical Students Associations (an advocacy, charity and non-governmental organization), and currently holds an unpaid position in their Supervising Council.<\/em><\/div>\n<div><\/div>\n<p><b><i>Acknowledgement: <\/i><\/b><i><span style=\"font-weight: 400\">I would like to thank Matthias Wienold (patient advocate) and Tessa Richards (leading the BMJ patient partnership initiative) for their continuous support and their review of this article.<\/span><\/i><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u201cMedical education used to be something that was done to students, rather than something they were a part of,\u201d said Trudie Roberts, professor of medical education, during a AMEE board [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2018\/04\/19\/stijntje-dijk-the-patients-role-in-medical-education-extends-well-beyond-being-clinical-material\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":41891,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-41887","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-perspectives"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - 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