{"id":41684,"date":"2018-03-21T21:55:48","date_gmt":"2018-03-21T20:55:48","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=41684"},"modified":"2018-03-28T10:38:49","modified_gmt":"2018-03-28T09:38:49","slug":"amy-price-the-unintended-consequences-of-tai-chi-for-fibromyalgia","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2018\/03\/21\/amy-price-the-unintended-consequences-of-tai-chi-for-fibromyalgia\/","title":{"rendered":"Amy Price: The unintended consequences of tai chi for fibromyalgia"},"content":{"rendered":"<p><span style=\"font-weight: 400\"><a href=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/03\/amy_price_tai-chi.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-41701\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/03\/amy_price_tai-chi.jpg\" alt=\"\" width=\"160\" height=\"160\" srcset=\"https:\/\/blogs.bmj.com\/bmj\/files\/2018\/03\/amy_price_tai-chi.jpg 160w, https:\/\/blogs.bmj.com\/bmj\/files\/2018\/03\/amy_price_tai-chi-150x150.jpg 150w\" sizes=\"auto, (max-width: 160px) 100vw, 160px\" \/><\/a>I am a trauma survivor with chronic pain. My options for surgical relief and pain management have been exhausted as I refuse to have an internal pain pump and the Food and Drug Administration have denied my compassionate use request for dangerous neck and spinal surgery, because it is high risk and has a less than five percent chance of doing any good. Someone decided I might have fibromyalgia, but no one could explain to me what it was. The doctor mumbled something about maybe tai chi helping, and for me it did.<\/span><\/p>\n<p><span style=\"font-weight: 400\">I later learned that fibromyalgia is a complex and confusing diagnosis that is thought to come from an overly aroused nervous system. This dysfunction can result in chronic, intermittent pain; sleep deprivation; and fatigue. These symptoms can trigger mental distress as well as cognitive and memory problems. There is no \u201cone size fits all\u201d approach. This makes finding useful treatment difficult.<\/span><\/p>\n<p><span style=\"font-weight: 400\">The uncertainty and variation between patients that makes symptoms hard to treat, also make them challenging to research. Research can be enriched with patient and public involvement, and this is one way in which we as patients can show support for medical research. [1] In addition, interventions or treatments that show benefit are more likely to be reimbursed, and this is good for patients.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Tai chi is an ancient martial art that uses slow and gentle exercises to improve balance and mental calm in order to neutralise force and increase self regulation. My balance was poor from brain and spinal damage, and I could only see the depressing future of being a patient with chronic pain. I didn\u2019t expect tai chi to work, but thought I\u2019d give it a chance.<\/span><\/p>\n<p><span style=\"font-weight: 400\">The typical regimen is an hour long class a day. This was the intervention used <a href=\"http:\/\/www.bmj.com\/content\/360\/bmj.k851\">in a trial by Wang et al<\/a><\/span><span style=\"font-weight: 400\">. Initially, I could only do ten minutes, three times a week, with constant supervision, because of memory and balance problems. Gradually, over about six weeks, my balance improved and this reduced anxiety and increased strength in my broken body. The ingrained philosophy of tai chi is to leverage force rather than resist it, and I still use this strategy regularly to manage pain.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Would I recommend tai chi for other patients with a fibromyalgia diagnosis? My answer is a qualified yes. These are some of the things you need to consider: <\/span><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">make sure that you discuss it with your doctor first<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">many instructors will offer you a free introductory class\u2014use this to make sure it is a good match for you<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">if the exercise hurts, stop and speak up\u2014the instructor can show you how to adapt and if this does not help, it is best not to continue<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">quality matters\u2014the instructor will need to be trained and certified to teach people recovering from \u00a0injury<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">consider the investment of your resources\u2014the hour in class, transportation, costs\u2014and balance these against benefit<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">ask before you start how long it usually takes before students see a benefit<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">some physiotherapy groups offer tai chi with other services, ask if this can be bundled for you as a reimbursed intervention if a doctor prescribes it.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400\">Helpful, cost effective interventions<\/span> <span style=\"font-weight: 400\">like Tai Chi can be empowering as long as they are not used to deny other effective, but more costly, care. Tai chi has been reported as a safe form of exercise that improves functional capacity without making it hard to breathe or move for those with COPD, arthritis, and heart failure.(2) A recent systematic review showed that tai chi can reduce the incidence of falls in the elderly.[3] A systematic overview recommended tai chi as useful for older people for its various physical and psychological benefits.[4]<\/span><\/p>\n<p><span style=\"font-weight: 400\">The caveat is that not all interventions work for everyone. Tai chi does not work for everyone with fibromyalgia. The advantage of the intervention is that it is low risk and minimally invasive, unlike surgery, and it will not harm your organs, like long term drug use. There is also the chance that it might complement other interventions to help your body work better.<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Read my review along with the linked research paper. You can sign up (<\/span><a href=\"http:\/\/www.bmj.com\/about-bmj\/resources-reviewers\/guidance-patient-reviewers\"><span style=\"font-weight: 400\">www.bmj.com\/about-bmj\/resources-reviewers\/guidance-patient-reviewers<\/span><\/a><span style=\"font-weight: 400\">) to be a BMJ patient reviewer like me. <\/span><\/li>\n<\/ul>\n<p><b><i>Amy Price<\/i><\/b><i><span style=\"font-weight: 400\"> worked as a neurocognitive rehabilitation consultant and in international missions before sustaining serious injury and years of rehabilitation. She emerged with a goal to build a bridge between research methodology and public research involvement where the public is trained and empowered to be equal partners in health research. Amy is The <\/span><\/i><span style=\"font-weight: 400\">BMJ<\/span><i><span style=\"font-weight: 400\">\u00a0Patient Editor for Research and Evaluation, serves on the <\/span><\/i><a href=\"http:\/\/www.bmj.com\/about-bmj\/advisory-panels\/patient-panel-members\/amy-price\"><span style=\"font-weight: 400\">BMJ <\/span><i><span style=\"font-weight: 400\">Patient Panel<\/span><\/i><\/a><i><span style=\"font-weight: 400\">,\u00a0and is reading for a <\/span><\/i><a href=\"https:\/\/www.conted.ox.ac.uk\/dphil-students?id=32\"><i><span style=\"font-weight: 400\">DPhil in evidence based healthcare<\/span><\/i><\/a><i><span style=\"font-weight: 400\"> at the University of Oxford.<\/span><\/i><\/p>\n<p><b>Competing interests:<\/b><span style=\"font-weight: 400\"> I have read and understood BMJ policy on declaration of interests and declare the following interests: None.<\/span><\/p>\n<p><strong>References:<\/strong><\/p>\n<p><span style=\"font-weight: 400\">1<\/span> <span style=\"font-weight: 400\">Price A, Albarqouni L, Kirkpatrick J, <\/span><i><span style=\"font-weight: 400\">et al.<\/span><\/i><span style=\"font-weight: 400\"> Patient and public involvement in the design of clinical trials: An overview of systematic reviews. <\/span><i><span style=\"font-weight: 400\">Journal of Evaluation in Clinical Practice<\/span><\/i><span style=\"font-weight: 400\"> 2017:1-14.<\/span><\/p>\n<p><span style=\"font-weight: 400\">2 Chen Y, Hunt MA, Campbell KL, et al. The effect of tai chi on four chronic conditions: cancer, osteoarthritis, heart failure, and chronic obstructive pulmonary disease: a systematic review and meta-analyses. <\/span><i><span style=\"font-weight: 400\">Br J Sports Med<\/span><\/i><span style=\"font-weight: 400\"> 2016;50:397-407.<\/span><\/p>\n<p><span style=\"font-weight: 400\">3 Lee MS, Ernst E. Systematic reviews of t&#8217;ai chi: an overview. British Journal of Sports Medicine 2011;46(10):713-8.<\/span><\/p>\n<p><span style=\"font-weight: 400\">4 Lomas-Vega R, Obrero-Gait\u00e1n E, Molina-Ortega FJ, Del-Pino-Casado R<\/span><i><span style=\"font-weight: 400\">. <\/span><\/i><span style=\"font-weight: 400\">Tai chi for risk of falls: a meta-analysis<\/span><i><span style=\"font-weight: 400\">. <\/span><\/i><span style=\"font-weight: 400\">Journal of the American Geriatrics Society. 2017;65(9):2037-43.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I am a trauma survivor with chronic pain. My options for surgical relief and pain management have been exhausted as I refuse to have an internal pain pump and the [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2018\/03\/21\/amy-price-the-unintended-consequences-of-tai-chi-for-fibromyalgia\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":41702,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-41684","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-perspectives"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Amy Price: The unintended consequences of tai chi for fibromyalgia - The BMJ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/bmj\/2018\/03\/21\/amy-price-the-unintended-consequences-of-tai-chi-for-fibromyalgia\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Amy Price: The unintended consequences of tai chi for fibromyalgia - The BMJ\" \/>\n<meta property=\"og:description\" content=\"I am a trauma survivor with chronic pain. 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