{"id":37741,"date":"2016-11-04T17:16:19","date_gmt":"2016-11-04T16:16:19","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=37741"},"modified":"2017-03-02T16:47:15","modified_gmt":"2017-03-02T15:47:15","slug":"paul-buchanan-overwhelmed","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2016\/11\/04\/paul-buchanan-overwhelmed\/","title":{"rendered":"Paul Buchanan: Overwhelmed"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-37458\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2016\/09\/PEB-Photo-JPG.jpg\" alt=\"peb-photo-jpg\" width=\"150\" height=\"150\" \/>Feeling overwhelmed. Sometimes that\u2019s what being a patient is all about. Consultations, appointments, tests, results, advice, and therapy &#8220;choices&#8221;\u2014what on earth am I meant to do? I\u2019m not sure I even know what I\u2019m being asked half of the time.<\/p>\n<p>At home, at work, at school\u2014not depressed, not unhappy, not fed up, just overwhelmed. Overwhelmed by the daily, hour by hour, minute-by-minute intrusion into my everyday that being a patient can be. Not all the time, not everyday, but sometimes.<!--more--><\/p>\n<p>I do want to &#8220;be better&#8221; at self-management, I do want to live the healthiest life I can, just sometimes it\u2019s a bit much. A bit like having to perform everyday with a double matinee at the weekend and never a break.<\/p>\n<p>A further intrusion into the regular experiences of being a long term patient comes with the next round of meetings, consultations, and appointments with the team, and when I say team I mean the sometimes randomly encountered stream of individuals who all have an expert opinion on how I should be managing, the ever changing role call of dramatis person\u00e6 that create the narrative to my treatment. In the space of the same week I can be asked for my blood pressure, weight, and heart rate three or four times. Don\u2019t you all work for the same NHS? Why can you still not share that information?<\/p>\n<p>Then there is the follow up with my GP. Why are you asking me for another blood pressure test and for my weight yet again? Is there some kind of pay-by-measurement scheme that I don\u2019t know about? I don\u2019t actually remember us ever talking about the results so why are you asking? What do you do with that information? How does it help me? If you\u2019re overwhelmed with your workload and I\u2019m overwhelmed with my condition where is the space for us to meaningfully connect and have a positive interaction? Less tests, more talk?<\/p>\n<p>Why do I need to come in for another &#8220;health check?&#8221; Surely you know everything there is to know about me by now? When you say \u201cGuidelines\u201d\u2014what exactly does that mean? If there are national targets and guidelines on what my BMI should be, why have we never had that discussion, other than for us to agree that \u201cI could do with losing a bit of weight and doing more exercise\u201d or if I have actually lost some weight and been exercising\u2014why is that never mentioned?<\/p>\n<p>How are some of those measures relevant to my care? And more importantly, if they are important are aren&#8217;t\u00a0explained to me\u2014how does it help me? We all work, we all need time to look after ourselves, and as patients we all need doctors who show an interest in how our condition affects our life. An interest in more than just collecting data and reacting to test results. All that data, all those charts, all those numbers, all that information swilling around in my head that somehow I have to interpret and be able to share with others. What am I meant to do with my questions, the ones that come to me later that day, or first thing in the morning?<\/p>\n<p>Sooner or later I have to become an &#8220;<a href=\"http:\/\/bmjopen.bmj.com\/content\/3\/11\/e003583.short\">expert patient<\/a>&#8221;\u00a0just to be able to follow the conversation, sooner or later I need to be able to apply the opinion, the test results, the weights and measures to self-management\u2014to use the information and interpret it in the context of my own life. Sooner or later I want the &#8220;team&#8221; to ask me for my opinion, to be treated as a peer in the management of my condition and to feel like I have a genuine stake in decision making, real authority, responsibility, and accountability.<\/p>\n<p>To get through the other side of being overwhelmed. Encouraged, comforted and assured. How can you help me help myself today?<\/p>\n<p><em><strong>Paul Buchanan<\/strong> is a patient with Type 1 diabetes. He runs Team Blood Glucose. He is part of <\/em>The BMJ<em>&#8216;s patient panel.<br \/>\n<\/em><br \/>\n<em><strong>Competing interests<\/strong>: None declared.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Feeling overwhelmed. Sometimes that\u2019s what being a patient is all about. Consultations, appointments, tests, results, advice, and therapy &#8220;choices&#8221;\u2014what on earth am I meant to do? I\u2019m not sure I [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2016\/11\/04\/paul-buchanan-overwhelmed\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":38581,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-37741","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-perspectives"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Paul Buchanan: Overwhelmed - The BMJ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/bmj\/2016\/11\/04\/paul-buchanan-overwhelmed\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Paul Buchanan: Overwhelmed - The BMJ\" \/>\n<meta property=\"og:description\" content=\"Feeling overwhelmed. 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