{"id":36667,"date":"2016-05-13T10:16:41","date_gmt":"2016-05-13T09:16:41","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=36667"},"modified":"2016-05-13T10:16:41","modified_gmt":"2016-05-13T09:16:41","slug":"jeanne-lenzer-the-backstory-is-us-healthcare-a-frontier-for-a-new-civil-rights-movement","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2016\/05\/13\/jeanne-lenzer-the-backstory-is-us-healthcare-a-frontier-for-a-new-civil-rights-movement\/","title":{"rendered":"Jeanne Lenzer: The Backstory\u2014Is US healthcare a frontier for a new civil rights movement?"},"content":{"rendered":"<p><a href=\"https:\/\/blogs.bmj.com\/bmj\/2016\/02\/12\/jeanne-lenzer-the-backstory-when-is-patient-consent-needed\/jeanne_lenzer\/\" rel=\"attachment wp-att-36185\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-36185\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2016\/02\/jeanne_lenzer.jpg\" alt=\"jeanne_lenzer\" width=\"160\" height=\"160\" srcset=\"https:\/\/blogs.bmj.com\/bmj\/files\/2016\/02\/jeanne_lenzer.jpg 160w, https:\/\/blogs.bmj.com\/bmj\/files\/2016\/02\/jeanne_lenzer-150x150.jpg 150w\" sizes=\"auto, (max-width: 160px) 100vw, 160px\" \/><\/a>When the Lown Institute first signaled its plan to build a \u201cmovement\u201d four years ago, it seemed to be an unlikely group to succeed. The founding conference was attended largely by academic doctors\u2014and no matter how concerned doctors are about what is happening to healthcare, movements are only successful when driven by the people who carry the burden of harms. But from the start, the Lown Institute has recognized that changes within the house of medicine will not be sufficient. As long as industry owns politicians and creates its own rules, it will be impossible to forge substantive change; and to make those changes, there needs to be a movement.<!--more--><\/p>\n<p>At its <a href=\"http:\/\/bit.ly\/1T37jVT\">fourth annual conference<\/a>, the institute\u2019s efforts to build that movement appeared to be paying off as it brought together a coalition of individuals and organizations supporting \u201cright care,\u201d in which everyone has access to care, but is not exposed to the harms of profit-driven overtesting and overtreatment.<\/p>\n<p>The Right Care Alliance, which the institute hopes will become an independent, self-supporting entity, marks the tenuous beginning of that hoped-for movement. Joining as speakers and participants were fiery activists who have been harmed by bad medicine, and those who have lived in inner cities without access to care\u2014where life expectancy is worse than Bangladesh. Whether the alliance will be able to sustain those connections among activists and grow as a truly independent organization is yet to be seen, but it has turned a corner in the right direction.<\/p>\n<p>Doctors, community activists, and patients worked respectfully, shoulder-to-shoulder at the conference to come up with goals and plans for the future. Phil Thompson an urban planner and political scientist at the Massachusetts Institute of Technology in Cambridge, said \u201c\u2026we can\u2019t build a movement if everyone shrinks when a doctor walks in a room.\u201d Stephen Martin, a family medicine doctor from rural Massachusetts, said he was glad to see patients active at the conference.<\/p>\n<p>One of the speakers, Eliseo Medina, told conference participants why mass action and the Right Care Alliance are important. Medina, an immigrant from Mexico and former farm worker, said he went to work after 8th grade picking grapes. He worked with Caesar Chavez for 18 years on the California farm worker\u2019s movement. He said \u201cConditions were terrible,\u201d and he joined Caesar Chavez in the fight to build a union. For that, he said, \u201cWe were beaten, jailed, evicted from our housing, and four workers were killed.\u201d But, he said, \u201cEventually, we won&#8230;\u201d<\/p>\n<p>Medina said healthcare is an implicit part of social justice and it needs the same sort of mass action farm workers had to take. He said although Obamacare \u201cis an achievement over what we had\u2026it falls far short of what is needed. Far too many people still don\u2019t have care&#8230;This conference is a great opportunity\u2026to discuss strategies and to plan for change\u2026the road will be long and hard and it will seem you\u2019ll never reach your destination. But if you persevere, there will be victories along the way\u2026\u201d<\/p>\n<p>At the conference closing, Vikas Saini, president of the Lown Institute, worried aloud that he too often heard \u201cthe gospel of the achievable spoken in the language of the incremental,\u201d and he called on the audience to take action and to join the Right Care Alliance to make real systemic change, saying \u201cWe can do better than that.\u201d<\/p>\n<p><em><strong>Jeanne Lenzer<\/strong> is a medical investigative journalist who sadly has to leave fascinating tidbits about various stories on the cutting room floor. The Backstory is an attempt to archive some of those bits and to provide a bit of insight for the public about the \u201cbehind-the-scenes\u201d aspect of investigative journalism.<\/em><\/p>\n<p><em><strong>Competing interests:<\/strong> None declared.\u00a0<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>When the Lown Institute first signaled its plan to build a \u201cmovement\u201d four years ago, it seemed to be an unlikely group to succeed. The founding conference was attended largely [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2016\/05\/13\/jeanne-lenzer-the-backstory-is-us-healthcare-a-frontier-for-a-new-civil-rights-movement\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1357],"tags":[],"class_list":["post-36667","post","type-post","status-publish","format-standard","hentry","category-us-health-care"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Jeanne Lenzer: The Backstory\u2014Is US healthcare a frontier for a new civil rights movement? - The BMJ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/bmj\/2016\/05\/13\/jeanne-lenzer-the-backstory-is-us-healthcare-a-frontier-for-a-new-civil-rights-movement\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Jeanne Lenzer: The Backstory\u2014Is US healthcare a frontier for a new civil rights movement? - The BMJ\" \/>\n<meta property=\"og:description\" content=\"When the Lown Institute first signaled its plan to build a \u201cmovement\u201d four years ago, it seemed to be an unlikely group to succeed. 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