{"id":31208,"date":"2014-03-12T17:34:51","date_gmt":"2014-03-12T16:34:51","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=31208"},"modified":"2014-03-12T17:36:12","modified_gmt":"2014-03-12T16:36:12","slug":"robin-e-moulder-the-role-of-patient-engagement-in-error-prevention","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2014\/03\/12\/robin-e-moulder-the-role-of-patient-engagement-in-error-prevention\/","title":{"rendered":"Robin E Moulder: The role of patient engagement in error prevention"},"content":{"rendered":"<p><a href=\"https:\/\/blogs.bmj.com\/bmj\/files\/2014\/03\/moulder.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-31209\" alt=\"Robin Moulder, RN\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2014\/03\/moulder.jpg\" width=\"160\" height=\"110\" \/><\/a>Imagine being told you have a devastating illness, only to find out months later it was a mistake? Medical diagnostic errors are profoundly damaging to the patient, the clinician, and the healthcare system. Yet, as we know, human error is a reality in our clinical practice.<\/p>\n<p>My grandfather had a saying when it came to &#8220;doctor visits&#8221;: &#8220;Remember, they only have a license to practice, and that\u2019s what they\u2019re doing!\u201d\u00a0 Some wisdom in that; for a man of his generation it was a pretty unusual perspective.<!--more--><\/p>\n<p>Gone are the days of \u201cjust do what the doctor says.\u201d Team work and precise communication have become skills critical to the success of any healthcare model and the diagnostic process.<\/p>\n<p>That said, <a href=\"http:\/\/www.pulseofny.org\/\">PULSE of NY <\/a>a grassroots, NY based patient advocacy group is on a mission to change the tragedy of medical diagnostic errors. Its recent symposium brought both clinicians and patients together to explore ways to prevent errors and improve communications during the diagnostic process. One patient spoke about her experience with a diagnostic error. She received a diagnosis of subcutaneous panniculitis-like T-cell lymphoma (SPTCL) in June 2004. Feelings ranging from disbelief to panic and grief set in. She asked for a second opinion only to hear \u201cno one knows more about this than I do so don\u2019t waste your time. You need to start chemotherapy.\u201d By September 2004, she had found a qualified physician who first listened to her story, and then sent the original pathology slides to the National Institute for Health (NIH) to be read. The report can back confirming there was no malignancy. This event affected her emotionally and devastated her financially. To this day, she lives with that and still no diagnosis of what \u201cthe lump\u201d was.<\/p>\n<p>Preventing such experiences is our duty. Ronald Wyatt, of the <a href=\"http:\/\/www.jointcommission.org\/ronald_m_wyatt_md_mha\/\">Joint Commission<\/a>, and Jack Rubenstein, an internist and educator with the North Shore LIJ Health System in New York told us to \u201cFirst, listen. The patient is giving you the answer.\u201d They challenge our community to \u201ccome from a place of service to the patient.\u201d<\/p>\n<p>Engaging patients in their care is not a new concept, but training patients might be. PULSE of NY coaches patients to present their story to the clinician with an accurate, well detailed timeline of symptoms using clear and powerful words to describe the impact on their life. They encourage patients to challenge the diagnosis as critical thinkers\u2014as part of the team\u2014rather than victims blindly accepting whatever a fractured healthcare system throws at them.<\/p>\n<p>So, at the end of the day, our jobs as practitioners should look more like patient advocates than \u201cthe answer man.\u201d We are practitioners who must be ethically and morally driven to create an environment transforming the patient\u2019s diagnostic experience from an anxious and exhausting struggle to a supportive and efficient discovery of the truth.\u00a0 Are we ready for the challenge?<\/p>\n<p>Declaration: \u201cI, Robin Moulder, declare that that I have read and understood the BMJ Group policy on declaration of interests and I have no relevant interests to declare.\u201d<\/p>\n<p><em><strong>Robin Moulder<\/strong> is a registered nurse with over 20 years experience in healthcare quality management.\u00a0 She has an MBA and is a certified practitioner of healthcare quality (CPHQ). She is a volunteer for PULSE of NY and serves on their planning committee. She is currently the manager of the Patient Safety Programme at Memorial Sloan Kettering in NYC.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Imagine being told you have a devastating illness, only to find out months later it was a mistake? Medical diagnostic errors are profoundly damaging to the patient, the clinician, and [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2014\/03\/12\/robin-e-moulder-the-role-of-patient-engagement-in-error-prevention\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[223,5749,1357],"tags":[],"class_list":["post-31208","post","type-post","status-publish","format-standard","hentry","category-guest-bloggers","category-patient-perspectives","category-us-health-care"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Robin E Moulder: The role of patient engagement in error prevention - The BMJ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/bmj\/2014\/03\/12\/robin-e-moulder-the-role-of-patient-engagement-in-error-prevention\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Robin E Moulder: The role of patient engagement in error prevention - The BMJ\" \/>\n<meta property=\"og:description\" content=\"Imagine being told you have a devastating illness, only to find out months later it was a mistake? 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