{"id":30781,"date":"2014-01-14T16:43:02","date_gmt":"2014-01-14T15:43:02","guid":{"rendered":"https:\/\/blogs.bmj.com\/bmj\/?p=30781"},"modified":"2014-07-29T09:37:30","modified_gmt":"2014-07-29T08:37:30","slug":"carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients","status":"publish","type":"post","link":"https:\/\/blogs.bmj.com\/bmj\/2014\/01\/14\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\/","title":{"rendered":"Carolyn Thomas: Why physicians must stop saying: \u201cwe are all patients\u201d"},"content":{"rendered":"<p><a href=\"https:\/\/blogs.bmj.com\/bmj\/2014\/01\/14\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\/carolyn_thomas\/\" rel=\"attachment wp-att-30785\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-30785\" src=\"https:\/\/blogs.bmj.com\/bmj\/files\/2014\/01\/carolyn_thomas.jpg\" alt=\"carolyn_thomas\" width=\"160\" height=\"110\" \/><\/a>While noodling around on <a href=\"http:\/\/www.linkedin.com\/\">Linked In<\/a> one day, I was pleased to notice that the professional networking site has some member groups discussing patient engagement.<\/p>\n<p>I\u2019m a heart attack survivor, a blogger, and a women\u2019s health activist\u2014so I also consider myself a fairly engaged patient. Maybe I should drop in on one of these groups and see what other engaged patients are up to? Most likely contemplating issues like doctor-patient communication, improved health outcomes, and informed decision making, no doubt.<\/p>\n<p>But it was only then that I realized this: these groups don\u2019t have any patients in them.<!--more--><\/p>\n<p>What they do have are people who work in healthcare, talking about patients, and discussing the experience of being a patient, and speaking for patients\u2014all without bothering to include any real live patients.<\/p>\n<p>Many physicians defend this exclusionary practice by insisting that, after all, \u201cwe are all patients\u201d anyway, at some point in our lives.<\/p>\n<p>That insistence immediately tells us something important about the makers of such a statement, namely: they\u2019re not patients.<\/p>\n<p>You may have, like most people, sought diagnosis or treatment for an acute care health issue. You may have spent time in a hospital bed recuperating from such an event. You may have suffered a broken bone, an allergic reaction, a skin burn, appendicitis, or a bad cut that needed stitching up.<\/p>\n<p>None of those examples of acute care medicine means that you are a patient, and here\u2019s why.<\/p>\n<p>I like to define acute care in this way: you get sick, you get treated, you get better\u2014and then you thank your brilliant doctor.<\/p>\n<p>But it\u2019s only when you\u2019re diagnosed with chronic illness\u2014and especially if you\u2019re living with more than one chronic illness diagnosis\u2014that, despite the claims of those \u201cwe are all patients\u201d folks, you learn what actually being a patient is all about.<\/p>\n<p>In fact, many people living with chronic illness feel terrible. Every. Single. Day. And while those receiving acute care can expect that feeling temporarily terrible will gradually diminish, in chronic care we often live with the chilling reality that it feels terrible now, and it\u2019s likely to get even worse over time.<\/p>\n<p>I\u2019m no longer surprised now when I read physicians\u2019 shocked accounts of learning firsthand what it feels like to become a real live patient. No matter how many years of clinical experience working with, caring for, and listening to their patients they may have, physicians and other healthcare professionals inevitably report a \u201cEureka!\u201d moment when facing their own health crises. They announce to their colleagues, for example, that hospitals are demoralizing, medical procedures frightening, lack of dignity embarrassing, symptoms distressing, dependence humiliating, the simplest of tasks exhausting, anxiety relentless, their past as a healthy person but a dim memory, and a future that seems bleak and uncertain.\u00a0 Who knew?<\/p>\n<p>Welcome to our world, doctors.\u00a0 And until you experience that \u201cEureka!\u201d moment yourself, please stop saying: \u201cwe are all patients.\u201d<\/p>\n<p>Because you\u2019re not.<\/p>\n<p><em>Competing interests: I declare that that I have read and understood the BMJ Group policy on declarations of interest and I have no relevant interests to declare\u2014except that I <strong>am<\/strong> a real live patient.<\/em><\/p>\n<p><strong>Carolyn Thomas<\/strong> is a heart attack survivor, women&#8217;s health activist, and blogger at <a href=\"http:\/\/www.myheartsisters.org\">Heart Sisters<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>While noodling around on Linked In one day, I was pleased to notice that the professional networking site has some member groups discussing patient engagement. I\u2019m a heart attack survivor, [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/blogs.bmj.com\/bmj\/2014\/01\/14\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\/\">More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5749,1357],"tags":[],"class_list":["post-30781","post","type-post","status-publish","format-standard","hentry","category-patient-perspectives","category-us-health-care"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Carolyn Thomas: Why physicians must stop saying: \u201cwe are all patients\u201d - The BMJ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.bmj.com\/bmj\/2014\/01\/14\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Carolyn Thomas: Why physicians must stop saying: \u201cwe are all patients\u201d - The BMJ\" \/>\n<meta property=\"og:description\" content=\"While noodling around on Linked In one day, I was pleased to notice that the professional networking site has some member groups discussing patient engagement. I\u2019m a heart attack survivor, [...]More...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/blogs.bmj.com\/bmj\/2014\/01\/14\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\/\" \/>\n<meta property=\"og:site_name\" content=\"The BMJ\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/bmjdotcom\/\" \/>\n<meta property=\"article:published_time\" content=\"2014-01-14T15:43:02+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2014-07-29T08:37:30+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/blogs.bmj.com\/bmj\/files\/2014\/01\/carolyn_thomas.jpg\" \/>\n<meta name=\"author\" content=\"BMJ\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@bmj_latest\" \/>\n<meta name=\"twitter:site\" content=\"@bmj_latest\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"BMJ\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/\"},\"author\":{\"name\":\"BMJ\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/#\\\/schema\\\/person\\\/ba3da426ed20e8f1d933ca367d8216fe\"},\"headline\":\"Carolyn Thomas: Why physicians must stop saying: \u201cwe are all patients\u201d\",\"datePublished\":\"2014-01-14T15:43:02+00:00\",\"dateModified\":\"2014-07-29T08:37:30+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/\"},\"wordCount\":565,\"commentCount\":4,\"publisher\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/files\\\/2014\\\/01\\\/carolyn_thomas.jpg\",\"articleSection\":[\"Patient and public perspectives\",\"US healthcare\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/\",\"url\":\"https:\\\/\\\/blogs.bmj.com\\\/bmj\\\/2014\\\/01\\\/14\\\/carolyn-thomas-why-physicians-must-stop-saying-we-are-all-patients\\\/\",\"name\":\"Carolyn Thomas: Why physicians must stop saying: \u201cwe are all patients\u201d - 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