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Kailash Chand on Tony Nicklinson and the right to die

20 Aug, 12 | by BMJ Group

Kailash ChandAs Tony Nicklinson’s case illustrates, there is clearly a desire among some patients with debilitating and incurable diseases, to end their suffering with the support of their doctor and relatives. To deny this right is to prolong the suffering of individuals and families—something I cannot condone. Nicklinson’s is the latest case in which appeals for the right to die have been rejected by British courts, and comes against the background of a long-running campaign for a change in the law. I sincerely believe, unbearable suffering, prolonged by modern medical technology/care, and inflicted on a dying patient against their will, is an unequivocal evil. To die with dignity is a basic human right.

For many years, surveys have shown a steady 75% plus support for assisted dying in the general population. I, like many in the profession, would like to see the law on assisted suicide amended to allow doctors to provide the choice of an assisted death only to those who are terminally ill, mentally competent, and who have expressed “a clear and settled wish to die”. I concede that a significant number of my colleagues in the profession would prefer to see no change at all as has been demonstrated numerous times at the BMA ARM.

The argument that palliative care, combined with psychological and spiritual support, can address all the problems of all dying patients ignores the clinical reality. Quite a few patients like Tony Nicklinson, despite receiving the best palliative care, still suffer beyond our imaginations. International experience also confirms that palliative care and assisted dying are not either/or options. Since 2002, assisted dying has been legal in Oregon under the Death with Dignity Act. Of the 50 states of the USA, Oregon has amongst the best palliative care and nearly 90 per cent of those seeking assisted dying do so from within those services.

I accept that assisted dying is not like any other clinical decision and if society is to offer this solemn choice it must build in safeguards that not only rectify the inadequacies of the current situation, but protect the vulnerable, the weak and all those—doctors and nurses included—who are involved in this incredibly difficult situation.

We must enact legislation to decriminalise acts of euthanasia and physician-assisted suicide, for the following compelling reasons:

  • Prevention of cruelty and protection of human rights. To allow a terminally ill individual to end their life is the only humane, rational, and compassionate choice. The current prohibitions require a person with great physical or mental suffering to continue to endure suffering against their wishes, which cannot be right. The right to life and to a private and family life under the European convention on human rights should be interpreted broadly to include decisions about quality of life, including decisions about death if life is no longer one of quality.
  • Regulatory control. The terminally ill are travelling abroad to countries where the right to end life in terminal cases is lawful. We cannot regulate the laws of foreign lands. We must make provisions within our laws to regulate this issue within our boundaries. We must not prosecute loved ones who assist a terminally ill individual to travel abroad to end their life lawfully for “encouraging or assisting” suicide.
  • Ambiguity. The current law conflicts with the law as it is being enforced. If the laws were enforced, more than 100 people would have been prosecuted for accompanying loved ones abroad to end their lives. This uncertainty leaves all concerned, including physicians, unprotected.
  • Discrimination. The ability of the wealthy to travel to countries where it is lawful for the terminally ill to end their lives treats the haves and have-nots unequally.
  • Available safeguards. Many people are opposed to legislation that would allow “end of life” choices. But our concerns relating to abuses and protection of the vulnerable can be addressed by ensuring certain objective conditions are met prior to allowing a terminally ill individual to exercise the right to die:
    • the patient must be terminally ill.
    • the patient must be an adult.
    • the patient must be mentally competent.
    • the patient must be in severe pain.
    • two independent physicians must be satisfied that the above conditions are present.

If we do not address this issue head on, we will have continued uncertainty and the unregulated practice of euthanasia, with the fear of prosecution hanging over the heads of all concerned. The goal of the medical profession should still be to save lives—but not at the expense of compassion and the right of the terminally ill to choose to end their lives with dignity. The availability of assisted dying would bring much comfort to not only Tony Nicklinson, but to others as well, even if they don’t actually use it, because it brings a sense of having some control.

Kailash Chand has been a GP for last 30 years and is now chair of the NHS Trust Tameside & Glossop. He is on the BMA council and he was on the general practitioner’s committee. He was awarded an OBE in 2010 for services to the NHS. He writes for the Guardian, and other regional and national publications on health matters.

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  • http://twitter.com/SceptiGuy Guy Chapman

    One might legitimately point out that we would not do this to a dog. It is quite extraordinary cruelty to a man who has consistently and eloquently stated that he has no wish for others to continue to artificially prolong his life. Surely this verdict is a reversal of the principle of informed consent, as he has by any meaningful test withdrawn the consent for others to keep him alive, and is plainly unable to survive without such intervention.

  • AB

    Assisted death in terminally ill must be seriously considered, I support the article

  • Dr kumar kotegaonkar

    Dr Chand has very well defended the right to have a dignity and a quality in living.Just existence is not a life,and in that if no CHOICE,then it is more painful.One Tony Nicklinson has no choice .another Tony Scott could jump of the bridge as he had a choice.
    Unfair world we live in.

  • http://twitter.com/mellojonny Jonathon Tomlinson

    There are important lessons to be learned about how doctors (and I am sure other ‘empowered’ (wealthy/ educated) people die, described in two essays by Ken Murray. Doctors choose less intervention and are much more likely to die they way they wish. http://zocalopublicsquare.org/thepublicsquare/2012/07/23/doctors-really-do-die-differently/read/nexus/
    They are also more likely to take their own lives that the rest of the population.
    Doctors ought to let their patients have the same level of control at the end of their lives that they would wish for themselves.

  • Garcliffe

    The case for a law to legalise the choice of physician-assisted dying for mentally competent people with terminal illness, who have expressed a settled wish to die, is very ably made by Kailash Chand.I hope BMA stop opposing and at least adopt a neutral stance on this highly cgarged debate.

  • royaldock

    “I accept that assisted dying is not like any other clinical decision and
    if society is to offer this solemn choice it must build in safeguards
    that not only rectify the inadequacies of the current situation, but
    protect the vulnerable, the weak”
    Lovely opinion but Parliament has looked at this twice and has twice concluded that there is no way we can protect the vulnerable and the weak in this system. There is no ‘human right to a dignified death’. There is a human right to dignity in life.

  • http://twitter.com/joefd j farrington-douglas

    He is neither dying nor being kept alive artificially, as far as I understand.

  • Dr N kumar

    Dr Chands article on Tony Niclinson Right TO Die is thought provoking and merits serious consideration at the highest level. It is the basic right of every person to live with dignity and honour if this is compromised irrevocably and for ever,the person concerned, his near and dear ones feel so and express their well informed desire and give consent . A group of independently appointed individuals by the legal system should look at such a case and decide. I strongly support a well meaning and legally controlled CHOICE OF RIGHT TO DIE.

  • Christo

    I support any adult of sound mine who seeks to end their life’s to do so be they sick, disabled, terminal or not. Sound mind should be the determinator.
    Well controlled end of life help should be made legal and freely available.

  • vespacat

    I am deeply concerned by this. Why? Well, I work with the elderly and too many times I have seen where granny, mum, dad, aunty, whoever, is made to feel a burden because the family really would much rather have its hands on the money value of what the elderly relative has in his or her will. After years/months of pressure day-in, day-out, said elderly person truly no longer enjoys life and thinks he or she really should end their suffering and do everyone a favour by dying. Change the attitudes of those around the old and the sick and what I see is a much more humane situation where that pressure to end it all is not there and life is still more than mere ‘existance’ and definitely not a burden.
    Plus, I see our truly horrible attitude to the elderly, sick, disabled that is being pushed by this current government and the media, in the form of ‘benefit scroungers’ ‘lazy’ ‘worthless’ ‘drain on hard-working,law-abiding, tax payers’ and I really do see we are going down a slippery slope that was followed back in the early-middle 20th Century… and we know how that ended.
    Nor I am I entranced by the thought of a doctor deliberately ending life: again, we’ve been there when we have docs playing god with the lives of the elderly & the sick.
    I am truly, truly, sorry for anyone who is in the situation where they feel their life is so miserable and worthless that they want to die. I would not wish that on anyone, I really wouldn’t.
    But there is no easy route to the answer in this. If we bring in euthanasia, despite safeguards, there will be people killed who should not be. Due to the things I describe at the top of my post, I am of absolutely no doubt in this. I despair at our society’s attitude to the vulnerable.
    Thre are no easy answers which is why, in a way, our current ‘fudge’ on assisted dying is perhaps the best of a bad job all round.

  • Simon Kenwright

    Few quibbles with Kailish Chand but I would change the “severe pain” to “severe distress not responding to treatment”. I support a change in the law but what makes the present position so awful are those doctors who still feel that it is their decision whether a patient can be obliged to have life prolonging treatment. As Tony Nicklinson has died so quickly , perhaps we should have recognised that he had a terminal condition – but then he might not have been allowed to die if he had remained in hospital.

  • Alessandro

    Who can decide that life is no more worth living? I think a doctor should try to guarantee the right to live and not the right to die. Death, even if is a regular companion in doctor’s everyday practice, remain the enemy to defeat anymay and definitely not a cure.

  • http://twitter.com/joefd j farrington-douglas

    Given Phil Berry’s comments below, could Dr Chand (for whom I have the greatest respect) be given the opportunity to amend his article to reflect the factual issue of NT’s terminal illenss?

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