Perspective:  Rosenbaum reviews the area of measuring quality of life in children, with particular reference to a recent study published in the Lancet, SPARKLE.  Here.

Focus group interviews with parents of 21 children with quadriplegic cerebral palsy was used to identify themes and compare their views with those of healthcare professionals, highlighting the communication difficulties between the two groups.  Here.

In a study of 1238 UK children, some in good health and some with chronic disease, the Manchester-Minneapolis tool was a valid measure of QoL.  Here.